Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cramping after going gluten free?


Sarahcat58

Recommended Posts

Sarahcat58 Explorer

So I’ve recently had a problem with gluten and dairy. The blood test came back negative for celiac, so I am planning for an endoscopy in a few months when my college semester ends. Unfortunately due to my own ignorance and lack of knowledge of celiac and gluten testing, I’ve been gluten free for about four months. So when I get this endoscopy scheduled, I’ll have to start eating gluten beforehand for atleast a month I believe, which I am not looking forward too. Anyways, sometimes when I eat certain foods (chicken, rice, harder to digest foods). I get this dull annoying ache centered around my belly button area (I’m not sure if it’s because I was accidently glutened or not?) but after about 6 hours the dull ache moves outwards, so there’s a cramping feeling around either of my hip bone area (weird??). It feels like more of a muscle cramp than anything so I don’t think it’s got anything to do with my appendix, but it’s strange because my stomach cramp seems to move to a strange area and I’ve never had that before. Since I’m pre diagnosis and I haven’t got the confirmation of celiac disease yet (it very well could be UC or something else). I was wondering if anyone else has experienced anything like this before?

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Sarahcat,

I've had pain and aching in the abdomen before.  Some of it sharp pain and some dull aching.  But people get a wide range of symptoms with celiac disease.  So it's hard to diagnose by symptoms alone.

karla a winston Newbie

Hi Saracat:  You are so not alone.  I can only speak for myself, but what I have found out is that when ones intestines are so broken they can't absorb much of anything, minerals are among the first that just slide right through the GI track.  RLS is caused basically by malabsorption of iron and minerals.  Cramping (80% of the time according to studies) is caused  by a malabsorption of magnesium.  I started using topical magnesium chlorate cream (a Dr. Axe recipe) or CALM that I purchased.  Apply it liberally to any areas that cramp and the skin absorbs it directly into the blood stream. Its great for sore muscles and scar injuries as well.  I am not sure this is why your stomach is cramping but this disease can hit so many places.  Please, if you can, get a cross intolerance test (like Cyrex labs) to see what else your body thinks is gluten.  Eggs and milk are often issues at least for a while with gluten sensitive or intolerant people.  I would suggest that if you feel better not eating something, don't eat it and don't put yourself through getting sick again because even a colonoscopy or endoscopy can be inconclusive.  It was with me.  I have never been diagnosed with anything, although I have almost died from consuming gluten, eggs and dairy.  Not anymore.  Maybe find a good NP that knows more about nutrition than M.D.'s commonly know.  Take care.

  • 2 weeks later...
laf2005laurie Rookie

I had this--luckily i didn't know about xantham gum and didn't buy food that contained it for my first few months. Then i started cooking---trying to make bread and cake and bought a big bag of Red Mills xantham powder. First serving-- cramps and pain that I hadn't had at all since going on gluten-free diet. Second serving...cramps and pain...Third time with something else I cooked with the xantham gum......knew what the trouble was.   Later got same thing after making french toast --had 4 slices of store bought bread--double over cramps- read ingredients--sure enough, xantham gum was in the bread. Over last decade this one ingredient has got me more times than undeclared wheat. Pain is horrible--xantham gum will turn into slime if the powder is left in the air because it pulls in moisture...same thing happens in the gut--gut doesn't like to be dehydrated like that I don't think.

 

Sarahcat58 Explorer

Wow I never even considered xanthem gum! I would like to test the theory but I’m also a little worried about starting the symptoms. Currently I’m trying to eat only Whole Foods, and avoid trigger foods for me (onions, peppers, spices, dairy, etc). I’ve also tried a few different magnesium products lately (which i havnt before since all my intestinal drama started). I’ve taken the magnesium that’s in Epsom salts, via bath soak and also lotions with the ingredient. I’ve also tried magnesium citrate pills and just plain magnesium. This has worked wonders for me so far.

laf2005laurie Rookie

mmm. I didn't mention- last summer drama but your mention of magnesium citrate rang a bell...   I drank 2 coffee ice- shakes instead of food at fastfood joint last summer thinking they were gluten-free.  Next two months--gut so screwed..can't believe I forgot. It wasn't only the initial ripping pain as much as complete blockage. --castor oil, magnesium citrate other laxatives--nothing seemed to work very well or for more than a day. Strongly felt whaterver used or was in those shakes--xantham or? caused the problem...I didn't bother to investigate- but swore off all fast food shakes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,084
    • Most Online (within 30 mins)
      7,748

    Toddy
    Newest Member
    Toddy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kathleen JJ
      @cristiana Do you have any suggestions for the gummy bear type of candy? Because that is what is getting passed around. Someone told me "you will have to read all labels thoroughly from now on" but to be honest: I don't know what I'm looking for that should or should not be there? And is the notion "gluten free" trustable? And what about "may contain residual gluten"? Is that safe?
    • Kathleen JJ
      @trents The first thought indeed I had was 'thank god it's not cancer' and of course, there are many, many, many worse diagnoses to get. But this doesn't mean it doesn't come as a shock. I read a lot of the time 'the most common symptoms are...' and then all the things he doesn't have, but never do I find a list of less common symptoms (bar @Wheatwackeds examples - and also non of these are present). I get that severe pains can be a symptom, though the fact that they were omnipresent for 10 days (the exact time his viral values were up) and then 6 weeks later 1 episode also when the family was going through a stomach bug, and since then (nor ever before) none, this logically seems more related to a virus then a symptom of Coeliac, as I'd think this would have to be more present on a regular basis? He always has loved gluten-containing food and at that time was rather having less of it (due to the bug and feeling a little under the weather so eating more yoghurt and the likes then cookies) then more of it. It just doesn't sound all that logical. That being said, I comprehend AND accept that things can not always be logical.   I am trying to understand what you are saying about the tolerance - so as long as he eats gluten, he will have some tolerance to it, but when he stops, and say accidentally ingests something, he will react more as the tolerance is lower? It sounds so illogical (hmm, I see a pattern with myself: really looking for logic in a very illogical condition). And how do you interpret the values very 6 months as you maybe don't know there has been an accidental intake?  Do the values ever go down to zero or is it a question of getting them mainly lower and can they never go down to normal rates?   Normally results of his biopsy are coming in on monday, a little chance they come in today. I've been checking my mail every 10 seconds 🤦🏻‍♀️, this will not be a productive working day I fear 🙄. Then we know the values, but we only have an appointment with the specialized pediatrician and dietitian on December 6d (which in Belgium is a children's holiday comparable to Santa Clause). So we'll get the full "introduction" to the disorder and approach then.   I did talk to the pediatrician and gastrointestinal doctor who did the gastroscopy asking their advice about a plan I was having: to wait to start the diet after the holiday season, we will be abroad in a hotel and to start there in this very new world feels quite stressful for us, but even worse: it will start this journey in a lot of negativity. So our plan is to have a "yummy" party after we return from our trip, during Christmas holidays, inviting some of his friends and buying and making a vast array of gluten free goodies and having them sample and score it. This way it feels like a festive thing AND we can immediately find some things (hopefully) he genuinely like.   Both doctors agreed with this approach as this was truly an accidental find and hadn't we tested his blood 2 weeks ago chances were we'd only have found out in a year or 2 so those extra few weeks will not make the difference.   So now I'm gathering information, talking to people to know where there's good stuff...     But what keeps on being quite ununderstandable to me (I hope this will get explained on December 6th) is how it works. So it's auto-immune, meaning gluten trigger an immune response. Is this a black and white thing? Does 1 grain of wheat trigger the same response as a full bowl of spaghetti? And I mean this on a bowel and organs level, not on a symptoms level, as I gather (is this correct?) that not having any symptoms does not mean that his bowel doesn't get attacked?   I know it all could be worse, I truly do, but to be honest, this is the 4th "anvil falling on my head out of a clear blue sky" diagnosis that I got for one of my most loved people. First my mother was diagnosed with presenile dementia without anyone in the family having it. Then my unborn daughter turned out to have a chromosomal defect that made that she could only live inside of me and died when she was born, then my sister turned out to have (a tested non genetic 🤯) form of presenile dementia as well, with me being her only caretaker as my mother passed away a few years ago and she has no family of her own. And now this. And this is absolutely not only the least of this row but of course not even in the same ball park. But for my resilience and bearing capacity this just feels not little as it affects the life of my little boy...    
    • Wheatwacked
      Could be the Ozampic is masking your expected symptoms.  Like an analgesic masks pain.  Qzampic slows digestion to lower the rate glucose enters the intestine to slow its effect on glucose level.  It seems it might also slow down the gluten entry into the intestine, reducing its trigger level for the antibodies.  Ultimately the damage from gluten is the same, just not as fast so the pain is less.  Sourdough bread has less gluten.  Ozampic siows its entry.
    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
×
×
  • Create New...