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Should I seek further testing?

ChooseJoy

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ChooseJoy Newbie
ChooseJoy
Posted

Hi!

 

My pediatrician recently had my son tested for celiac disease.

His IgA came back negative, the IgG was positive.

I, his Mom, have celiac disease and I am wondering if I should seek further testing with a GI doctor?

The pediatrician said he was negative for celiac disease, I just want to make sure I do not miss anything.

thank you,

Tracy

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Scarlettsdad Contributor
Scarlettsdad
Posted
37 minutes ago, ChooseJoy said:

Hi!

 

My pediatrician recently had my son tested for celiac disease.

His IgA came back negative, the IgG was positive.

I, his Mom, have celiac disease and I am wondering if I should seek further testing with a GI doctor?

The pediatrician said he was negative for celiac disease, I just want to make sure I do not miss anything.

thank you,

Tracy

I would definitely seek further testing. From what I've read, celiac disease is often overlooked and miss-diagnosed (specifically, false negatives). Regardless of the outcome, you'll know you covered all your bases. 

frieze Community Regular
frieze
Posted

you need a new peds, if the IgG is +, he needs further testing, esp. since YOU are dx celiac.  

ChooseJoy Newbie
ChooseJoy
Posted
  • Author

That’s exactly my thought. Especially because all of my blood work came back negative and a biopsy diagnosed me! I feel like if even one part is positive that is more than what I had and I have it. 

cyclinglady Grand Master
cyclinglady
Posted

Consider getting the entire celiac panel.  If my GI had not ordered it, my diagnosis would not have been made.  I test positive to ONLY the DGP IgA, yet my biopsies revealed severe damage.  Even in follow up testing, I have never had a positive on the EMA or common screening TTG.  The DGP is thought to be better in small kids and who knows why I test out this way.    Not everyone presents as a “cookie cutter” patient.  Just like you!   

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