Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Very Pleasant, But Help! Pleasee..


romeo77

Recommended Posts

romeo77 Rookie

hey there, im from sydney australia... im 18 years old and i was diagnosed about 6 weeks ago...

i was doing really well , wasnt gaining weight back, but felt pretty good overall...

but theres so much paranoia and anxiety hitting me because of some of my symptoms of the late...

this is gross , but i need to get it off my chest... im having a cereal that has HEAPS of muesli and oats and grains etc..

and when i have this cereal on certain days, my stool is different!!.... i can see HEAPS of parts of the cereal throughout my stool.... and some parts are dark and some parts are light coloured....

i know its so friggin disgusting!!! please dont discard my post cos of this ,trust me im hygenic as hell. !!!:)

but yeh , on other days when i have the cereal its normal...... is this a bad thing?? could it be that the cereal is no good for me cos it cant absorb the oats & muesli etc????

please help ASAP

thankyou anyone who can help me.. :)

dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Dan--Personally, I would stay away from the oats. I dont trust oats, even though some doctors say we can have them. Oats made me ill before I knew anything about celiacs. I dont believe we can have them. Have you checked your cereal--does it contain barley malt? Barley doesnt normally cause a reaction in me, but it is still a gluten we MUST stay away from. I helped my daughter make some "Puppy Chow" a Christmas treat she loves and the cereal has barley in it. I did not eat any of it, but somehow I think I got some in me, I had a nasty tummyache yesterday afternoon--I havent had one in a long time. Just be careful of the cereals..ok. Deb

jerseyangel Proficient

Hi Dan--Yea, I would not eat that cereal any more. Period. Like Deb, oats made me sick years before I had a DX. Not terribly, but enough to not want to eat them. You have not been DX for that long, and you have to be careful to eat simply so that your intestines have a chance to heal. For breakfast, you might choose fruit, rice bread toast, cream of rice, eggs, that kind of thing. Even a tiny amount of a gluten containing food will keep you from healing and actually cause further damage. If you need more ideas for foods, you can search here or you can PM me. As soon as you get all the gluten out, you will begin to heal--and it will get easier the longer you do it.

jenvan Collaborator

Dan-definitely nix the cereal. Know that is does take a while to recover and for your intestines to heal though, and you have only been on the diet for a short time. So, even if you are 100% gluten-free, you may still have 'odd' stools. PS--Take a deep breath and don't be anxious. Most people make mistakes initially, as the diet is pretty complicated...so be patient with yourself and ask for help and seek our resources when you need them--like books, a local support group etc.

KaitiUSA Enthusiast

Trust me we talk about everything on here so it's quite alright lol. Alot of oats are contaminated but besides that some even react to pure oats. I for one stay away from them. I recently had a problem with something labeled gluten free so ate it and then looked over it and it had oats...well I got sick. So stay away from that...it sounds like you were doing pretty well until that hit you.

If you need help with anything feel free to email me :)

tarnalberry Community Regular

Yep, I'm afraid you'll have to ditch the cereal. besides oats, check it for barley malt.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,257
    • Most Online (within 30 mins)
      7,748

    CDIEZEL82
    Newest Member
    CDIEZEL82
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @lsky! In Canada I believe your healthcare system is totally socialized so I doubt if you have the option of making direct appointments with specialists. In the U.S. it is becoming more and more that way as most people here now are covered by some government managed healthcare network and almost all providers and specialists are part of those networks. Here and there you will find independent providers that take private pay only but it is the exception. Both in Canada and in the U.S. I believe there is a concerted effort to always keep the PCP in the loop.
    • lsky
      I have had celiac disease since i was 7 and i've recently had worsening symptoms, I live in canada and the doctors right now are horrible so my general doctor never puts in my referrals or she does it wrong and i have to wait months-years for an answer. I was wondering I already have a Gastroenterologist, could i just contact him and ask to book an upcoming appointment? i'm not sure if it's different in canada or not.
    • trents
      Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
    • Wrensmith
      With such a weak positive, his got may or may not be cleared in three months. My daughter when diagnosed at the age of seven had a TTG score of 388. It was 18 months on a gluten-free diet before her levels returned to normal. it seems to me that when you started something that allows your son to gain weight, as he clearly needs to do, you may want to keep doing it.  Sometimes you just need to figure out the science of it as you go along. Have you been tested?  That’s how I found out I had celiac disease, was after my daughter was diagnosed, and the recommendation given to me was that all of her first-degree relations should be tested as well. I came back with a weak positive when I was on a largely, though not entirely, gluten-free diet (cooking for my newly diagnosed child). good luck with everything.
    • Juliana82
      Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
×
×
  • Create New...