Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How long for DH to appear after a glutening


Penny80

Recommended Posts

Penny80 Rookie

Hi there ? 

every time I’ve been accidentally  glutened (always through cross contamination I never eat anything with gluten in it) I get DH on my elbows and sides and feet and fingers. Always very mildly now, but it’s always the key to knowing when I’ve accidentally  ingested some gluten. I was just wondering how long after gluten it usually taks your DH to appear?? I find it hard to work out what meal it was that I had cross contamination (so I can try and work out how it happened and what to avoid next time.) I have a feeling if maybe only an hour after ingesting gluten for me but is that too early? Could it be the meal the night before? 

Thanks in advance ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I can only speak from my own experience but when first diagnosed I would break out in new lesions within an hour or two. I would also get a feeling like I was falling even if I wasn't. Let me know I was in for a real rough time for a while. However as time went on, and I suspect the antibodies left my skin, the time between a glutening and a breakout became longer and the lesions less severe. I have now been gluten free since the early 2000's and just get a tiny blister or two.

DH can make us even more sensitive to tiny amounts of CC than folks without DH. The more whole unprocessed foods you can eat the better. Watch out for gluten in topicals while you have active lesions and if at all possible don't eat out until you are very well healed. 

Metoo Enthusiast

I have a full breakout within 24 hours.

  • 1 month later...
Iiv Explorer
On 3/3/2019 at 12:11 PM, ravenwoodglass said:

 However as time went on, and I suspect the antibodies left my skin, the time between a glutening and a breakout became longer and the lesions less severe. 

This sounds promising!  

Iiv Explorer

Hi 

I am only diagnosed with atopic dermatitis. 

But my atopic dermatitis begins to break out within an hour after digesting gluten, only with itching. After another hour or two, it becomes visible to others, coz it's like I've dipped my finger in acid. Elbow as well, leaving skinless open wounds. Then it goes through different stages, with zits, skin falling off, papercuts, broken blood vessels due to all dried out etc. Quite fascinating, but painful.

If only eating derivatives it takes a couple of days with a tiny amount a couple of times. And it only affects the places where I usually have open wounds.

Some rashes caused by gluten can show signs within a couple of hours in some people, so DH should too. 

Awol cast iron stomach Experienced

I am interesting as I out of desperation went gluten-free 4 years before my diagnosis ( long story) . I had skin manifestations, with many other symptoms ataxia, gi bloat pain etc. I had not joined the forums so I did not realize how strict I would need to be. I now know.

Before diagnosis my symptoms of gi bloat occurred within 45 minutes of eating cc food. Skin issues occured a few hours later.

Now diagnosed and being super strict learning on the forum just how strict I have to be ( my most recent cc) gave me bloat within 2 hours and skin lesions within 8-9 hours. Luckily it was confined to 2 areas. My gi stays off damaged for weeks even if DH patch settles my deficiencies and microflora are off weeks.

  ( I was gluten challenged in 2016. )

As Ravenswoodglass says stay whole foods. I don't eat out. My last cc was from a gluten-free labeled product ( one piece)  it was labeled gluten free but not  labeled certified gluten free.

I make most foods from scratch and do whole foods. That food had a decent reputation so I thought I could try it. My immune system said NO! ?

 

Iiv Explorer
1 hour ago, Awol cast iron stomach said:

Luckily it was confined to 2 areas. My gi stays off damaged for weeks even if DH patch settles my deficiencies and microflora are off weeks.

That food had a decent reputation so I thought I could try it. My immune system said NO! ?

 

Hi Awol

Would you mind telling a bit more about this? 

I too have issues of long time recovery I recently Learned, I was Hoping it was due to not being gluten-free long enough. 11 days, and still have wee bit of rashes and weariness, and stomach is on part time duty. But this did not happen from derivatives. :(

 

take care


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,381
    • Most Online (within 30 mins)
      7,748

    carter1cathy
    Newest Member
    carter1cathy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ALBANICKAP
      Hi, I'm very frustrated with my problems related to the above.  I find Gluten to be easier than fructose, at times even lactose b/c I love cheese.  I do buy lactose free dairy products but still have problems.  Have recently been adding more bread to bulk up my stools.  Any suggestions for products that might help? Thx. AP  
    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
    • Scott Adams
      Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results.       
    • Scott Adams
      It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
×
×
  • Create New...