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Others in the workplace and food

Ennis-TX

By Ennis-TX
in Coping with Celiac Disease

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Ennis-TX Grand Master
Ennis-TX
Posted

Now I have 3 major things that are dangerous to me, Gluten, Corn, and Whey from dairy. I can deal with being around my other issues but these I can not.
Now keeping gluten out was pretty much eliminated awhile back after the burrito incident. IE I cater lunch every day and provide snacks to everyone.
BUT the sorry SOB keeps sneaking in corn syrup sodas or milk. I stopped going over there and helping my dad at his shop for fear of these. BUT I snapped yesterday and confronted him. I told him I would buy him cane sugar cokes and for him to stop risking my life bringing that s$#& in there and if he does it again I will have him sent home without pay. He flipped and started making excuses about drinking it for months and me not getting sick.....yeah I do not come over here. I told him the skin contact issue is just a rash, no big deal. BUT IF he opens one of those and it "sprits" and aerosols that corn syrup next to me and I inhale it then I get anaphylaxis. Then he starts up again, I shut him up by asking if he will pay the $1200-1500 for the ambulance ride when my throat swells up....then I go on to every detail of how you start getting the urge to swallow but can't then you have issues taking breath as it feels like your tongue is swelling up and going down your own throat. Your ability to take breath diminishes and gets harder. He then started offering to not drink anymore in the building and for me not to bother...I told him straight that was BS and he would give in and go drink them since he was addicted and he said yes.....so I bought him 2 cases for cane sugar soda and put in the fridge for him.....TIME will tell. 
Dear god between idiots like him and just finishing watching 12 seasons of SVU I am seriously losing hope in humanity. Don't even get me started on the inability to get people to donate to starting my food truck or helping when I was in need of medical services.

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Scott Adams Grand Master
Scott Adams
Posted

Can I assume that you keep an Epipen handy? Also, try to take it more easy on people who don't understand...especially if it's your dad. Acceptance of these issues is often a problem, even among close family members. This article we published in 2005 may be old, but still relevant:

https://www.celiac.com/celiac-disease/kids-and-celiac-disease/dealing-with-denial-by-danna-korn-r1646/

Ennis-TX Grand Master
Ennis-TX
Posted
  • Author
42 minutes ago, Scott Adams said:

Can I assume that you keep an Epipen handy? Also, try to take it more easy on people who don't understand...especially if it's your dad. Acceptance of these issues is often a problem, even among close family members. This article we published in 2005 may be old, but still relevant:

https://www.celiac.com/celiac-disease/kids-and-celiac-disease/dealing-with-denial-by-danna-korn-r1646/

Generic one I got for free, never had to use one.....all 4 reactions I have had before getting it I got through with liquid antihistamines and chewing pills. An odd method that requires a sound mind and control but doing so and letting it slowly work down my throat has opened it back up.  But I always keep shot bottles of liquid antihistamines and a pocket carrier with pills.  What really sucks is even after my throat feels weird, like hours of numb and pain and stays restricted.

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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