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News: Is gluten-free food actually gluten free?


Scott Adams

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Scott Adams Grand Master

Washington: A recent study revealed that even tiny amounts of gluten in foods are troublesome for people with celiac disease, and restaurants may be ...

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    • trents
      Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well.  If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
    • Scott Adams
      Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Connie Smitj
      I was diagnosed 5 years ago. I also have celiac rash which is no longer an issue thanks to maintenance dose of dapsone.  I ate spinach with lemon juice  and had terrible pain after. My mother whom I suspect had undiagnosed celiac disease developed a duodenal ulcer that turned into a sarcoma late in life . My celiac clinic suggests seeing my family doctor.
    • trents
      Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic acid from fortified foods or supplements is absorbed, while only 50% of natural folate from foods is used by your body. After folic acid is absorbed into your bloodstream, it’s broken down into smaller compounds by your liver. However, the liver is only able to process a certain amount of folic acid at a time. As a result, consuming too much folic acid from fortified foods and supplements can cause unmetabolized folic acid (UMFA) to accumulate in your blood. This doesn’t happen when you eat high folate foods. From: https://www.healthline.com/nutrition/folic-acid-side-effects#How-excess-folic-acid-develops I would think your folate levels will normalize over time. But I'm curious. Were you tested for vitamin/mineral deficiencies before being given supplements or was it just assumed you would have them after finding out you have celiac disease? Your acid reflux issues could certainly be a holdover from the week of supplementation now discontinued. Another possibility is "gluten withdrawal" which some experience in the first few weeks after going gluten free. Gluten has addictive qualities similar to opiates. Another possibility is certain polysaccharides commonly found in gluten free prepackaged facsimile foods. They use these polysaccharides (e.g., xanthan gum) as texturing agents to approximate what gluten does in wheat products and they are hard to digest. Let me caution you against long term proton pump inhibitor (PPI) therapy for the acid reflux. That simply raises gut PH (lowers acidity) which interferes with the absorption of vitamins and minerals from our diets. Way too often, docs will prescribe PPIs as a band aid for reflux and leave their patients on them forever. It's much better to use over the counter calcium-based remedies like TUMS to give you coverage as needed rather than treat reflux systemically with acid blockers.
    • Tyoung
      I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of my levels are now normal, but folate level is >24ng/mL. Has anyone else had similar results? If so were you able to figure out why or how to normalize them? I also have been having constant acid reflux since about two weeks into going gluten free (no acid reflux history prior to) that we are trying to get to the bottom of with no answers. Could that be related? Thank you!! Also wanted to not that I am not eating any gluten free processed food.
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