Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms 4 years post-diagnosis


von

Recommended Posts

von Apprentice

I was diagnosed celiac in 2015. I didn’t really have major digestive symptoms though I realized after going gluten free how much better I felt without it. My main symptoms were the tiredness and anxiety. Now 4 years on I am having digestive symptoms that are commonly linked with celiac..abdominal cramps, alternating constipation and loose stool, weight loss (I’ve usually been very consistent but I lost 3-4 pounds in the last 2 weeks even when eating more). Has anyone else “relapsed” in symptoms?? I’m somewhat careful in my diet in that I never “cheat” and have gluten but if I were to go out to a restaurant (not often) and was told something is gluten free but not celiac safe due to cross contamination etc. I would still eat it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Those little chances with eating out are like playing russian roulette. Celiac symptoms change over time with many so you probably did not notice it before if it had happened. A single exposure can leave raised antibodies and various symptoms that can last over 6 weeks for some.  Stop eating out, and if you have to go meet others at a restaurant bring your own food if you can or choose a place that is 100% safe and perhaps dedicated gluten-free.
Another thing is to keep track of what you eat, ALWAYS read labels, even on stables. They will sometimes change recipes or go to a shared facility.
Try a whole foods only diet for a few weeks with no eating out or eating processed foods. Make stuff easy to digest. You might need to try a FODMAP diet and start a food diary also. The reason being is many of us with subsequent gluten exposures end up with new food intolerances/sensitivities and have to remove foods from our diet.

Reread the newbie 101 section and see if your overlooking anything.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,198
    • Most Online (within 30 mins)
      7,748

    girlavengedevenfold
    Newest Member
    girlavengedevenfold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JuggaloDad
      My daughter has only been eating gluten free for maybe 2weeks and she is still complaining about her stomach pains and I'm under the impression that that is probably long term sign effects that her body is dealing with.... She went months before the diagnosis and well if she is still doin the eating disorder things then I'm sure that is only prolonging recovery on her guts.... She is very withdrawn with This entire process so I can only go off what I see and am aware of.... She at first refused all gluten free food and is now only eating gluten free but not 3 meals at day or anything... dietary doctor said for he to eat in like snack portions ,which she does but i would like to see her eat more but I'm ok with he atleast tryin.....I know it's a lot on her....but Im hoping maybe within a month she will stop experiencing the pains in stomach ( as long as she isn't sneaking gluten) and she will see the positive side of it all....., I'm also hoping that once we get a diet situated that her depression and etc balances out...... She is anti medication ( which is weird knowing she was self medicating with THC ) , so I'm hoping the nutrition and diet balancing will improve some of her mental pain as well .... I know that at 16 alot of factors come into play but I just want my daughter healthy and successful and this Celiac is nothing to try to overlook... ..
    • Wheatwacked
      You could try CBD for her instead of THC, although I don't think it enhances the appetite the way THC does.  With anorexia appetine is everything.  CBD also attaches to the opiod receptors, without the psychotropic effect so it may help with the withdrawal from gluten. There are lots of vitamin and mineral deficiencies caused by Celiac Disease the the doctors are often not aware of.  Vitamin D, Thiamine (B1). Also B2, B3, B5, choline and Iodine are very common and it takes larger doses at first to replenish than the minimum RDA.  Deficiency in these slows the healing process because they process glucose for energy and iodine is essential for replacing old and defective cells.  Especially when dealing with anorexia.  As her small intestine heals she will begin to absorb most of the other 20 essential vitamins and minerals will be fullfilled though diet.
    • Wheatwacked
      Hello @Farmerswife As @trents said talk to your doctor about changing to a different drug.  I I was given a prescription for Zanax, took one dose and could not sit down for four hours.  Twitching all over, and my eyes felt like they were propped open with toothpicks.  Perhaps the old standard, often refered to as "mother's little helper" Valium would help. Celiac Disease causes deficiency of vitamim D.  Low vitamin D causes depression.  Starting at 1,000 IU a day I increased every few days until at 10,000 IU after 3 days it hit me "This is sunshine in a bottle" and I haven't been depressed since.  That ended a depression that had lasted from when I was 39 until 63 years old.  It was like an unending SAD Seasonal Affective Disorder. Another mineral deficiency that helped me was low dose, 5 mg, Lithium Orotate.  It reduced the anxiety that it had to get done now.  Most of our lithium comes in our drinking water.  With everyone drinking filtered or bottled water, we become deficient.  I think it may explain the explosion of mass shootings.  Between low vitamin D and low lithium intake, we are in a mental meltdown.  
    • trents
      Welcome to the forum, @Farmerswife! You are correct. Cornstarch should not contain gluten unless there is an issue with "cross contamination" with wheat/barley/rye in the processing. Even then, I can't imagine there being enough gluten in those pills/caplets/capsules to cause a reaction. Is this med in pill form, caplet form or capsule form? If capsule, it is possible that the capsule itself is made from wheat.  Another possibility is that your are "cross reacting" to the cornstarch. Maize is a fairly common cross reactor in the celiac community. But even so, there would likely be little maize (the protein component of corn) in the starch. Still another possibility, and the most likely one I'm thinking, is that you are experiencing a side effect of the med itself. It is an SSRI. Have you tried other SSRIs. SSRI's listed side effects include nausea and diarrhea. However, Escitalopram has the reputation of having less of a tendency than other SSRIs to produce these side effects. But you never know. Every individual is different. Have you tried other SSRIs?
    • Farmerswife
      Recently diagnosed with Celiac and trying to figure out all the things. One concern I have is I have taken Escitalopram for years. Insurance does not pay for name brand so that is not an option. Cannot get it compounded at any local pharmacy. The generic brand that I have says it is not gluten free due to it having cornstarch in it. From what I understand cornstarch is gluten free. I do feel "glutened" most of the time when I take this. Anyone else have this issue and did you find a solution? Everything I google says Escitalopram is gluten free, but I don't think this one is. 
×
×
  • Create New...