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DH in 11 year old boy?

Arwabint

By Arwabint
in Dermatitis Herpetiformis

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Arwabint Newbie
Arwabint
Posted

Hi everyone. For the past week my 11 year old son has been complaining of misquoito bites itching him. i finally looked at them today properly and it looks exactly like DH. My husband has DH as well but it only appeared in his early 30’s. My son’s rash 5D92BE81-2760-4DFB-999F-300CC9B1430D.webp.9195744a22c67ca1eac82f1607911c1a.webpis all across the back of his thighs, on the sides of both knees and a little bit on the top of both sides of the  buttocks. I wanted to get him tested to see if he has a gluten allergy, either the prick test or blood test or both. i prefer not to do a biopsy as seems very invasive.

my two questions:

- what tests are most reliable in determining if one has DH?

- does the rash on his thighs seem like DH? (pic attached)

thanks in advance!

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GFinDC Veteran
GFinDC
Posted

Hi,

They test for DH by taking a small skin biopsy from clear skin next to a lesion.  A dermatologist is the person to go to.  Don't have him quit eating gluten until all testing is done though.  He needs to eat enough gluten each day to keep the antibodies active.  A half slice of regular wheat bread should to it.

cyclinglady Grand Master
cyclinglady
Posted

He can also get the celiac blood tests as well.  If you go with a skin biopsy, make sure the dermatologist knows how to properly biospy the rash specifically for DH.  

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All first-degree relatives should be tested even if they are asymptomatic.  DH is celiac disease!  It just presents on the skin.  It can develop at any time in your life!  

 

Arwabint Newbie
Arwabint
Posted
  • Author

thanks for taking the time to reply!

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, Arwabint said:

thanks for taking the time to reply!

Your photo?  It could be DH, but lots of rashes look the same.  Odds are it is celiac disease since your husband has been diagnosed with DH.  

Consider reading through the DH section of this forum for tips on managing DH.  

I hope your son feels better soon.  

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  • Recent Activity

    1. trents
      - trents replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and...
    2. Richardo
      - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today...
    3. trents
      - trents replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain...
    4. Richardo
      - Richardo posted a topic in Dermatitis Herpetiformis
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      dermatitis herpetiformis with all grains

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    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Celiac related issues

      By trents · Posted

      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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