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Insight into refractory celiac disease

trents

By trents
in Related Issues & Disorders

Recommended Posts

trents Grand Master
trents
Posted

https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--113788/?utm_campaign=Research%20Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72057667&_hsenc=p2ANqtz-8yrOYJPTT1rDzm2fM-8c6LNDfji6dWJBX6wgzPHwxkG5NAnnnX8dB-mRkjQxwnBpdS6lACeNHo_2tE-jEk-0ThBe1yEw&_hsmi=72057667

This study provides information that may be relevant to understanding RCD - why some don't experience remission despite eating gluten free. New gene studies show there may be a genetic basis to this phenomenon.

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cyclinglady Grand Master
cyclinglady
Posted

Thanks for sharing!  ?

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  • Recent Activity

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      - Jodi Lee K replied to Jodi Lee K's topic in Related Issues & Disorders
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      Worsening oral health with celiac

      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself. No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion. I don’t take any ...
    2. trents
      - trents replied to Jodi Lee K's topic in Related Issues & Disorders
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      Worsening oral health with celiac

      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think...
    3. Jodi Lee K
      - Jodi Lee K replied to Jodi Lee K's topic in Related Issues & Disorders
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      Worsening oral health with celiac

      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated t...
    4. trents
      - trents replied to Jodi Lee K's topic in Related Issues & Disorders
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      Worsening oral health with celiac

      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac...
    5. Jodi Lee K
      - Jodi Lee K replied to Jodi Lee K's topic in Related Issues & Disorders
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      Sorry about that! Yes, my diagnosis was 2 years and some change- going on 3 years ago! Yes I have been gluten free the entire time!
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    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      Sorry about that! Yes, my diagnosis was 2 years and some change- going on 3 years ago! Yes I have been gluten free the entire time! 
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