Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Scheduled, been gluten-free


ajburns

Recommended Posts

ajburns Rookie
(edited)

I have my Endoscopy -finally- scheduled for February 5th. Long road with some uninformed doctors. I've been gluten-free/DF for about 3 months. I know I have to do a Gluten challenge. Should I start today? How much Gluten per day Should I be having? And a month is enough for the endoscopy correct? How long do results typically take? My follow up with the doctor is February 20th, not sure it's enough time. And should I stick with eating gluten until this check up?

Also, should I go ahead and eat dairy again as well? I know it's definitely a problem because after accidentally having it recently I had some reactions. Or Should I mostly be concerned with getting the Gluten in my system?

Sorry for so many questions

Thank you!!

Edited by ajburns
To add a couple more questions

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ajburns Rookie

I could try to schedule for 2 weeks from now if that is enough time of eating Gluten if they need more time to process results?

frieze Community Regular

skip the dairy

cyclinglady Grand Master

If you can tough it out, go longer than two weeks as celiac centers differ between 2 and 4 weeks for a challenge.  Select all your favorite gluten-containing old foods.   No sense eating junk!   Eat at least 1 to 2 slices of bread a day (or equivalent).  You can stop eating gluten once you get the test results (in case a mistake is made).  You should be able to at least get something over the phone instead of having to sit for that follow-up appointment.  Discuss this with your doctor as it is up to him how he communicates test results.  Let him know if you become very miserable.  A challenge should be done under a doctor’s care.  

Skip the dairy if you know you will have problems.  Why potentially suffer more?  If you do have celiac disease, you may get dairy back.  I did!  

Good luck!  

ajburns Rookie

Thank you so much! I'll start immediately and try to stay away from the dairy still

QuietRowing Newbie

I'd recommend going as long as you can on the gluten challenge, more than 2 weeks.

I was in a similar situation a few months ago and only did 11 days of a gluten challenge but ended up with a negative endoscopy result. I don't think I had enough gluten for long enough (I had about a slice and a half of bread a day, on average). 

With a family history and a high positive blood test, I'm fairly certain I'm Celiac but now am in the  position of doing an extended gluten challenge to pursue the gold-standard diagnosis. If I could rewind the clock I would have eaten a lot more gluten during the first challenge. I now need to get a second positive blood test (after minimum 4 months of gluten eating) before the GI doctor will see me again for another endoscopy. I'm 2 months into the challenge and not enjoying it.

In terms of results turnaround - they told me the initial results of the endoscopy while I was still in the recovery room, but the results of the biopsy took 8 weeks to get to my family doctor. I'm in Canada though, so I imagine turnaround times could be quite shorter elsewhere.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,605
    • Most Online (within 30 mins)
      7,748

    Horslvr123
    Newest Member
    Horslvr123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I struggled for a long time.   My TTG levels took an age to come down.  I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them.  Removing dairy temporarily from my diet was hugely helpful.  Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten eaters.  Shared grills must be thoroughly cleaned down, too. Our oven packed up a couple of years after I was diagnosed and after that time the top oven became my family's oven, I use the lower oven.  Also our dishwasher - the old one left a residue, and sharing with gluten eaters I think this was an important factor in my slow recovery.  When the dishwasher packed up I started hand washing the plates and making sure they were really rinsed well.  When we got a new one we bought a Miele does the initial rinse with clean water, not yesterday's old water.   I stopped eating out for a while - that's a biggie.  In recent years, in the UK, thanks to Zoe's Law, caterers are having to really tighten up on catering for people with coeliac disease and allergies so I am now finding eating out much less risky.  But I'd advise being very careful with restaurants where flour is thrown about and is airborne (such as pizzerias) or where harried chefs might cook pasta in glutenous water by mistake, as those are the places I've been glutened in the most.
    • kopiq
      also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless.
    • kopiq
      thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken.  i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do?   ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing.  https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu  
    • Scott Adams
      The Trader Joe's GF hamburger buns are the best!
    • StuartJ
      Just ate some for lunch!  A really superb alternative to gluten-free bread and burger buns that all have the taste and consistency of compacted sawdust.  I bought two packs and now I'm down to one remaining muffin so need to get some more; the only thing is it's their own brand - they don't do mail or on line ordering and the nearest TJ's is in Charlottesville (a real nightmare to drive around) an hour away from me over the mountain.  😒
×
×
  • Create New...