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- trents replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?
Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and... -
- cameo674 replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?
I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect. My brother had the youtube video sent to him from 10x health which... -
- cameo674 replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?
Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains. An MD told her to avoid eating fortified grains. My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake... -
- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Colonoscopy with large are of inflammation
Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates... -
- BoiseNic replied to CDW's topic in Dermatitis Herpetiformis12dermatitis herpetiformis outbreaks while on strict gluten-free diet
I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome...
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I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect. My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it. I will have read up on mast cell activation. I do not know anything about it. Tums is my preferred gerd treatment. I always figured a little extra calcium could not hurt me. -
Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains. An MD told her to avoid eating fortified grains. My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020. Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it. Low folate absorption impacts serotonin and dopamine production. My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq. The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels. My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken. Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways. If my brother had not gotten his testing through work, he would never would have started his supplement journey. His testing is what triggered my getting functional health testing that tested similar biomarkers to his. Again the celiac testing was an add-on test that I did off the cuff.
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Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
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I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
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By growlinhard1 · Posted
I'm having all the celiac sx ~ frequent gas and belching, major constipation which is new, feeling extremely full after eating a small amount and then feeling starving again in an hour or two, frequent urination, itchy skin, hair thinning, stomach bloating, unexplained weight loss of 15 pounds to date, major depressive episodes, irritability and feel weak and unwell all the time. I had a colonoscopy in January which showed a large fold with inflammation that was biopsies. The pathology came back as inflammation. At my gastroenterologist colonoscopy follow up visit, it was decided that I needed a egd with biopsy to see if I have ulcers or celiac. I should also say I have had psoriasis since I was 16 and I'm now 63. Since I have been scouring the internet looking for what may be happening, the doctor mentioning celiac and seeing how my symptoms match it so closely I decided to start cutting out gluten. My biopsy is in a month and if not eating gluten makes me start to feel better, why would I want to continue feeling soo terrible by eating it for a diagnosis? How would a diagnosis benefit me enough to prolong my absolute misery for another month? What does everyone think? Am I missing something?
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