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Need help understanding my results...

bfernando
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bfernando Newbie
bfernando
Posted

I’ve been feeling really sick the past 2 or 3 months and i’m 19 years. Some days are great, others are terrible. But it’s affected on me going out with friends because i never know if i will feel bad. The only pain i have is in my lower gut underneath my belly button, and if it happens, it’s always after i eat and i feel really sick. Just want to lay in bed curled in a ball. I had blood work done and it says my “Tissue Transglutaminase AB, IGA” is 45. I need help understanding this, i’ve been on a gluten free diet for 4 days now. Thanks for reading.

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tessa25 Rising Star
tessa25
Posted

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

frieze Community Regular
frieze
Posted

and you need to be eating gluten to get the scope

OregonDonna Rookie
OregonDonna
Posted

Belly pain can be caused by a plethora of things. You did not mention a visit to your doctor? I'd see one before self diagnosing. Could be something easily fixed like gallbladder issues.

bfernando Newbie
bfernando
Posted
  • Author

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

bfernando Newbie
bfernando
Posted
  • Author
6 hours ago, tessa25 said:

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

5 hours ago, frieze said:

and you need to be eating gluten to get the scope

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

cyclinglady Grand Master
cyclinglady
Posted
(edited)

Normally, celiac disease is diagnosed by a Gastroenterologist. That is because while the tests that measure antibodies used to help determine celiac disease could be false or may be elevated in other diseases like Crohn’s.  So, a Gastroenterologist will actually take a look inside your small intestine and take tissue samples for a pathologist to review.  

Some people do not have access to a Gastroenterologist for a variety of reasons (no insurance, etc.).  In that case, a doctor might run a genetic test and run the rest of the celiac panel which includes the EMA and DGP, and then place you on a gluten free diet to see of your symptoms resolve.

If you do have celiac disease you MUST remain gluten free for life.  Of course, you can choose to consume gluten, but you will be sick.  You might develop more autoimmune diseases like lupus or type 1 diabetes.  

Healing can take months to a year.  Everyone is different. There is a steep learning curve to the gluten-free diet and mistakes are often made and delays healing.

You might want to get a second opinion.  Get your lab test results and take them with you. 

Edited by cyclinglady
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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