Mouth Sores & Fever Blisters - And Antibiotics too

[celiac85364]

Just diagnosed with celiac last week.  For months now I have had a constant stream of canker sores in my mouth and fever blisters on my lips.   This and stomach cramps and diarrhea seems to have popped up immediately after taking a 7-day regimen of strong antibiotics that made me so sick that I went to emergency room.  I’ve been very ill every since. I immediately started gluten free diet and *thought* I was being very careful, and had just barely started feeling less cramping/diarrhea when I ate rice (MISTAKE!), then again once when I had some milk - so apparently I’m sensitive to rice and lactose intolerant too.  Is it common for celiac patients to not be able to eat anything with rice in it??  I read (after the fact) that lactose intolerance is not unusual, but no rice products???

Also, in the past I have taken L-Lysine at the first sign of a fever blister but recently no amount of L - Lysine seems to make a difference!   Do others also have this problem or could it be just a coincidence and unrelated?  

Also, is it common that a person taking strong antibiotics suddenly has these intense increase of symptoms?  Are the two possibly related?  I did take prebiotics and probiotics while on the antibiotic....I never finished the 10-day RX of antibiotic because I just got too sick.  Is this typical?

Thanks in advance. So glad I found this website. I’m afraid I have too many questions!! ?

[daisy153]

Hi! I too was just recently diagnosed w celiac. I have had mouth ulcers, food sensitivities and stomach issues as long as I can remember. Have has mouth ulcers by the dozen for months w no relief.except prednisine. Specialists, dentists, etc. All typical testing came up normal. Finally a trip to the dentist last week brought some relief w an explanation. My hygeniest took one look in my mouth & said do I have celiac? Suggested what I suffer from is oral lichen planus an autoimmune disease that effects the mouth & goes hand & hand w celiac! Off to the MD to get tested & yup I have celiac. The elimination of gluten should eventually solve the ulcer situation. Hope this info helps....

[celiac-father]

4 hours ago, celiac85364 said:

Just diagnosed with celiac last week.  For months now I have had a constant stream of canker sores in my mouth and fever blisters on my lips.   This and stomach cramps and diarrhea seems to have popped up immediately after taking a 7-day regimen of strong antibiotics that made me so sick that I went to emergency room.  I’ve been very ill every since. I immediately started gluten free diet and *thought* I was being very careful, and had just barely started feeling less cramping/diarrhea when I ate rice (MISTAKE!), then again once when I had some milk - so apparently I’m sensitive to rice and lactose intolerant too.  Is it common for celiac patients to not be able to eat anything with rice in it??  I read (after the fact) that lactose intolerance is not unusual, but no rice products???

Also, in the past I have taken L-Lysine at the first sign of a fever blister but recently no amount of L - Lysine seems to make a difference!   Do others also have this problem or could it be just a coincidence and unrelated?  

Also, is it common that a person taking strong antibiotics suddenly has these intense increase of symptoms?  Are the two possibly related?  I did take prebiotics and probiotics while on the antibiotic....I never finished the 10-day RX of antibiotic because I just got too sick.  Is this typical?

Thanks in advance. So glad I found this website. I’m afraid I have too many questions!! ?

Regarding the canker sores and fever blisters. This happens usually due to malnutrition and is common with undiagnosed Celiacs. Specifically 

• A diet lacking in vitamin B-12, zinc, folate (folic acid) or iron.

• Canker sores may also occur because of certain conditions and diseases, such as:

• Celiac disease, a serious intestinal disorder caused by a sensitivity to gluten, a protein found in most grains

Since it is a disease of malabsorption you will find that many if not all symptoms you feel can be directly related to specific vitamin and mineral deficiencies. Often I search on google for "what deficiency causes conditions like ie; ringing in the ears, dry eyes, muscle twitches, canker sores, glossitis, irregular fingernails, rashes, loss of feeling in hands and feet". The list goes on forever. Try this and educate yourself regarding deficiencies, worth its weight in gold toward understanding the impact of malnutrition.

You don't mention if the antibiotics were prescribed as a method to treat the canker sores but I am assuming that is what happened, please feel free to let us know if that is a poor assumption.

Regarding the rice, I personally have never heard of rice causing an issue but you must realize that a lot depends on how the rice was prepared and any possibility of cross contamination.

Now that you have been diagnosed as Celiac it will require that you do a lot of research regarding the Gluten Free diet and some of the downfalls due to cross contamination, preparation and general practice of eating safely. 

So glad you found this site because it is littered with Celiacs who care and are more than willing to help you and others. I have been gluten-free for 11 years and never eat in restaurants, just my preference because of the bout I had for most of my life. 

It is common for certain antibiotics to cause diarrhea even for non-celiacs but more importantly once you maintain a 100% gluten-free diet and supplement with vitamins and minerals the canker sores should fade away.

It can take weeks to months to start feeling normal again, as for me, in two weeks I felt better stomach wise and months for the neurological issue to wane. 

For the record, you did not ask too many questions. The people here care and will help when they can.

 

[Ennis-TX]

14 hours ago, celiac85364 said:

Just diagnosed with celiac last week.  For months now I have had a constant stream of canker sores in my mouth and fever blisters on my lips.   This and stomach cramps and diarrhea seems to have popped up immediately after taking a 7-day regimen of strong antibiotics that made me so sick that I went to emergency room.  I’ve been very ill every since. I immediately started gluten free diet and *thought* I was being very careful, and had just barely started feeling less cramping/diarrhea when I ate rice (MISTAKE!), then again once when I had some milk - so apparently I’m sensitive to rice and lactose intolerant too.  Is it common for celiac patients to not be able to eat anything with rice in it??  I read (after the fact) that lactose intolerance is not unusual, but no rice products???

Also, in the past I have taken L-Lysine at the first sign of a fever blister but recently no amount of L - Lysine seems to make a difference!   Do others also have this problem or could it be just a coincidence and unrelated?  

Also, is it common that a person taking strong antibiotics suddenly has these intense increase of symptoms?  Are the two possibly related?  I did take prebiotics and probiotics while on the antibiotic....I never finished the 10-day RX of antibiotic because I just got too sick.  Is this typical?

Thanks in advance. So glad I found this website. I’m afraid I have too many questions!! ?

Read the Newbie 101 section for some pointers, you will have to clean out contaminated condiment jars, and spices, toss scratched pots, wooden utensils, colanders, cutting boards etc.  https://www.celiac.com/forums/topic/91878-newbie-info-101/

Rice, you need to spread it out on some white paper when dry and check it all for foreign grains, then wash it several times (look up video for washing rice) it is not uncommon for various other things to get mixed init. Also, those recently diagnosed can sometimes have SIBO, or Candida that set in with a damaged gut and a high carb/starch diet can cause gas and bloat. THOUGH getting a food intolerance or sensitivity with this disease is very common (heck you can see my list in my signature). Of course, if you cooked the rice in a scratched pan that had gluten cooked in it before that could be your source also, or used a contaminated colander.
 
I had to further adapt my diet to low carb, grain free, with a paleo base. Many find a paleo AIP diet to help at first. Go with whole foods, simple dishes eggs, meats, leafy green veggies, soups, stews, sheet pan meals, and crockpot meals. You can easily prevent CC and have a quick clean up with these by using foil, crockpot liners, and even going cheap with it by using Nordicware Microwave cooking dishes and splatter covers to avoid buying all new stuff for a while.

[Posterboy]

celiac85364,

This research might help  you.

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0062850

This research will let you check to see if H.Pylori or EBV is causing your trouble.

It explains how to check for both....

EBV as a cause of mouth ulcers is now a newly diagnoseable medical entity/condition.

See this article about it.

http://www.bloodjournal.org/content/131/17/1993?sso-checked=true

try taking some magnesium glycinate along with your lysine it (Magnesium) has been shown to be helpful in those with an EBV infection.

see this research about this topic.

http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/

Here is a nice overview article on EBV aka Mono from the Dr.Oz show.

https://www.doctoroz.com/article/secret-life-epstein-barr-virus

EBV was also recently (approx. a year ago) linked to Celiac disease.

See this thread about it.

I hope this is helpful but it is not medical advice.

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

[celiac85364]

THANK YOU ALL so verrry much!!!  So glad I found this site!!