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What are your accidental glutening symptoms on a gluten-free diet? Any Silent Celiacs out there?

RoseMG

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RoseMG Apprentice
RoseMG
Posted

Hi everyone,

Wondering what your symptoms are when you eat gluten. It's my understanding your intestines heal over time on a gluten-free diet, so do you still have GI symptoms months into a gluten-free diet when you accidentally ingest it or do you experience something else?

Especially wondering about those Celiacs who never really had any symptoms to start with, i.e. "Silent Celiacs" like me.  It's so tough not knowing if I'm accidentally eating it - I'd almost prefer to have a symptom or two.

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RMJ Mentor
RMJ
Posted

I am also a silent celiac.  I had to be very strict and careful about contamination to get my antibodies down to the normal range. I know what you mean about preferring to have a symptom!  I think I might get nauseated when I am glutened but I am not sure.  I had trouble with nausea before I was diagnosed and now it is rare. When it does happen it is usually after I have been somewhere where I did not have complete control over my food.  My GI did not think it was a symptom of celiac however.

ch88 Collaborator
ch88
Posted

Avoiding cross contamination can be very difficult. I get digestive problems and anxiety if I eat Gluten. For smaller amounts it can be harder to tell. 

One way is to get tested again to see if your antibody levels have gone down. 

  • 2 weeks later...
LizO Rookie
LizO
Posted

I too am a "silent celiac" at least I thought.  I did have pretty significant villi damage on biopsy and found out I have osteoporosis so while my GI issues were not apparent sounds like my body was really reacting inside.  I got diagnosed this summer and like you "think" I am doing ok and find myself wondering "how would I know?" My biggest issue is that I have gained 11 pounds....I am not eating any processed food and am eating really healthy so its pissing me off.  Going to see an endocrinologist tomorrow for the Osteoporosis and am going to discuss the weight gain, did you have any issues with that after going off?  If I didn't know the damage it was doing internally I would say forget it and just go back to eating gluten since my symtoms seems to be silent.....frustrating....

 

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