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Had my endoscopy today and I'm confused


drkelli

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drkelli Rookie

GI doc said he didn't see much damage and that he'd contact me monday with the biopsy results.  He then told me that according to my "titers" I do have celiac disease.  How?  I thought the biopsy was the end all be all....


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cyclinglady Grand Master

When I was diagnosed five years ago, my GI told me that everything looked good on my scope.  My biopsies revealed a Marsh Stage IIIB.  Turns out his scope was not able to visually see the villi.  My new GI has the latest and greatest scope.  We could actually see the healthy villi during a repeat endoscopy.  My biopsies confirmed no signs of celiac disease.  Great news indeed! 

I think you have to wait for the biopsies.  

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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