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- Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Raw Meat Craving
Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take... -
- knitty kitty replied to GardeningForHealth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8210 years later, my celiac is progressing
@GardeningForHealth, How are things going for you? I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/ -
- knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5
Raw Meat Craving
@Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows... -
- Blue Roan replied to Blue Roan's topic in Related Issues & Disorders4Lymph nodes in neck + thyroid issues
@RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey! The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the...- 2
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- Scott Adams replied to Dawn R.'s topic in Related Issues & Disorders1Gluten Ataxia
Welcome to the forum. A search for "ataxia" in our forum shows 718 results: https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic We also have an article category dedicated to summarizing research on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy...
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By Jordan Carlson · Posted
Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point. I will keep you posted! -
By knitty kitty · Posted
@GardeningForHealth, How are things going for you? I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/ -
By knitty kitty · Posted
@Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows up. Thiamine and Niacin make digestive enzymes that will help you digest fats. Thiamine will help improve gastroparesis, anxiety, vertigo, and heart palpitations. Niacin will help Dermatitis Herpetiformis. I get dermatitis herpetiformis blisters on the palms of my hands, too. Really active people (especially if outdoors in hot weather) need additional Thiamine. If a high carbohydrate diet is eaten, additional Thiamine is needed, too. I take Benfotiamine, a form of Thiamine that helps heal the digestive tract. I also supplement magnesium because Thiamine and magnesium work together. Hope you can update us on how you're doing. -
@RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey! The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the higher end of normal, but I will definitely consider the dentist route next time I have my checkup if I'm still noticing issues. Thank you! Scott, thanks for suggesting the ENT. I may consider seeing one if things don't resolve on their own. I am thankfully feeling a bit better now, so hopefully, this is just some sort of residual celiac inflammation like you mentioned, Scott. After all of the numerous tests and clinical visits I've had all year, I'm going to give my body (and wallet) a break for a few months to rest and heal without the stress of doctor appts/labwork and whatnot. Perhaps the health anxiety is also contributing to some of my symptoms. Thank you once again for sharing your stories.
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By Scott Adams · Posted
Welcome to the forum. A search for "ataxia" in our forum shows 718 results: https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic We also have an article category dedicated to summarizing research on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ Do you have a specific question about it?
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