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Newly Celiac. Foods to help during withdrawal from gluten


CharlesBronson

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CharlesBronson Enthusiast

Hello All,

I posted here earlier this year in the Pre-Celiac forum as I was being tested for celiacs.

I got the results back from my biopsy this week and I'm celiac. My villa are pretty much non-existant, as I've been a big gluten/wheat eater my whole life (I'm 35). 

I've been gluten free for about a week and I'm exhausted, cranky, irritable and my mood is quite low. I'm wondering what foods could help combat some of these symptoms. Should I be eating more food overall to help balance my mood. More sugar and starch? 

Any advice would be great. Thank you.

 

 


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Elliottohonedhome Rookie

Hey Charles, sorry about your diagnoses and damaged villi.

 

I'd suggest going back to basics and going easy on the starch and sugars, especially processed. I went back to rice and lots of veges, carrots, broccoli and cauliflower to name a few (cook until really soft.) And chicken roasted in organic sea salt.

 

Lots of good fats, too - organic coconut oil - I use Vita Coco and the fat from your roasted meats. Olive oil, too if you're a fan 

 

So yeah rice, the veg you prefer and see tasty roasted meat it makes a lovely filling meal.

 

What's your favourite foods so people can come along and suggest alternatives?

All the best.

 

Elliott.

tessa25 Rising Star

Initially it's good to stick with meat, veggies, potatoes, eggs, stews, etc. But if you just have to eat something different here's my list of good tasting gluten-free equivalents.

 

Note: insert the words "gluten free" in every item mentioned as some of the companies also sell non gluten free stuff. It's tedious to write that phrase all the time.

Get a chest freezer to store all of your frozen gluten-free foods. Makes things easier.

Bread:
  - Canyon bakehouse without question is the most realistic tasting bread. They have white, fake rye, multigrain and bagels (the bagels are fantastic).
  - Schar baguettes are decent.
  - Katz makes an English muffin that, after toasted, reminds me of a real one provided it has stuff on it like butter. I think that's the brand.
  - Etalia has a good boule if you prefer artisan bread. (Colorado)

Pizza crust:
    - Schar makes a good thick and chewy crust.
    - Udis makes a good thin and crispy crust.
    - Etalia makes a great New York crust. (Colorado)

Pasta:
    - Barilla makes the best pasta. Tastes like normal pasta. Spaghetti cooks the best.
    
Flour:
    - Pamelas all-purpose flour is great for making gravy and batter for fried foods.

Cereal:
    - Envirokidz Gorilla Munch cereal is a yummy equivalent to corn Pops.

Cookies:
    - Goodie Girl mint slims - fantastic girl scout mint cookie equivalent
    - Glutino and MiDel make a decent Oreo equivalent.
    - Kinnikinnik makes a good nilla wafer
    - Mi Del makes a great ginger snap.

Cake:
    - Betty Crocker chocolate cake mix tastes the same, but you have to get the cooking time exactly right. It is a very small window of time. Too long and it's too dry.
    - Udi's blueberry muffins after 8 seconds in the microwave are addicting
    - Katz chocolate donut holes are fabulous

Frozen meals:
    - Udi's Chicken Florentine is addictive and Broccoli Kale lasagna is a good white lasagna.

 

If you are willing to cook from scratch it's fairly easy to make a good gluten free equivalent to your favorite foods.

 

  • 2 weeks later...
CharlesBronson Enthusiast

Thank you for the replies Elliott and Tessa. Sorry for late reply. Holidays have been busy.

One more question: Seeing as I'm just beginning my healing process, is it best to avoid the gluten-free processed foods like cookies, granola bars, pretzels, etc? You know the ones that are all over the grocery stores, like Glutino. Although, I do enjoy their bread once a day. I have a feeling the cookies, bars etc are making me feel awful too.

I'm a good two weeks removed from eating gluten so the worst of the withdrawal is over, but seeing as it was the Holidays, I was eating a lot of the processed gluten-free snacks mentioned above and feel awful. 

 

Thanks!

Ennis-TX Grand Master
1 hour ago, CharlesBronson said:

Thank you for the replies Elliott and Tessa. Sorry for late reply. Holidays have been busy.

One more question: Seeing as I'm just beginning my healing process, is it best to avoid the gluten-free processed foods like cookies, granola bars, pretzels, etc? You know the ones that are all over the grocery stores, like Glutino. Although, I do enjoy their bread once a day. I have a feeling the cookies, bars etc are making me feel awful too.

I'm a good two weeks removed from eating gluten so the worst of the withdrawal is over, but seeing as it was the Holidays, I was eating a lot of the processed gluten-free snacks mentioned above and feel awful. 

 

Thanks!

Yeah we normally suggest a whole foods only diet for a few months then trying processed foods. Many reasons for this, Some celiacs have others issues, some react to oats the same way, some have other food intolerance issues and a whole foods diet with a food diary will find them. Many celiac have intestinal damage, the enzymes to break down dairy come from the villi...which are often damaged or destroyed so lactose intolerance is common.
Also consider most gluten free subs...are just starch and sugar laden carb bombs with little nutritional value and not enriched. You can not live off them, and they will make your more prone to getting SIBO, Candida, and Diabetes. Treat them as a "Treat" and not a food.

I often suggest a grain free approach with a paleo diet base, whole foods, and avoiding starches and sugars for a bit til you heal. Focusing on real and nutrient dense foods like soups, stew, egg dishes, chili, baked/grilled meats, roast, baked sweet potatoes, etc. Go easy on spices try using more herbs, also, consider you gut to be raw and "carpet burned" you do not want spices or alcohol on it til it heals or you will find it irritated.

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    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
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