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Celiac and IBS-D


NoGlutensToday

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NoGlutensToday Enthusiast

I had a late diagnosis of my celiac and it took a few years to get under control. (Thank you Fasano diet!) However, I kept having food issues ... it turns out I have IBS-D.

I'm having a difficult time dealing with the IBS. My food choices were already limited, but now a lot of them (including fruit and vegetables) are off limits.

Any suggestions for good resources or places to discuss having celiac AND IBS at the same time?

For example, I buy a brand of potato chips that is strictly gluten free, and have tried a flavour that only includes potatoes, canola oil, and salt. I get gassy and diarrhea from this. I read somewhere that something about the fat content, etc can make chips difficult to digest, leading to gas and bloating. Is there any precaution I can take to reduce this issue?


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cyclinglady Grand Master

How were you diagnosed with IBS?  Were things things like SIBO, Crohn’s and Ulcerative Colitis were ruled out via testing and scopes?  Personally I balk at the IBS diagnosis.  I call it “I Be Stumped”.  I got that diagnosis years ago when I had GI issues.  Later those resolved (but never my anemia).  Celiac disease is like a chameleon — symptoms can change.  

Consider the Autoimmune Paleo Diet (or KETO) for a few weeks.  Then you introduce foods back into your diet slowly.  Keep a journal.  Avoid processed foods during this time, even certified because you could be reacting (intolerance) to any of the ingredients.  

Check out member EnnisinTX.  With diet, he has healed from celiac disease and his UC is in remission.  Everyone is different, though, so you have to find your own way.  

NoGlutensToday Enthusiast
21 hours ago, cyclinglady said:

How were you diagnosed with IBS?  Were things things like SIBO, Crohn’s and Ulcerative Colitis were ruled out via testing and scopes?  Personally I balk at the IBS diagnosis.  I call it “I Be Stumped”.  I got that diagnosis years ago when I had GI issues.  Later those resolved (but never my anemia).  Celiac disease is like a chameleon — symptoms can change.  

Consider the Autoimmune Paleo Diet (or KETO) for a few weeks.  Then you introduce foods back into your diet slowly.  Keep a journal.  Avoid processed foods during this time, even certified because you could be reacting (intolerance) to any of the ingredients.  

Check out member EnnisinTX.  With diet, he has healed from celiac disease and his UC is in remission.  Everyone is different, though, so you have to find your own way.  

Hi cyclinglady,

Thanks for the reply. I'm scheduled for the scope and we've been doing some blood work. I'll look further into what you've said here.

One of the reasons we believe I have IBS right now is that after going onto the FODMAPS diet the diarrhea and gas pains generally went away. There has been some learning curve and adjustments made, but in general I feel much better. It has meant giving up a lot of things that I enjoyed though.

Like you pointed out, IBS seems to be a catch-all term. So I'll keep looking into this and see if we can rule out the other things you mentioned. Thanks for sharing your insight!

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      Thank you, Trents- are there any safe alternatives?
    • Scott Adams
      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
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