Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need To Re-introduce Gluten For An Endoscopy When My Iga, Igg Are Still Abnornal?

nathela

Recommended Posts

nathela Rookie
nathela
Posted

:blink: I feel awful! My GI tells me that I HAVE to eat gluten again if I want to have a clear understanding of my biopsy. I started to be on gluten-free diet three months ago. My igg, iga are still abnormal: 16 and 8.

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

What do we look for? A confirmation of celiac disease? Or, a history? I am really confused..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

I wouldn't do it. Some people require up to 18 months for their blood tests to return to normal.

richard

darlindeb25 Collaborator
darlindeb25
Posted

Absolutely--I agree with Richard. There is no reason for you to return to gluten for a test. Why do doctors want to torture us? I have never had an official diagnosis and I know I absolutely cannot ever have gluten again. The doctor I am seeing now tells me he would never ask me to do a gluten challenge, he says without a test he is 99% sure I am celiac. Truthfully, it wouldn't matter to me if he believed me or not--it's great that he does! I am going to him for my neuropathy now, which is a result of being a celiac for so long and not knowing it. I am celiac and always will be, that I cant change--now I also have neuropathy, which there is no cure for either. The doc told me that all they can do for neuropathy is keep us as comfortable as they possibly can. Don't do the gluten challenge--tell your doctor that enough is enough. Deb

par18 Apprentice
par18
Posted
:blink: I feel awful! My GI tells me that I HAVE to eat gluten again if I want to have a clear understanding of my biopsy. I started to be on gluten-free diet three months ago. My igg, iga are still abnormal: 16 and 8.

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

What do we look for? A confirmation of celiac disease? Or, a history? I am really confused..

How do you feel since going gluten-free? If ok then what is the reason to get an "official" diagnosis? Does GI need a new car?

Nevadan Contributor
Nevadan
Posted
How do you feel since going gluten-free? If ok then what is the reason to get an "official" diagnosis? Does GI need a new car?

Right on!!

George

VydorScope Proficient
VydorScope
Posted

There are insurance reasons for geting the postive bisopy. So the GI might have a vaild reason. That being said, I would tell the GI that I do no want an Endoscope, that postive blood work was enough for me, and I will try the diet for a while and see how it goes.

But thats just me. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hey Judy--love your GI, too! That was great :D

As Deb said, enough is enough.

KaitiUSA Enthusiast
KaitiUSA
Posted

I would not do that. First, it can take time for your blood to go back to normal. Second, have you been 100% gluten free including products such as makeup. I would re-evaluate everything that you are using and consuming to make sure nothing is sneaking in. I have some lists if you would like them...not sure if you have them or not but they help for a general guideline.

nathela Rookie
nathela
Posted
  • Author
Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

I asked my GI about the gluten challange and he said, AND I QUOTE HIM, " Judy, If I lit a candle and said put your finger in the flame to see if you get burned" would you have to do it to prove it will burn you???

Love my GI....Loved the post...'does your GI need a new car:)

Judy in Philly

:lol: That's funny. Do I need to have a biopsy, though? A way to know that my small intestine is ok? What do you think?

I would not do that. First, it can take time for your blood to go back to normal. Second, have you been 100% gluten free including products such as makeup. I would re-evaluate everything that you are using and consuming to make sure nothing is sneaking in. I have some lists if you would like them...not sure if you have them or not but they help for a general guideline.

:lol: Thank you I would love to have the list ... I have hard time to find a body lotion, and sf30 sunscreen, and make-up... Nathela.

Guest nini
Guest nini
Posted

my thought would be that since you have positive bloodwork, you do not need the biopsy. What you do need to do is make sure that you are 100% gluten free, no accidents, no cross contamination, NO CHEATING, including personal care products like hair, makeup, and skin... yes it matters. I did not have the biopsy. I will not EVER have the biopsy. I will not ever subject my child to the biopsy. I KNOW beyond a shadow of a doubt that gluten is our enemy. Gluten very nearly killed me. My positive bloodwork was enough for me. My follow up bloodwork had all returned to "normal" so by that standard someone might say I do not have Celiac. NO,maybe not right now, but I AM gluten intolerant and if I injest even one molecule of gluten it makes me ill. (I do know that I do have Celiac beyond a shadow of a doubt and so does my daughter)... Just ask her when she turns down birthday cake at her cousins birthday party... "I AM DISEASED" she says... LOL...

VydorScope Proficient
VydorScope
Posted

The only reason to get the bisopy if you have postive blood work is for insurance reasons. Some Insurance companies will not cover vit tests, bone scans, presciption vits, and etc with out hte biopsy. But remeber to do the biospy you have to do MORE damage to your system and set back your recovery...

Guest nini
Guest nini
Posted

on the dark side of the insurance argument, with a positive biopsy, if you go to change insurance companies, you stand a very good chance of them DENYING coverage because of it. (I didn't even have the biopsy and yet with the positive dx of Celiac on my medical charts, I had at least 4 different insurance companies refuse to cover me)

VydorScope Proficient
VydorScope
Posted
on the dark side of the insurance argument, with a positive biopsy, if you go to change insurance companies, you stand a very good chance of them DENYING coverage because of it. (I didn't even have the biopsy and yet with the positive dx of Celiac on my medical charts, I had at least 4 different insurance companies refuse to cover me)

Yea theres that to consider too. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,579
    • Most Online (within 30 mins)
      7,748
    Megsy61
    Newest Member
    Megsy61
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Positive TTG antibody and negative EMA antibody

      By knitty kitty · Posted

      You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing.   Some people unconsciously reduce the amount of gluten in their diet because the feel unwell.  Three grams of gluten per day is sufficient to produce symptoms.  Only at ten grams or more is the immune system provoked to raise the antibody production high enough so that the antibodies leave the digestive tract and enter the blood stream where they can be measured.   Read the comments below the article...  
    • Wamedh Taj-Aldeen
      Positive TTG antibody and negative EMA antibody

      By Wamedh Taj-Aldeen · Posted

      Thanks for your response and thoughts. Total IgA is normal. HLA DQ2/DQ8 came as heterozygous and the interpretation of the lab that the risk of coeliac disease is mild to moderate. Thyroid function test is normal. I agree that the best way is to repeat tTG antibodies in 6 months time as the result was not massively high.  
    • knitty kitty
      Positive TTG antibody and negative EMA antibody

      By knitty kitty · Posted

      Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid?   You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo.  TTg IgA can be high in both hyperthyroidism and hypothyroidism.  tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism.   Thanks for visiting!  Keep us posted!
    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back.  The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction.   Keep us posted on your progress!
    • knitty kitty
      Weakly positive DGP IgA

      By knitty kitty · Posted

      Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already.  Deficiencies in iron and thiamine affect your body's ability to make antibodies.  Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene,  I'm suspecting you do have Celiac disease.   Can you consult a gastroenterologist?  Or ask your doctor to do so.   Gluten Sensitivity can be a precursor of Celiac disease in people with Celiac genes.  Since you've already got symptoms of Celiac disease and evidence malabsorption, an endoscopy with biopsies would be beneficial.   It's can be so frustrating getting a diagnosis because doctors are not familiar with Celiac disease.  Sending you encouragement! Keep us posted on your progress!  
×
×
  • Create New...