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Need help understanding my results...

bfernando
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bfernando Newbie
bfernando
Posted

I’ve been feeling really sick the past 2 or 3 months and i’m 19 years. Some days are great, others are terrible. But it’s affected on me going out with friends because i never know if i will feel bad. The only pain i have is in my lower gut underneath my belly button, and if it happens, it’s always after i eat and i feel really sick. Just want to lay in bed curled in a ball. I had blood work done and it says my “Tissue Transglutaminase AB, IGA” is 45. I need help understanding this, i’ve been on a gluten free diet for 4 days now. Thanks for reading.

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tessa25 Rising Star
tessa25
Posted

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

frieze Community Regular
frieze
Posted

and you need to be eating gluten to get the scope

OregonDonna Rookie
OregonDonna
Posted

Belly pain can be caused by a plethora of things. You did not mention a visit to your doctor? I'd see one before self diagnosing. Could be something easily fixed like gallbladder issues.

bfernando Newbie
bfernando
Posted
  • Author

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

bfernando Newbie
bfernando
Posted
  • Author
6 hours ago, tessa25 said:

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

5 hours ago, frieze said:

and you need to be eating gluten to get the scope

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

cyclinglady Grand Master
cyclinglady
Posted
(edited)

Normally, celiac disease is diagnosed by a Gastroenterologist. That is because while the tests that measure antibodies used to help determine celiac disease could be false or may be elevated in other diseases like Crohn’s.  So, a Gastroenterologist will actually take a look inside your small intestine and take tissue samples for a pathologist to review.  

Some people do not have access to a Gastroenterologist for a variety of reasons (no insurance, etc.).  In that case, a doctor might run a genetic test and run the rest of the celiac panel which includes the EMA and DGP, and then place you on a gluten free diet to see of your symptoms resolve.

If you do have celiac disease you MUST remain gluten free for life.  Of course, you can choose to consume gluten, but you will be sick.  You might develop more autoimmune diseases like lupus or type 1 diabetes.  

Healing can take months to a year.  Everyone is different. There is a steep learning curve to the gluten-free diet and mistakes are often made and delays healing.

You might want to get a second opinion.  Get your lab test results and take them with you. 

Edited by cyclinglady
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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
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