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Glutened

newmanky

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newmanky Apprentice
newmanky
Posted

I have been gluten free for 2 months due to a celiac diagnosis. I started feeling great and all of my symptoms had gone away.  My first time trying to eat outside of the home we went to a celiac friendly restaurant the said they had a dedicated fryer and prep area.  Well right after eating I felt very flush then exactly 24hrs later extreme D and nausea to the point of dry heaving. Then that night I had a horrible migraine. Day 3 I was still having bathroom trouble and anxiety started to kick in.  I am on day 4 and still have anxiety and emotional outbursts I also am having bathroom trouble sorry for the detail.  Is this normal how long will this last? This is my first time accidentally ingesting it since my diagnosis I dont know what to expect. I was feeling so good.  How is it for everyone else?

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cyclinglady Grand Master
cyclinglady
Posted

I am so sorry that you are sick.  

There is no clear cut answer.  Everyone is different.  For some it is a few days of misery and for others it can last weeks or trigger other autoimmune issues which can compound the symptoms.  Remember, celiac disease is an autoimmune disorder like lupus or rheumatoid arthritis.    Gluten just triggers the response. Once your body starts attacking, it can go on and on long after the gluten has left your body.  

Feel better soon!  

Scott Adams Grand Master
Scott Adams
Posted

This article might help: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/additional-celiac-disease-concerns/ten-things-to-try-if-you-accidentally-eat-gluten-r3416/ 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Hi there,

One incident of cc at a restaurant my left arm went completely numb within 30-45 minutes after consumption.

My symptoms fall like dominos and often in a similar pattern, but it can vary . I avoid gluten, but I also was misdiagnosed for 20 plus years . I have had symptoms my lifetime.

After diagnosis and living more strict I found the following. My ataxia and nerves tell me usually within 45 minutes. My DH patches ( I'm grateful just patches last few cc) flare  within 9 hours. My mood is very low for 2 -4 days.  GI and hair shedding and vitamin absorption is off for weeks. 

I am sorry you are going through this. The set backs are always hard. Especially when we finally know what it is, learn how to live this lifestyle from this forum, and ate due diligent. 

I learned on here that I need to live a very strict gluten-free lifestyle. I don't eat out, focus on whole foods, Paleo recipes. I still occasionally have sadly been exposed and psychologically this is tough because I feel like I failed my body and myself when it happens. One feels vunerable and helpless at times. My husband reminds me it is everywhere and I work really hard at it and sometimes even meticulous/ strict  celiac's  get  glutened. He says it happened you know what to do and what it is. Let your body heal and your bring upset doesn't help.

The lifestyle transition of not eating out unless an exclusive  gluten-free restaurant can be hard to accept at first. Some of us require just that to limit are exposure.

You are doing well. It's a cc set back. Focus on healing not the cc... I know it's hard. I too have been there.

 

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