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- Parkrunner replied to scanlanmd's topic in Sports and Fitness7Rigorous exercise + inflammation/fatigue?
I was a moderately serious runner, doing regular intense workouts. I also had undiagnosed celiac for close to 40 years. Some of my non-intestinal symptoms were insomnia, hot flashes, night sweats, muscle cramps, muscle twitching, and cardiac arrhythmia (PVCs). I strongly suspect that the running gave me short term electrolyte imbalance and the celiac gave... -
- Parkrunner replied to Pinkdoglady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
6 week challenge; How much gluten?
You didn't say how long you have to wait for your biopsy. I had to wait 5 months. And then it was another month for my intestines to heal and for me to have the benefit of being gluten free. Everyone is different. I know one guy that told me it took 2 years of gluten-free to be free of symptoms. You have a choice here, wait for the biopsy and endure... -
- trents replied to Pinkdoglady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26 week challenge; How much gluten?
Recently updated "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least 2 weeks leading up to the test day. That's for those who have been gluten free for a significant time and are seeking an official diagnosis through testing. Your case is different... -
- Pinkdoglady posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26 week challenge; How much gluten?
Hi everyone, I’m new to the forum. I had a positive blood test for celiac disease two weeks ago and I’m waiting for a biopsy date. The Dr advised me to eat gluten until then but how much gluten should I eat ? Or rather, how little can I get away with eating? I’m on the verge of not being able to go to work -
- trents replied to PixieDixie's topic in Introduce Yourself / Share Stuff1
New Here…
Welcome to the forum, @PixieDixie! 1. Celiac disease is an autoimmune disorder. The body mistakenly identifies gluten as a threat and sends attacker cells to the lining of the small bowel when gluten is ingested, causing inflammation which, over time, begins to damage the "villous lining" of the small bowel. The villous lining of the small bowel is made...
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By Parkrunner · Posted
I was a moderately serious runner, doing regular intense workouts. I also had undiagnosed celiac for close to 40 years. Some of my non-intestinal symptoms were insomnia, hot flashes, night sweats, muscle cramps, muscle twitching, and cardiac arrhythmia (PVCs). I strongly suspect that the running gave me short term electrolyte imbalance and the celiac gave me a long term electrolyte imbalance. Taking a break from running for a couple of weeks did not cause these symptoms to go away. Stopping running for 6 months did. This was my unique case, yours is different. My celiac wasn't discovered until I had Osteoporosis and broken bones. -
By Parkrunner · Posted
You didn't say how long you have to wait for your biopsy. I had to wait 5 months. And then it was another month for my intestines to heal and for me to have the benefit of being gluten free. Everyone is different. I know one guy that told me it took 2 years of gluten-free to be free of symptoms. You have a choice here, wait for the biopsy and endure your symptoms, or simply accept that the positive blood test is most likely, but not necessarily 100%, correct and go gluten-free now. In retrospect I wish I had not waited for the biopsy, or found another doctor that could perform it sooner. Read as much scientific based data as you can digest. There are also a number of good videos on the internet on the subject. -
Recently updated "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least 2 weeks leading up to the test day. That's for those who have been gluten free for a significant time and are seeking an official diagnosis through testing. Your case is different in that you have not been eating gluten free and have already tested positive in the blood antibody test phase of diagnosis. I would say, just keep eating like you have been and don't cut back. If it turns out that the endoscopy/biopsy date isn't until far out into the future, you have the option of temporarily going gluten free and then starting backup in time for the procedure. But would give it at least four weeks to be sure.
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By Pinkdoglady · Posted
Hi everyone, I’m new to the forum. I had a positive blood test for celiac disease two weeks ago and I’m waiting for a biopsy date. The Dr advised me to eat gluten until then but how much gluten should I eat ? Or rather, how little can I get away with eating? I’m on the verge of not being able to go to work -
Welcome to the forum, @PixieDixie! 1. Celiac disease is an autoimmune disorder. The body mistakenly identifies gluten as a threat and sends attacker cells to the lining of the small bowel when gluten is ingested, causing inflammation which, over time, begins to damage the "villous lining" of the small bowel. The villous lining of the small bowel is made up of millions millions of tiny finger-like projections which make up a huge nutrient absorbing surface to absorb the vitamins and minerals found in the food we eat. With the increasing damage caused by this ongoing inflammation, these millions and millions of tiny finger-like projections get worn down to nubbins and the absorbing efficiency of the villous lining becomes less and less. Over a significant period of time, this can lead to medical problems that are tied to nutrient deficiencies. NCGS (or "gluten sensitivity") does not produce an autoimmune reaction and so does not damage the villous lining of the small bowel. The exact immune system engagement represented by NCGS is poorly understood at this point in time. Some experts feel that NCGS can be a precursor to the development of celiac disease and it is 10x more common than celiac disease. The GI distress symptoms of NCGS are similar to that of celiac disease, however, and there is not testing available yet for NCGS. There is testing available for celiac disease, on the other hand, and it is often necessary to get formal testing done for celiac disease to either confirm it or rule it out in order to arrive at an official diagnosis of NCGS. 2. Celiac disease testing is invalidated once a person has embarked on a gluten free diet. One must have been eating significant quantities of gluten (equivalent of 4-6 slices of wheat bread daily) for weeks or months leading up to the day of testing in order for the testing to yield reliable results. 3. The rash associated with celiac disease is known as dermatitis herpetiformis. Celiac disease is the only known cause for dermatitis herpetiformis and if you can get a dermatologist to diagnose the rash as dermatitis herpetiformis then you can be assured you have celiac disease. The rash is characterized by having pustules in the bumps. dermatitis herpetiformis must be biopsied during an active breakout and this can make it difficult to get diagnosed sense it is usually difficult to get a dermatology appointment on short notice. And it is also true that not all dermatologists know how to properly biopsy for dermatitis herpetiformis. One mistake they often make is taking the sample from the bump whereas it needs to be taken from an area next to a bump. Most people with dermatitis herpetiformis also have GI involvement but they may not discern it due to lack of symptoms. They are what we call "silent celiacs" and this is much more common than you might think. A small percentage of those with dermatitis herpetiformis have only an epidermal expression of celiac disease and have no GI involvement.
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