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Help with sons lab test results

Schlender4810

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Schlender4810 Newbie
Schlender4810
Posted

Hey all im looking for a little help uderstanding my sons test results. His pedtrician is saying he has celiacs based on these test results but im not sure. I also emailed childrens hospital where he also goes and they told me by phone those results are inconclusive and are schelduling him an appointmemt but its not for over 2 months. My son is also a type 1 diabetic and have read that could give a false positive on the endomysal antibody scr iga part of test. Both other tests are right at the exact cut off of the reference range. If he does not have to avoid gluten I do not want to make him. His results were

Endomysial antibody scr iga w refl to titer - positive reference negative

Endomysial antibody titer 1:5 reference range <1:5 titer

 

Tissue transglutamanase ab,ag 4 reference range 4

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cyclinglady Grand Master
cyclinglady
Posted
38 minutes ago, Schlender4810 said:

Hey all im looking for a little help uderstanding my sons test results. His pedtrician is saying he has celiacs based on these test results but im not sure. I also emailed childrens hospital where he also goes and they told me by phone those results are inconclusive and are schelduling him an appointmemt but its not for over 2 months. My son is also a type 1 diabetic and have read that could give a false positive on the endomysal antibody scr iga part of test. Both other tests are right at the exact cut off of the reference range. If he does not have to avoid gluten I do not want to make him. His results were

Endomysial antibody scr iga w refl to titer - positive reference negative

Endomysial antibody titer 1:5 reference range <1:5 titer

 

Tissue transglutamanase ab,ag 4 reference range 4

Welcome!  

I would suggest running the entire celiac panel which includes the DGP (his PEd can do it).    Smaller children and some people (like me) never get a positive on the EMA or the TTG, but do on the DGP (that would be me and I had intestinal damage).  

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http://www.thepatientceliac.com/2014/01/11/celiac-disease-in-children-summary-of-january-2014-review-article/

The EMA is pretty specific to celiac disease.  I have not heard that having another autoimmune disorder like TD1 can elevate it.  Usually, the TTG could be impacted.  But....I am not a doctor.  

Open Original Shared Link

He does have TD1 and I am sorry to report that about 10% develop celiac disease.  It can develop at anytime, so even if celiac disease is ruled out firmly by a PED GI, then he would need to get retested later.   Only an endoscopy can provide a firm diagnosis, so consult with the GI.  

As far as dealing with the gluten-free diet?  Kids adapt.  You can adapt.  Just like you adapted to managing his diabetes.  In fact, undiagnosed celiac disease can wreak havoc on the management of his care (not digesting food properly, etc).  A gluten-free diet just might ward off other AI disorders that could develop over a lifetime.  

Research and you will figure this out.  Hang in there, Mom!  Hugs to You!  

Schlender4810 Newbie
Schlender4810
Posted
  • Author

Thank you I was just wondering since both tests were = to the reference range and not over if it could be confirmed or not

cyclinglady Grand Master
cyclinglady
Posted

Some celiacs are seronegative.  I think that is almost 10%. Another reason the GI Associations still recommend intestinal biopsies.  

Did they check his IgA levels (Immunoglobulin A)?  If very deficient, it impact the celiac IgA type tests (like the ones he took).  

Ask for all the rest of tests (even the IgG versions).  It is the easiest place to start.  

Does he have any symptoms?  Not that it means much.  Some celiacs are asymptomatic.  

Just having one autoimmune disorder already puts him at risk. Why did the PED test in the first place?  I would like to think he was following recommendations to screen all TD1 patients.  

 

frieze Community Regular
frieze
Posted

the celiac could have preexisted the type one DM,  you should be tested, and his father, and any sibs.

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