Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice please...

Johna1

Recommended Posts

Johna1 Rookie
Johna1
Posted

I was diagnosed with celiac disease via blood test and a endoscopy just before Xmas last year and have been on a gluten-free diet for 6 months; not eating out cooking all my own whole foods and fruit and eating no oats or diary.

My bloods show I have now done back to the normal range and I am very strict  with my diet, I have been having problems with my stools for months floating and soft stools after going on a gluten-free diet which now seems to have cleared up the last few weeks.

over the last 4 or 5 day I have been getting a pain under my left ribs, it’s not my ribs though and it’s not there in the Morning but as the day goes on and as I eat it comes on.

its a dull ache that comes for a few seconds then dies off and then comes again for a few second periods of about 30 mins then goes to later come back an hour or two later.

The full pain is about 2 on scale of 10 being the highest, has anyone else had anything like this?

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Sorry, I did not see this post.  

I get stomach discomfort as my stomach empties into my small intestine after a gluten exposure (which triggers a temporary lactose intolerance)  or it can occur when my autoimmune gastritis acts up.  

You might still have same damage despite your antibodies coming down.  The celiac antibodies tests are not really designed for dietary compliance.  However, they are the only non-evasive “tool in the tool box”.  

Look to your diet for a gluten exposure or a new food.  If this fails, see your doctor.  I was sure that I had a gluten exposure a few years back.  My DGP IgA was very elevated.  After a repeat biopsy, I found that I had healed from celiac disease but was diagnosed with autoimmune gastritis.  Not everything is due to active celiac disease.  

I hope this helps.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,094
    • Most Online (within 30 mins)
      7,748
    LKarra
    Newest Member
    LKarra
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Delayed reaction

      By Scott Adams · Posted

      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
    • Scott Adams
      Polly-O all cheese products are gluten free?

      By Scott Adams · Posted

      Good to know, here is their website: https://polly-o.com/
    • Scott Adams
      Enegy level extremely low

      By Scott Adams · Posted

      No cure so far, and a treatment might still be years away. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can food allergies like milk and soy flatten villi?

      By Scott Adams · Posted

      I'm not sure the article would be misleading, as it offers many different avenues to pursue for those with ongoing symptoms. The recommendation to keep a food diary and remove common food intolerance triggers would be a good way to discover issues with casein/milk, especially if you added that back to your diet after a couple of months and your symptoms returned. Many additional food intolerance issues can be permanent in some people. 
    • RDLiberty
      Rice, corn, and other gluten-free grains.

      By RDLiberty · Posted

      Thank you for this! "Medical" advice, and I use the term loosely, is so rampant and so unproven nowadays (I even have relatives that fall down these rabbit holes and are shocked I don't follow.), so I am skeptical of everything. I appreciate the confirmation of my suspicions that this was more hearsay. Onward with my rice and corn. lol
×
×
  • Create New...