Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cheilosis (sore Cracked Lips & Corners Of Mouth)


DonnaD

Recommended Posts

DonnaD Apprentice

My daughter has again got Cheilosis, very sore lips and cracks at the corners of her mouth. She had this a lot before Dx and being gluten-free but we only realised it was a coeliac symptom after I started researching celiac disease.

I understand it is caused by riboflavin deficiency, is there anything I can do other than vitamin pills and increasing milk, cheese, yogurt, meat etc in her diet? She has started to grow but She still isn't eating much and would much rather 'pick' than eat a large meal. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

My son gets little sores around the corner of his mouth, and a rash there in general if he gets something he's allergic to. Perhaps she's been glutened? We treat it with vaseline, and it goes away in several days. This may be irrelevant if it's something different than what we have :blink:

Merika

Generic Apprentice

Try giving her a vitamin b complex. i had that problem when I was younger, that cured it for me.

DonnaD Apprentice
Try giving her a vitamin b complex. i had that problem when I was younger, that cured it for me.

Great! I'v given her a fizzy BEROCCA which has a lot of B vits and will buy something more suitable for her age tomorrow.

We have been putting vaseline on but it seems to make it worse. I don't think she has been gluted but I'm still on a learning curve!

Donna

jerseyangel Proficient

Hi Donna--I actually had that cracking at the corners of my mouth and when I was the most sick to my stomach, I would get cracks in my lips. When I learned that those things could be symptoms of Celiac, it made sense because I could never figure out why it happened. Topical things like lip balms etc. never really helped. When I began the gluten-free diet and added vitamin B6 to my multi. vitamin, the lip problems went away.

Jnkmnky Collaborator

Open Original Shared Link

Mouth sores could also be related to this...

My daughter is allergic to vasiline. Her skin peels when she gets it on her.

DonnaD Apprentice
Open Original Shared Link

Mouth sores could also be related to this...

My daughter is allergic to vasiline. Her skin peels when she gets it on her.

It would not surprise me if she is sensitive to something else as well as gluten, I though vasiline was ok, she didn't put any on today and seems better. She also had a mega shot of b-vits today.

I really am starting to think that a total exclusion diet is the way to go for both of us although it will be hard when school starts again.

I have a very old copy of the Cambridge Excusion diet (My mum was on the trial years ago) does anyone have a newer/more user friendly ex diet that takes into account all the other allergens/salicylates/lectins etc? We don't have D so the Specific Carb diet would not seem to be a first choice???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Exclusion diet....is that the British term for elimination diet? www.askdrsear.com has some good tips on how to start an elimination diet.

Merika

DonnaD Apprentice
Exclusion diet....is that the British term for elimination diet? www.askdrsear.com has some good tips on how to start an elimination diet.

Merika

Thanks Merika, there are some good tips on that site. Yes Exclusion Diet is what we tend to call it :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,925
    • Most Online (within 30 mins)
      7,748

    Jackie Taunt
    Newest Member
    Jackie Taunt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • glucel
      I was checking aip diet and discovered that aspirin is prohibited. I definitely can understand why that is but my cardio dr says to stay on it. So aip is done before I even get started.
    • cristiana
      You are more than welcome.  I think there are quite a lot of different types out there, my own nutritionist was a v. highly qualified scientist as well, but at least you can see what qualifications they are which seem to be quite well stated.  I wish you all well on your son's coeliac journey. Cristiana
    • Jordan Carlson
      Thanks for the info @knitty kitty! I really appreciate when people recommend things for me to try, it helps a lot! I will run this stuff by my doctor at my next appointment next week. It is also good to know I am not alone with the continued reactions though. It has been pretty difficult for me and has taken a bit of a toll on my mental health. Trying so hard and dedicating so much time to resolve this issue just to feel like I am running around in circles. But i'm glad to get some insight from people who have experienced the same thing. My family and friends just keep saying i'm crazy andthat i'm a hypochondriac. But the only thing that has gotten me this far in my journey and this close to figuring it out is not listening to them and believing in myself.
    • Dawn R.
      Thank you for responding.  Yes I am.  Infact, sometimes I think it's getting worse. How do you deal with it? I do the best I can but it has taken away my independence.  
    • jadeceoliacuk
      Thank you Cristiana. I will check them out.
×
×
  • Create New...