Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawal starting after 2 week?

long
 Share

Recommended Posts

long Newbie
long
Posted

Hi, I'm new here. 

A little history about myself. For over a year I have not felt good. I feel nauseated most of the time. I have throat irritation off and on. Sinus pains off and on. Light headed once in awhile, not often. I've had tingling sensations in my hands and feet. I feel tired most of the time. The best I feel is when I lay down to go to sleep. It seems laying down makes me feel better. 

I had gallstones so I got my gallbladder removed. That did nothing for me. I had an EGD done and a biopsy to check for celiac. Everything came back OK. I went on a gluten free diet on April 24th. The 2 weeks following I felt better than I had in a year. Not perfect but a lot better. Then I started to feel nauseated again. At times I have this warm feeling in my throat and my throat feels irritated. The last few days I have felt very nauseated. 

Is it possible to not have withdrawal symptoms for 2 weeks and then get them? Since my biopsy came back negative for celiac I truly to not knew if my issues are gluten related or not but it looked really promising when I felt so good after removing it from my diet. I thought I had finally figured out why I felt so bad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anonymousplease Apprentice
anonymousplease
Posted

In my experiences the blood test and biopsy are unreliable. It is possible, since you are very new to this, that everything you were eating was not gluten free. It takes a long time to understand where gluten can be hidden in products, and even certified gluten free labeling can be inaccurate. I would give it a try again, stick with it for at least a month. Do your own cooking with real ingredients at home if you have the time and can afford to. Do not eat any processed foods. Then see how you feel. Easier said than done, I know but it could really help you determine what is making you feel so ill. It sounds like you're having acid reflux or gerd, and that could be why your throat is burning or irritated. Try sleeping with your head and torso propped up a bit, use a couple pillows. Also try not going to sleep or allowing your body to be horizontal after eating for at least 1 hour. I experience acid reflux symptoms after getting "glutened" so I know they go hand in hand. Also gastroparesis is common in gluten sensitive people. Might want to look into that as well. Best of luck - and if you need any advice on brands or products to avoid or to eat don't hesitate to reach out. Been doing this for 10+ years. 

cyclinglady Grand Master
cyclinglady
Posted

I agree that you are probably getting gluten into your diet (if gluten is your issue) as most people who are new to the gluten-free diet make mistakes.  There is a steep learning curve.  Hang in there!  

Beverage Rising Star
Beverage
Posted

Also read about the connection between TOO LITTLE stomach acid and GERD / acid reflux. Good articles out there by Dr Jonathan Wright a leading naturopathic doctor. This was my problem, the fumes from not having enough acid and food rots instead of digests, irritates the sphincter which allows sulphur fumes to work way up esophagus irritating throat sinuses, severe asthma. All gone now.

anonymousplease Apprentice
anonymousplease
Posted
44 minutes ago, Beverage said:

Also read about the connection between TOO LITTLE stomach acid and GERD / acid reflux. Good articles out there by Dr Jonathan Wright a leading naturopathic doctor. This was my problem, the fumes from not having enough acid and food rots instead of digests, irritates the sphincter which allows sulphur fumes to work way up esophagus irritating throat sinuses, severe asthma. All gone now.

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

alavii Newbie
alavii
Posted
1 hour ago, Ali Rae said:

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

I had severe GERD before going gluten free, apple cider vinegar tablets (not the liquid) helped a lot. I am now trying half a lemon squeezed in my water instead. I used to take the apple cider vinegar with every meal, now I just take them at dinner and I can sometimes go a few days without taking them at all. Ive been gluten free for about 5 or 6 months so Im expecting it to only improve as time goes on. 

On 5/14/2019 at 2:42 PM, long said:

Hi, I'm new here. 

A little history about myself. For over a year I have not felt good. I feel nauseated most of the time. I have throat irritation off and on. Sinus pains off and on. Light headed once in awhile, not often. I've had tingling sensations in my hands and feet. I feel tired most of the time. The best I feel is when I lay down to go to sleep. It seems laying down makes me feel better. 

I had gallstones so I got my gallbladder removed. That did nothing for me. I had an EGD done and a biopsy to check for celiac. Everything came back OK. I went on a gluten free diet on April 24th. The 2 weeks following I felt better than I had in a year. Not perfect but a lot better. Then I started to feel nauseated again. At times I have this warm feeling in my throat and my throat feels irritated. The last few days I have felt very nauseated. 

Is it possible to not have withdrawal symptoms for 2 weeks and then get them? Since my biopsy came back negative for celiac I truly to not knew if my issues are gluten related or not but it looked really promising when I felt so good after removing it from my diet. I thought I had finally figured out why I felt so bad.

I had all these same symptoms, b-complex helped with the tingly hands but no longer needed as I am now 100% gluten free. It can take 6-12 months for neurological symptoms to resolve after going strictly gluten free, Ive been at it for about 6 months and my neurological problems (tingly hands, feeling light headed) are almost completely gone. Digestive problems (throat and stomach issues) resolved much quicker but still took a few months. I found going completely grain free and sticking with meats and veggies helped the most. 

cyclinglady Grand Master
cyclinglady
Posted

@Ali Rae — 

Consider seeing a GI.  Low stomach acid can be due to naturally aging or an illness.  I have Chronic Autoimmune Gastritis that ebbs and flows.  It is common with autoimmune thyroiditis.  Keeping my celiac disease from flaring does help, but my trigger seems to be stress.  I kept blaming celiac disease, but a repeat endoscopy revealed healed villi, but stomach damage.   Look also at EOE which is an allergy issue.  

You gave some pretty good advice above.  I wish my CAG or Hashimoto’s would be as easy to treat like celiac disease.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Beverage Rising Star
Beverage
Posted
19 hours ago, Ali Rae said:

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

BEFORE I went gluten free, I used to get food stuck all the time. It wouldn't go up, it wouldn't go down. That quickly went away after going gluten-free. 

After a few years of being gluten-free I started getting hoarse throat and severe asthma. Went to specialists, nothing worked for the asthma except predisone / steroids and all those made my blood pressure go through the roof. One doc said I might have SILENT REFLUX, so here, take this prescription for acid suppressor.  Alarm bells went off, as I had read a lot about Celiac's and how we need our vitamins and common deficiencies like D, which NEEDS stomach acid to break it down to absorb it.  Ok, so I hit the books and internet and naturopath looking for more info.  Now I find a connection between LOW stomach acid and acid reflux.  Also a connection between D deficiency low stomach acid.  And acid reflux and asthma and fumes from stomach and asthma. And another connection between D deficiency and vitamin K2, which is in the news a lot now and helps you absorb D.  So I went back to doc, D levels were in range but on the low side but I was taking a lot of D3, so it shouldn't be.  So we added K2, add a little sip of apple cider vinegar just before meals with protein (you don't need much acid for meals without), and managed reducing the stomach acid just before I went to bed with 1 zantac (actually costco version of it as it is marked gluten free but zantac is not marked so) until things started healing. It took a little while but the acid reflux is pretty much gone and the asthma is completely gone.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,201
    • Most Online (within 30 mins)
      7,748
    vickymd
    Newest Member
    vickymd
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      It says normal is less than 5. 
    • RMJ
      Is tTG 9 normal after 4 months gluten-free?

      By RMJ · Posted

      The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect.  For example, you might see <2. What is the normal range for your daughter’s test?  Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from more than 100 to 9 in a few months is great! Good job, mom.
    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
×
×
  • Create New...