Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diama

Recommended Posts

Diama Newbie

I’ve been reading some studies on use of CBd oil for celiac disease which sound supportive for using it. A friend is using 5 drops every night and day and she swears her celiac symptoms are gone.  Anyone else finding the same?

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
1 hour ago, Diama said:

I’ve been reading some studies on use of CBd oil for celiac disease which sound supportive for using it. A friend is using 5 drops every night and day and she swears her celiac symptoms are gone.  Anyone else finding the same?

 

 

 

 

I never tried it myself.  But celiac is not cureable so not sure what the point is?   Celiac symptoms are widely varied and there are treatments for some of them.

cyclinglady Grand Master

Hi!  

The only treatment for celiac disease is a strict gluten free diet.  That said, not every celiac wants to adhere to the diet.  My PCP told me that she has three celiac patients (I do have a GI as well).  Two of them refuse to give up gluten.  She has over 2,000 patients and she knows these two celiacs well because they are always sick.  

I have allergies to so many medications — even acetaminophen and ibuprofen.  It would be nice to have something that would take the edge off pain.  If it is pharmaceutical grade, it might be useful to get you through a gluten exposure.  

I work hard to avoid gluten.  My last repeat endoscopy revealed healthy villi.  But a few gluten hits may have been the cause an additional autoimmune disorder I have developed since my celiac disease diagnosis.   When my celiac disease is activated, it sets off my other AI disorders.  Not fun.

Report back and let us know if it helps you.  

Ennis-TX Grand Master

I use it for anxiety and depression...I was on it when I was last exposed and it did not stop the vomiting, D, and ataxia. While it can be useful for anxiety, depression, nervous issues, and pain, it does not slow down, or stop the damage gluten does to a person with celiac. You might be numbing yourself from it but your immune system will still be destroying your insides. 

notme Experienced

it smoothes the angry gut but it will not stop damage if one consumes gluten.  celiac doesn't 'go' - but if it makes the symptoms manageable, sounds good to me.  the 'regular' kind of cannabis makes me have an appetite, therefore very useful as i am underweight.  if it's helping your friend to be comfortable, gut-wise, that's wonderful.  different things work for different celiacs.  but she must continue eating gluten free.  she can be damaging things without knowing it if she doesn't.

i am truly glad the restrictions on cannabis are loosening so the medical community can see what this herb can and cannot do.  i watched a video of a guy with parkinson's was spasming so bad he could hardly walk and within minutes of consuming cbd oil, he was moving around very noticably improved.  pretty cool.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
×
×
  • Create New...