Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

UC Flare MAJOR


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

So yesterday, I had a major UC flare, I thought it was celiac at first but several components where wrong, my celiac normally has pain under the ribs and core of my gut. This pain was under my navel starting and moved around the entire outside of my gut. I did not have my ataxia, no vomiting, JUST PAIN. The pain was so bad even my nerve damaged self felt it to the point of just having silent tears. Nothing helped, Hot bath, doubling down on slippery elm, marshmallow, heck I even tried 16g of magnesium before bed to flush it..that and half a bottle of melotonin to knock me out.  I distended.....I had a measured 6" extra around my gut, it felt like I had a rolled up wet bath towel stuffed in my large intestines.

Only 3 things new, I tried daiya cheese again, I tried lifefit cocoa powder, and I started a micosa supplement a few days ago. I threw away the chocolate, and am throwing away the daiya cheesy bread I made today. I am still paranoid about it being gluten....but it does not add up. -_- wondering if I should toss my blender, and everything that touched those items?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Oh Ennis, I am so sorry that you are unwell.  

Do not throw away your blender!  Just wash it out.  

It could have been anyone of those items you described that caused your UC to flare (it does not sound like a gluten exposure).   Each one is processed.  I know that you like experimenting but sticking to a non-processed diet might be the best option for you.  You know me, I take no supplements, but my diet, though simple, is vegetable rich, plenty of fats and protein.   I am not deficient in anything.  

Your flare could be totally unrelated to food.  It is just so frustrating.  But that recent study at Scripps at UC San Diego showed over a 70% remission rate with non-processed foods (AIP diet).  

Open Original Shared Link

Open Original Shared Link

Try to consume some simple mushy soft foods (stews or soup) and keep hydrated.  Rest.  

I hope you recover fast, if not, get to your doctor.  

healthysquirrel Enthusiast

Ennis, that sucks! Sorry to read that you aren't feeling well. 

I used to pass out from my pain gut pain, but have started taking cbd oil when I feel pain in my lower abdomen. It helps with those strong cramp type pains.

I second what cyclinglady said, as soon as I stopped eating anything processed I felt better. 

 

  • 4 weeks later...
BilliB Apprentice

I dont think you have to throw away the blender.

I would suspect the chocolate more than anything else. I have similar reactions to even the enjoy life choc.

I do hope you feel better soon.

Perhaps a whole foods only diet for a while might help? 

 

 

 

..oh and yes to cbd. It really helps me too. Have you considered medical marijuana if you are in a legal state?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,114
    • Most Online (within 30 mins)
      7,748

    KJF02
    Newest Member
    KJF02
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...