Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac? Need your opinion

Woodster991

Recommended Posts

Woodster991 Newbie
Woodster991
Posted

Hi all I haven't been diagnosed or even had the test yet but wanted someone's opinion. I'll try and keep it brief... 4 years ago I was admitted to hospital for lung infection due to working in a kitchen with no extractor canopy. I discharged myself due to them giving me something I had allergic reaction to. From then I got health related anxiety. Anyways after 2 years my health related anxiety started to diminish but I came anxious about everyday things. To this day its under control. The last 6months I've started to notice changes within my bowels and body. I get tingling in right cheek near lips tingling in arm and legs. Pins and needles in feet. Acne on my back.. Diarohea and mucus. Stomach cramps and excess gas.., awful flatulence... Sometimes I just want to lie in bed all day from being tired. Un steady in my feet.  Palpitations   list is endless... I spent the last4 days gluten free and felt so much better but last night I went out and had a fair bit to drink and ordered Chinese not caring about gluten. Today I've been bed ridden all day. No hangover but all the other symptoms have come back twice as bad.. I went to Dr's last week and they reffered me to dietician but they seem to always just thinks its my anxiety and turn a blind eye. Nice to get someone's else's opinions sorry to be long 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
33 minutes ago, Woodster991 said:

Hi all I haven't been diagnosed or even had the test yet but wanted someone's opinion. I'll try and keep it brief... 4 years ago I was admitted to hospital for lung infection due to working in a kitchen with no extractor canopy. I discharged myself due to them giving me something I had allergic reaction to. From then I got health related anxiety. Anyways after 2 years my health related anxiety started to diminish but I came anxious about everyday things. To this day its under control. The last 6months I've started to notice changes within my bowels and body. I get tingling in right cheek near lips tingling in arm and legs. Pins and needles in feet. Acne on my back.. Diarohea and mucus. Stomach cramps and excess gas.., awful flatulence... Sometimes I just want to lie in bed all day from being tired. Un steady in my feet.  Palpitations   list is endless... I spent the last4 days gluten free and felt so much better but last night I went out and had a fair bit to drink and ordered Chinese not caring about gluten. Today I've been bed ridden all day. No hangover but all the other symptoms have come back twice as bad.. I went to Dr's last week and they reffered me to dietician but they seem to always just thinks its my anxiety and turn a blind eye. Nice to get someone's else's opinions sorry to be long 

Sure.  Celiac is possible.  You need to remain on a gluten containing diet to be tested for it.  A dietician can’t test you for it.  Any doctor can order the basic Celiac panel blood tests.  

Woodster991 Newbie
Woodster991
Posted
  • Author

I take it they are symptoms of the disease 

kareng Grand Master
kareng
Posted
2 hours ago, Woodster991 said:

I take it they are symptoms of the disease 

Yes and no.  They can also be from other things.  I hope the doctor tested the basics - thyroid, B12, iron, CBC, etc.  

my point is- a refersl to a dietician, for help with a gluten-free diet, is a bit premature.  Suggesting you go gluten-free  ,before you are tested for Celiac,  is irresponsible of that doctor .  If you have a great response to the gluten-free diet - you have to go back to months  of eating gluten to get a Celiac diagnosis.  Usually, when people feel better - they won’t go back to gluten.  But they don’t know if they have Celiac - so some are not as careful as a Celiac should be.  No official diagnosis means other health care providers and your insurance company won’t do follow up or testing for complications of Celiac ( for example - osteoporosis).   Some hospitals/ nursing homes will not  even try to provide gluten-free food without an official diagnosis . If a Celiac has kids - they need to be tested.  No diagnosis- no automatic testing. It goes on and on

cyclinglady Grand Master
cyclinglady
Posted

Please get tested for celiac disease before going gluten free. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,197
    • Most Online (within 30 mins)
      7,748
    BusterP
    Newest Member
    BusterP
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
    • Wheatwacked
      Muscle Twitching

      By Wheatwacked · Posted

      It took me 2015 to 2021 at 10,000 IU a day to get to 80 ng/ml. In 2019 I was still only 47 ng/ml The highest it has reached is 93.  Tested every 3 months.     While a one time massive dose can be used to quickly raise vitamin D levels, its effects only last three months.  Because vitamin D is stored in fat, an obese person would require more to raise blood level.     Effect of High-Dose Vitamin D Supplementation on Volumetric Bone Density and Bone Strength   The point of higher vitamin D is for the mental health and immune system requirements.  Also this study included supplementing calcium.  "Research suggests that women with low levels of vitamin D have a higher risk of breast cancer. Vitamin D may play a role in controlling normal breast cell growth and may be able to stop breast cancer cells from growing." This information is provided by Breastcancer.org. https://www.breastcancer.org/risk/risk-factors/low-vitamin-d-levels Higher vitamin D levels have been consistently associated with reduced risks of colorectal cancer https://www.cancer.gov/about-cancer/causes-prevention/risk/diet/vitamin-d-fact-sheet  
    • RMJ
      Contaminated cooking oils

      By RMJ · Posted

      You can search here for certified gluten free olive oil GFCO productfinder
×
×
  • Create New...