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News: 16 lush gluten-free and dairy-free dishes in Cardiff that ensure you won't miss out

Scott Adams

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Scott Adams Grand Master
Scott Adams
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But having a food intolerance or Coeliac disease can make things even harder and a trip to a restaurant can leave you down in the dumps. Some who ...

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    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      Where I live - Celiac is covered on our taxes and is considered a disability as well. So that’s one reason (not just for me because she is almost 18 but when she is out in the world and starts out, I would hate for her to be broke all the time and barely able to feed herself) but she also has many health issues that could be related to Celiac or maybe something else!! But that has to be taken off the table first. She has been so sick since she was 13/14 - dropping 20lbs because of this issue. Had her doctor thought about it then maybe we would have known but this was never tested. Her family doctor never told us what we needed to do aside from eat gluten. It wasn’t explained to us and maybe I should have came here first but I didn’t realize what it meant. Once I see the results online I will come back here with them. I took a pic of the req but it disappeared completely from my phone. I have a bad memory so I don’t remember what they tested for. thanks again for all advice. it is greatly appreciated  Nadia 😀👋    
    • Richardo
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By Richardo · Posted

      Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for 4 years. with a month break then it would return. 1.I am 100% gluten free (I thought) 2.There is no problems with cross contamination with my diet. 3.My skin rash was confirmed as dermatitis herpetiformis by skin biopsy.  What I did last spring was go 100% grain free. No oats, corn or even rice. My rash was gone in 2 weeks and never came back intil I tested it 6 months later and ate rice 1 time and corn flour 1 time over a 3 day period. My rash started to come back. I quit again and it has been gone since. A huge relief for me. No more pain itching or unsightly rash ANYWHERE. A study was done in the UK showing that practically all grains contain some type of gluten but the rice corn and oats possibilities IS ALMOST NEVER mentioned in celiac related sites. Perhaps going grain free will help you, perhaps not, but I swear it did wonders for me and hopefully will help ypu too. Worth a try!
    • trents
      Not sure if this is Celiac or just a gluten-free intolerance

      By trents · Posted

      Not necessarily. She may have NCGS and in that case doing a perfect gluten challenge would still yield negative antibody test scores. Don't beat yourself up over this.
    • trents
      Not sure if this is Celiac or just a gluten-free intolerance

      By trents · Posted

      @MomofGF, I would refer you to the link from Scott's post above about Celiac Disease Blood Antibody tests as far as what labs we are looking for. That should narrow in down in that we are not looking for a complete CBC/CMP report. I would especially like to know from her labs if she is IGA deficient because that would make increase the likelihood of negative IGA antibody test scores. But I do agree with Scott in questioning the need for pursuing another gluten challenge for the purpose of more accurate testing. I think you already know your daughter must avoid gluten, whether because she has celiac disease on NCGS. At the end of the day, the antidote is still the same.
    • Scott Adams
      Positive iGg antibodies but negative biopsy

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.  tTG-IgG (tissue transglutaminase IgG) Blood Test for Celiac Disease: Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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