Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alcohol on the Fasano Diet?

disgruntledceliac

Recommended Posts

disgruntledceliac Explorer
disgruntledceliac
Posted

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
7 minutes ago, disgruntledceliac said:

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?

Does the diet list any alcohol? No.  So there is no safe alcohol if you are doing the Fasano elimination diet.  Its done for people who don't respond to the regular gluten-free diet.  So unhealthy/irritating items like alcohol would not be allowed.  

Now, your doctor should be monitoring your repsonse to this diet.  Usually it isn't necessary for more than 3-6 months

 

disgruntledceliac Explorer
disgruntledceliac
Posted
  • Author

Thanks for the reply kareng.

Great point. I guess I'm wondering if my stomach healed -- as per the goals of the Fasano diet -- what would be some drinks that would be relatively safe to try? As I mentioned above, I like cider, gin and vodka (to varying degrees) and wouldn't mind giving some of these a try.

 

kareng Grand Master
kareng
Posted
52 minutes ago, disgruntledceliac said:

Thanks for the reply kareng.

Great point. I guess I'm wondering if my stomach healed -- as per the goals of the Fasano diet -- what would be some drinks that would be relatively safe to try? As I mentioned above, I like cider, gin and vodka (to varying degrees) and wouldn't mind giving some of these a try.

 

I think you should complete your Elimination diet, be re-tested to see if it worked, before you go off the diet.  Obviously, your refractory Celiac is why you went on it.  If it didn't work, you will need to talk to your doctor about where you go next.  

 

PS.  It is your small intestines healing that is the focus of the Fasano diet.   Or maybe "stomach" is just the easy word to use? I do tend to say my "stomach" is upset but mean intestines. ?

cyclinglady Grand Master
cyclinglady
Posted

I am a little confused.  So you went on the Fasano diet with your doctor’s approval to see if you could finally rid yourself of DH, right?  It appears that the diet has been successful because your DH has resolved and now you want to experiment with alcohol.  Chances are your gut has healed too.  Usually DH appears much faster.   I listen to those with DH because if they get glutened they can actually SEE it!   Do you have any good guesses as to how gluten was getting into your diet before the Fasano diet?  Or did you determine you were super sensitive and that 20 ppm was too much for you?  Your response could help fellow DH sufferers.  

Back to alcohol.  I personally would choose a potato vodka and squeeze fresh juice (e.g. an orange) into it.  I did the Fasano diet too and it may or may not have healed my gut.  No way to know for sure.  It did not help my actual stomach because a repeat endoscopy revealed a healed small intestine but autoimmune gastritis.  On the Fasano diet, I did consume coffee with cream.  I did not drink Gatorade.  I think the PED GIs allowed that because kids will drink it and it helps with electrolytes which can be good for active celiacs.  The diet did let me debunk that old silly internet coffee cross reactor myth for sure!!!

 

apprehensiveengineer Community Regular
apprehensiveengineer
Posted
On 12/20/2018 at 6:40 PM, disgruntledceliac said:

Hi folks,

Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away.

With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet.

How about ciders, gin, and vodka? Are they ever safe? Any tips?

Hey. I feel this post.

I am quite sensitive, and am still on a more-or-less Fasano diet. I did the official version (plus whole bean coffee, plus wine), and eventually started adding in additional gluten-free foods as tolerated.

Personally, I have done ok with almost all wines, gluten-free labelled cider, and gluten-free (not removed!) beers from reputable brands. Some gluten-free beers made by smaller companies that also make "real" beer use shared equipment, and some use oats, so I avoid those. For beer, I stick with Glutenberg (inexpensive, widely available, true taste), but Ghostfish is amazing as well if that's available where you are. No problems with those brands.

I'm still a bit apprehensive about distilled alcohols. I understand (and have performed!) distillation, but know that some brands add flavourings etc. post-distillation, or share equipment/have CC risk. As such, I avoid distilled alcohols unless they are willing to claim that they are gluten-free. This goes for food as well (since distilled alcohol/vinegar can appear in food). To be honest, I don't really like spirits, but I think that Tito's (vodka) would be a good option.

 

Beverage Rising Star
Beverage
Posted

If you do try beer, remember to check that it is beer not made with any gluten ingredients ... i.e., GLUTEN REMOVED IS NOT OK for those with Celiac's.  If you can get it in your area, Ghostfish is my favorite, certified gluten free and even tastes good to those that don't have to be gluten free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


disgruntledceliac Explorer
disgruntledceliac
Posted
  • Author

Thanks all for your responses. I tried some locally produced ciders and came out a-okay. It was nice. I'm not a big drinker, but having my first couple drinks in over six months was a nice change of pace during the holidays.

 

I have some Glutenberg that I was gifted. I've avoided drinking it because it is made from millet, which is prohibited while on the Fasano diet. I'm generally adhering to the Fasano diet as my base diet for now, while expanding into other foods to see how I react. (So far so good.) After six months of following the Fasano diet should I be okay to try a Glutenberg?

apprehensiveengineer Community Regular
apprehensiveengineer
Posted
1 hour ago, disgruntledceliac said:

Thanks all for your responses. I tried some locally produced ciders and came out a-okay. It was nice. I'm not a big drinker, but having my first couple drinks in over six months was a nice change of pace during the holidays.

 

I have some Glutenberg that I was gifted. I've avoided drinking it because it is made from millet, which is prohibited while on the Fasano diet. I'm generally adhering to the Fasano diet as my base diet for now, while expanding into other foods to see how I react. (So far so good.) After six months of following the Fasano diet should I be okay to try a Glutenberg?

That's good to hear! I have had good luck with small-time local ciders. I always choose ones that say they are gluten-free on the label - most do in Canada these days it seems, which is nice.

I'd say you should feel pretty confident about the Glutenberg. They test their products at an independent lab and don't put it out unless the result is below the detection limit: https://glutenberg.ca/en/faq

I've not had too many problems with adding back in products with non-rice gluten-free grains. For me it seems, the company is more important. For me, a big break-through was realizing that I was probably getting dinged a little from companies that produce gluten-free oats alongside gluten-free products that do not contain oats. I cannot tolerate oats at all, but never thought about this possibility much until I ate a "100% yellow corn chip" that was grey-ish and tasted like oat cakes. The company confirmed that my package had been manufactured in their gluten-free factory, and that they make cereals/granola on the same lines as their corn chips, meaning that my weird chip was likely some oat run leftover. Boo.

Anyways... Glutenberg is one of the few companies I buy grain-based things from. I drink a lot of their beer, too. The other is Kinnikinnick (bread, mixes, baked goods). They make a specific statement that they don't use oats.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,096
    • Most Online (within 30 mins)
      7,748
    heriuspospod
    Newest Member
    heriuspospod
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      Ground meat absolutely full of gluten?

      By Wheatwacked · Posted

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      Your symptoms would not be typical celiac disease symptoms, but still could be related due to possible nutrient deficiencies.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Everyday life

      By Scott Adams · Posted

      This is a difficult situation, and one that your employer may not take seriously. It's possible that they don't have a way to accommodate your issues, but I don't know much about your work environment. Obviously moving you to another work area would be ideal, but would or could they do that? If not, you might be stuck having to wear a K95-type mask at work to avoid breathing any particles, but they still could end up on your skin. Another alternative is searching for a new job.
×
×
  • Create New...