Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Scheduled, been gluten-free


ajburns

Recommended Posts

ajburns Rookie

I have my Endoscopy -finally- scheduled for February 5th. Long road with some uninformed doctors. I've been gluten-free/DF for about 3 months. I know I have to do a Gluten challenge. Should I start today? How much Gluten per day Should I be having? And a month is enough for the endoscopy correct? How long do results typically take? My follow up with the doctor is February 20th, not sure it's enough time. And should I stick with eating gluten until this check up?

Also, should I go ahead and eat dairy again as well? I know it's definitely a problem because after accidentally having it recently I had some reactions. Or Should I mostly be concerned with getting the Gluten in my system?

Sorry for so many questions

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ajburns Rookie

I could try to schedule for 2 weeks from now if that is enough time of eating Gluten if they need more time to process results?

frieze Community Regular

skip the dairy

cyclinglady Grand Master

If you can tough it out, go longer than two weeks as celiac centers differ between 2 and 4 weeks for a challenge.  Select all your favorite gluten-containing old foods.   No sense eating junk!   Eat at least 1 to 2 slices of bread a day (or equivalent).  You can stop eating gluten once you get the test results (in case a mistake is made).  You should be able to at least get something over the phone instead of having to sit for that follow-up appointment.  Discuss this with your doctor as it is up to him how he communicates test results.  Let him know if you become very miserable.  A challenge should be done under a doctor’s care.  

Skip the dairy if you know you will have problems.  Why potentially suffer more?  If you do have celiac disease, you may get dairy back.  I did!  

Good luck!  

ajburns Rookie

Thank you so much! I'll start immediately and try to stay away from the dairy still

QuietRowing Newbie

I'd recommend going as long as you can on the gluten challenge, more than 2 weeks.

I was in a similar situation a few months ago and only did 11 days of a gluten challenge but ended up with a negative endoscopy result. I don't think I had enough gluten for long enough (I had about a slice and a half of bread a day, on average). 

With a family history and a high positive blood test, I'm fairly certain I'm Celiac but now am in the  position of doing an extended gluten challenge to pursue the gold-standard diagnosis. If I could rewind the clock I would have eaten a lot more gluten during the first challenge. I now need to get a second positive blood test (after minimum 4 months of gluten eating) before the GI doctor will see me again for another endoscopy. I'm 2 months into the challenge and not enjoying it.

In terms of results turnaround - they told me the initial results of the endoscopy while I was still in the recovery room, but the results of the biopsy took 8 weeks to get to my family doctor. I'm in Canada though, so I imagine turnaround times could be quite shorter elsewhere.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,310
    • Most Online (within 30 mins)
      7,748

    kalfonso
    Newest Member
    kalfonso
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
    • Deanne jones
      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
    • knitty kitty
      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
×
×
  • Create New...