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Need help understanding my results...

bfernando
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bfernando Newbie
bfernando
Posted

I’ve been feeling really sick the past 2 or 3 months and i’m 19 years. Some days are great, others are terrible. But it’s affected on me going out with friends because i never know if i will feel bad. The only pain i have is in my lower gut underneath my belly button, and if it happens, it’s always after i eat and i feel really sick. Just want to lay in bed curled in a ball. I had blood work done and it says my “Tissue Transglutaminase AB, IGA” is 45. I need help understanding this, i’ve been on a gluten free diet for 4 days now. Thanks for reading.

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tessa25 Rising Star
tessa25
Posted

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

frieze Community Regular
frieze
Posted

and you need to be eating gluten to get the scope

OregonDonna Rookie
OregonDonna
Posted

Belly pain can be caused by a plethora of things. You did not mention a visit to your doctor? I'd see one before self diagnosing. Could be something easily fixed like gallbladder issues.

bfernando Newbie
bfernando
Posted
  • Author

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

bfernando Newbie
bfernando
Posted
  • Author
6 hours ago, tessa25 said:

If your test results give a range and your number is above the normal range then your next step is to have a gastroenterologist do an endoscopy/biopsies to confirm a celiac diagnosis.

 

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

5 hours ago, frieze said:

and you need to be eating gluten to get the scope

I went to the doctors today and be says i do have celiac disease. How long does it take for a gluten free diet to start improving my symptoms? And does that mean i can’t have ANY gluten again?

cyclinglady Grand Master
cyclinglady
Posted
(edited)

Normally, celiac disease is diagnosed by a Gastroenterologist. That is because while the tests that measure antibodies used to help determine celiac disease could be false or may be elevated in other diseases like Crohn’s.  So, a Gastroenterologist will actually take a look inside your small intestine and take tissue samples for a pathologist to review.  

Some people do not have access to a Gastroenterologist for a variety of reasons (no insurance, etc.).  In that case, a doctor might run a genetic test and run the rest of the celiac panel which includes the EMA and DGP, and then place you on a gluten free diet to see of your symptoms resolve.

If you do have celiac disease you MUST remain gluten free for life.  Of course, you can choose to consume gluten, but you will be sick.  You might develop more autoimmune diseases like lupus or type 1 diabetes.  

Healing can take months to a year.  Everyone is different. There is a steep learning curve to the gluten-free diet and mistakes are often made and delays healing.

You might want to get a second opinion.  Get your lab test results and take them with you. 

Edited by cyclinglady
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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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