Soy and celiac question

[disgruntledceliac]

Prior to going on the Fasano diet my celiac wasn't improving, and I would have nasty reactions to foods including dairy and soy. I did six months on the Fasano diet and can now feel great and can handle dairy. Is it likely that I can now handle foods that contain (or are cross-contaminated with) soy, or should I continue to steer clear of it?

[GFinDC]

Lactose intolerance is fairly common in untreated celiac disease.  So it is reasonable to expect it may improve after being gluten-free awhile.  Soy intolerance is a different thing and there isn't any reason to expect it to go away.  But then again it might.  Soy is a top 8 allergen in the USA.

[Ennis-TX]

2 hours ago, disgruntledceliac said:

Prior to going on the Fasano diet my celiac wasn't improving, and I would have nasty reactions to foods including dairy and soy. I did six months on the Fasano diet and can now feel great and can handle dairy. Is it likely that I can now handle foods that contain (or are cross-contaminated with) soy, or should I continue to steer clear of it?

Lactose intolerance, the enzymes to break down lactose are made introduced by our villi. Celiac destroys these and with healing the ability to digest it sometimes comes back (not for me, I also later got a whey allergy). Soy....as mentioned not so much, I myself still can not tolerate soy proteins...oddly soy lectin no longer bothers me.

[apprehensiveengineer]

I think that soy "intolerance" is a bit of an urban legend/very much overstated for people with celiac disease. Soy is often cross-contamined with gluten (like other legumes), or implemented in a manner that does contain gluten (soy sauce), which I think leads to many people coming to the incorrect conclusion that they have a soy intolerance. If you're buying soy products processed in Asia that are not labelled gluten-free (a good chunk of such products), then I'd hazard that your problem is gluten, not soy.

I am allergic to soy. My mouth and throat get itchy nearly immediately upon ingestion of soy, as well as hives. My reaction is mostly limited to this, and I have never had a problem with "may contain soy" products. I also eat products containing soy lecithin and soybean oil, as those do not contain any soy protein (theoretically).

[Awol cast iron stomach]

All excellent advice above. I had 13 intolerances after my diagnosis. I am down to 2 milk and corn including derivatives of. Personally for me I could not handle many of my 13 foods or I found I had a threshold limit and limited inflammatory foods until 26 months post. The corn and corn derivatives appear to be here to stay for me as they rip my GI up and trigger inflammation and joint/muscle aches. I tried some sheep cheese once and a gluten-free pizza with milk based cheese on it and found it passed the joint and muscle test, but did seemed to trigger constipation. Milk stays off the list. 

It was a shock after diagnosis to have so may issues. I appeared to initially be reactive to every food I ate within a 2 day period when my Dr was checking me out. As she told me what my body was reacting to I responded "wow you just told me every food item I ate within the past 2 day period!" My GI tract was apparently annihilated and every thing felt and appeared to confirm it just dumped into my blood stream.

As others say if it is a true food intolerance it is here to stay. If it is the result of a damaged gut dumping things into the blood stream in time you maybe able to eat it as it heals. In my opinion the 2-3 year mark will let you know for sure if it is here to stay, if you are unsure.

 

Good luck

[disgruntledceliac]

Thanks all for sharing your experiences. I'll keep it in mind moving forward.