Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac results


decclj

Recommended Posts

decclj Apprentice

I had a blood test it read ttg 101.6 what does this mean also it said 4.0um negative 4.10 weak positive 10 uml possitive I have had biopsy waiting on results


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

With a result that high it means you are Celiac. If your biopsy results should come back negative do the diet strictly anyway. Damage can be patchy and get missed and positive blood work trumps negative biopsy. Hope you are feeling better soon. Do be sure to read the Newbie 101 thread at the top of the Coping section as that has a lot of good info on what you need to do to say safe.

decclj Apprentice

Thankyou will let you know results on the 4th of October

decclj Apprentice

I can't wait to get results on Thursday had some Bolognese today and now feel weezy and my skin is itchy

decclj Apprentice

Feeling nervous today is the day I get my biopsy results

cyclinglady Grand Master

Waiting is is hard!  Hang in there.  ?

decclj Apprentice

Feeling nervous today is the day I get myw biopsy results got my results today negative biopsy  he said maybe it is wheat and told me to go on a gluten free diet but couldn't explain why I had antibodies in my blood and such a high blood result


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



decclj Apprentice
5 hours ago, cyclinglady said:

Waiting is is hard!  Hang in there.  ?

Can you have antibodies in your blood with a wheat allergy

ravenwoodglass Mentor

No an allergy would not cause those antibodies to be high. The small intestine is very big and damage can be easily missed. Do get on the diet strictly and then in 6 months or so get your antibodies retested. They will likely have come down and your symptoms improved.

cyclinglady Grand Master

I agree with Ravenwoodglass.  I also understand your frustration.  ?

The actual proof  is how you may feel on the diet.  Give it a solid six months.  

decclj Apprentice

What then get another blood test will I have to be on gluten for that or just get tested

ravenwoodglass Mentor

You would not need to be back on gluten for that test as it is to see if the diet is helping bring the antibodies down. That combined with resolution of symptoms is diagnostic and some doctors will give a diagnosis based on the results despite a negative biopsy.

decclj Apprentice

Thankyou for all your help

decclj Apprentice

Can't wait to get gluten free things today can't put up with another night like last night

ravenwoodglass Mentor
9 minutes ago, decclj said:

Can't wait to get gluten free things today can't put up with another night like last night

Try and stick with as much whole unprocessed food as you can for now. Veggies, fruits, potatoes, rice, meats and fish etc will help to aid healing. After you are feeling better for a bit than go add in gluten free treats and convience foods. If you haven't been much of a cook before ask and look at the recipe section for ideas. Best to avoid or limit dairy until you have healed and personally I would also avoid soy as those two items are common intolerances for many of us. Add them in when you have been feeing better to make sure you are tolerating. I hope you are feeling better soon but don't get discouraged if you have some ups and downs. Be sure you have checked the Newbie 101 thread as it has a lot of good advice to help keep you safe.

decclj Apprentice

Feeling a lot better this week more energy thankyou for all help

cyclinglady Grand Master

So glad that you are already feeling better!  

  • 2 weeks later...
decclj Apprentice

Feeling a lot better this week more energy thankyou for all help .must of eaten something with wheat in as had a bad night Thursday . doctor has referred me to a dietitian does any body know how long you have to wait to see dietitian on the nhs

decclj Apprentice

Does anybody know how long to see a dietitian on the nhs

will4318 Apprentice
55 minutes ago, decclj said:

Does anybody know how long to see a dietitian on the nhs

I saw one last year and had to wait about a month I think. 

decclj Apprentice

Thankyou

decclj Apprentice

Does anybody have trouble with chicken I did was up all night feeling sick

cyclinglady Grand Master

No, but I might suspect the herbs used to season it.  I have a garlic intolerance that has never resolved.  I once became very ill after consuming copious amounts of delicious gluten-free fried chicken that was garlic free and I made it!   I think sheer gluttony got me.  How was the chicken prepared?  Did you purchase wrapped in the store or was it in a meat case near “stuffed” pork chops that the butcher prepared?   

decclj Apprentice

I brought it all wrapped up from Sainsbury's it was free range

cyclinglady Grand Master

My guess is that the chicken was okay unless you recently developed an intolerance to poultry (unlikely).    Was it packaged in the store or at the factory?   What do you eat with it?  What did you consume during the day or prior day?  Often it can take a while for antibodies to build up.  Not everyone reacts instantly.  

You said you thought you were glutened last week.  If I were glutened, I can expect to have abdominal pain digesting anything, even safe foods for weeks.  As soon as any food hits my small intestine, the pain starts and ends when it exits the small intestine.  I always feel fine in the morning and dread having to start eating.  I eat soft easy-to-digest foods like soups and stews.  It can take a month for me to digest without pain after a glutening.

 When a celiac gets glutened, the reaction does not resolve within a day or so.  No, the body flares-up and the reaction can last for days or weeks (everyone with celiac disease reacts a bit differently).   Does that make sense?  

You could still be reacting to your exposure from last week which is already adding fuel to the fire (your TTG was a 100 when you were diagnosed a month ago) and is still probably elevated (decreasing but not normal).  

Give it more time.  The diet has a steep learning curve and healing does take months and months, if not a year.  

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,077
    • Most Online (within 30 mins)
      7,748

    bwinpi
    Newest Member
    bwinpi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Could be the Ozampic is masking your expected symptoms.  Like an analgesic masks pain.  Qzampic slows digestion to lower the rate glucose enters the intestine to slow its effect on glucose level.  It seems it might also slow down the gluten entry into the intestine, reducing its trigger level for the antibodies.  Ultimately the damage from gluten is the same, just not as fast so the pain is less.  Sourdough bread has less gluten.  Ozampic siows its entry.
    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
    • MHavoc
      As with most of the people that come here, I have questions and need perspective/info from this wonderful community.  Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work.  One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year.  I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
    • Vozzyv
      Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. 
×
×
  • Create New...