Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enlarged tonsil and pain on RHS

Legend13

By Legend13
in Related Issues & Disorders

Recommended Posts

Legend13 Rookie
Legend13
Posted

im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had Open Original Shared Link that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Posterboy Mentor
Posterboy
Posted

Legend13,

See this thread it might help you.

https://www.celiac.com/forums/topic/122593-tonsillectomy/?tab=comments#comment-997652

Here is nice online article overview from medicinenet about the broad spectrum of issues including tonsils that can be effected by an EBV infection.

https://www.medicinenet.com/the_broad_spectrum_of_epstein-barr_virus_disease/views.htm

quoting

The manifestations of primary EBV infection include:

  • Open Original Shared Link (IM): This is the most common medical condition associated with EBV. IM is characterized by extreme Open Original Shared Link, Open Original Shared Link and/or inflamed throat (Open Original Shared Link), enlarged, tender Open Original Shared Link in the neck, and moderate to high Open Original Shared Link. Although the Open Original Shared Link and Open Original Shared Link typically resolve within two weeks, Open Original Shared Link may persist for months after the infection.

 

Taking some Magnesium Glycinate and the Amino Acid Lysine might help fight/keep the EBV outbreak in control.

Here is some research about the connections of EBV and a Magnesum deficiency.

http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/

this information was linked in the above thread but in case you don't have time to read the whole thread this is some quick hit links.

I hope this is helpful but it is not medical advice.

Consider what I say; and the Lord give thee understanding in all things” this included.

2 Timothy 2:7

Posterboy by the grace of God,

 

Posterboy Mentor
Posterboy
Posted
9 hours ago, Legend13 said:

im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had Open Original Shared Link that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

Legend13,

You are right to suspect the PPIs as not helping you or your acid reflux.

Here is a nice overview of GERD from fox news 5+ years ago and taking PPIs might be making your acid reflux not better but worse.

Open Original Shared Link

they say quoting

  "up to one-half of GERD patients don't get complete relief from even the strongest acid-reducing medications, called proton-pump inhibitors (PPIs), and most don't have any evidence of acid erosion when doctors examine their esophagus with an endoscope."

the problem is when we try to stop PPI's we often get hyperacid secretion when stopping making us feel worse than when we started the PPIs.

you probably had a lot of stress before (like your Celiac diagnosis) in the year before your acid reflux/GERD diagnsosis.

quoting the above article again.

"A 2004 study of 60 patients conducted at the University of California, Los Angeles, found that those with severe, sustained stress in the previous six months were more likely to have heartburn symptoms during the next four months."

taking a step down approach of two weeks between "step down" doses and going LOW CARB can help you transition off the PPIs.

PPIs are approved for only a 14 day use and they are being over used today.

And longer term use of PPIs (greater than 6 months) can cause you to have low Magnesium levels. ... according to the simmaron research (linked above) it (Low Magnesium Levels) could be causing the EBV virus to bond to the Magnesium site receptor's in your body causing including and up to tonsillitis when we are low in Magnesium.

here is the FDA warning on PPIs and low magnesium levels.

Open Original Shared Link

Magnesium Citrate or Magnesium Glycinate is a good form to supplement with or if that is not convenient you can use Epsom salts in your bath to help get more magnesium into to your routine.  Any nuts especially Almonds and Cashews are good sources of Magnesium.

you might also read this thread about extreme bloat common with acid reflux.

https://www.celiac.com/forums/topic/122303-extreme-bloat-help/

I think it could help you.  It helped brandi1969.

I hope it is helpful but it is not medical advice.

good luck on your continued journey.

As always “Consider what I say; and the Lord give thee understanding in all things” this included.

2 Timothy 2:7

Posterboy by the grace of God,

 

Pogo Newbie
Pogo
Posted

Just a suggestion:  I've had a pain like that under my jaw and down my shoulder on the left side.  It was constant.  I went to an ear, nose and throat specialist and found it was a blocked saliva gland!  The dr. was able to remove it manually. It was a tiny crystal-like block that had plugged the gland.  The dr. told me to suck on a lemon or drink plain lemon juice to keep it unplugged and to drink more water.  I thought perhaps my experience might help you.

knitty kitty Grand Master
knitty kitty
Posted

Have you been checked for Eosinophilic esophagus?  Eosinophils are a type of white blood cells that infiltrate and cause inflammation.  They can infiltrate the throat and cause inflammation there. Eosinophilic esophagus happens with Celiac Disease sometimes.  Sometimes it's due to food allergies like wheat, dairy, and soy.  

Open Original Shared Link

There's a link at the bottom of the page to treatment for EOE.  

Hope this helps!

 

On 11/9/2018 at 2:30 PM, Legend13 said:

im wondering if anyone can shed any light on this. I have been back and forward to the doctor with what appears to be a slightly enlarged tonsil and a pain that radiates down my neck and under my jaw, all just on the right side. excercise seems to aggrevate it but apart from that it remains pretty much constant. i wouldnt say its sore, but im just aware of this constant discomfort in my tonsil. its been going on now for around 12 weeks.

bit of background info that may or may not be related. i was diagnosed with celiac disease earlier this year but have been gluten-free for 7 months now. i have also been back and forth to a GI doctor as i have mildly inflamed bowels that are causing pain.

could the tonsil problem be related to my bowel problems or does it sound like something else altogether?

i have had Open Original Shared Link that all came back fine, and my doc has currently got me on a PPI incase it is being caused by reflux but its not making any difference to be honest.

any help would be greatfully recieved.

 

Legend13 Rookie
Legend13
Posted
  • Author

Many thanks to everyone for there responses. It’s certainly given me a few things to speak to my ENT about tomorrow. Will let u know how I get on. 

Paula Wallah Newbie
Paula Wallah
Posted

I have been having a very similar issue for some time now.  Unfortunately, no diagnosis yet.  I will look forward to learning what you learn from your ENT appointment today.  (And I have also made note of the salivary issue mentioned...the docs have not checked for that and along with the inflamed tonsil, I have swelling under my tongue in the floor of my house, very sensitive ear and slight swelling under my ear).  Thanks, y'all.  I have all but given up on finding help for this issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Legend13 Rookie
Legend13
Posted
  • Author

I met with my ENT yesterday who reckons Iv got a chronic case of tonsillitis. I’m not overly convinced myself, but he’s given me a 4 week course of antibiotics to see if it clears things up. 

Paula Wallah Newbie
Paula Wallah
Posted

Legend13, I hope your ENT is correct with diagnosis and that you find healing.  Do let us know how you get along.  And thank you for reporting back after your ENT visit.  Be well.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,947
    • Most Online (within 30 mins)
      7,748
    cookiesyum
    Newest Member
    cookiesyum
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • pdm1981
      Glutening symptom? oily stool

      By pdm1981 · Posted

      It's also a symptom of EPI.
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      Feel Good gluten free chicken soup dumplings

      By Visionaerie · Posted

      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Glutening symptom? oily stool

      By ognam · Posted

      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
×
×
  • Create New...