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GF Girlfriend


bignate

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bignate Newbie

Hello all! I just joined today.

My girlfried was diagnosed last week and we've had some stressful times since then. I have been reading furiously and reading labels and surfing the net. I bought a gluten-free cookbook and printed out a lot of recipes on-line. I just got back from the health food store and bought a bunch of gluten-free foods for her.

My only grumble is (and I am just posting to vent/sympathize )...she has done nothing about it yet. She *is* reading labels and really just eating fruit right now...but mostly she is complaining about getting screwed with this disease. Not that I blame her. I would be displeased to say the least. And I am trying to be supportive but it would be a lot easier if she could pitch in and help with this huge lifestyle adjustment we are making. I am not gluten-free except when we are together, but she doesn't even know half the things she needs to know nor does it seem like the term "trace-amounts" is sinking in. I hope this is just an initial shock phase and she comes around to understand the severity of her disease...I mean god, she has been so sick for so long and now when we can finally "fix" it, she has crawled into an irritable depression. I can only assume she will feel a lot better when I get all the gluten out of her. :)

Ok I feel better now...time to make gluten-free brownies for TV nite tomorrow. :)

Take care everyone!


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tarnalberry Community Regular

Well, part of the problem may be that, as Americans (which I'm assuming is true for your girlfriend) or really almost any modern country, we often think that we should be able to do whatever we want (regardless if it is good or bad) and a pill or shot should be able to fix us. There's no pill or shot for this. There's no "doing what I want to, regardless if it's good or bad" without suffering. There's no more being like the other 99.5% of the population. You can NEVER ever have a regular sandwhich again. That basket of bread served at the beginning of a italian restaurant dinner with the tasty garlic oil and balsamic vinegar? Nope, don't even think about it. EVER again.

It can get depressing to realize that you can't even lick an envelope anymore. Someone else wrote that the first three months are often an adjustment period. And I think it's true. Even though I'm a hopeless (and annoying! ;-) ) optomist, and even though I always cook from home from scratch (and am a very adaptable cook), I was well accustomed to reading the label on anything I couldn't make at home, and it was seemingly simple for me to make the transition, I was still frustrated and a bit upset at times. I still get frustrated at the lack of convenience. (That's why I'm spending $100 on a food dehydrator!)

I don't want to say "You can't know how it feels to have what amounts to a life-sentence since you don't have one", but... well... there's something to be said for thinking about it, and the fact that some people deal better (in the short term, particularly) with these sorts of things than others. I think you'll find that most people diagnosed with a chronic disease go through a period of depression and almost rebellion (even if they don't follow through).

I'm sure you'll continue to be patient with her, and despite all I've said, I think it's FABULOUS that you are so supportive. I do hope she comes around soon.

hsd1203 Newbie

first of all, what a lucky girl to have someone like you to help take care of her right now, and to have had a doctor who was on the ball. next...

this is a HUGE adjustment, give her some time, expect to have to pick up some of the slack in the relationship right now, including being the one who chooses what's for dinner. bring tissues to the grocery store and out to eat, but also expect lightbulb type positive moments about this from her at random times. know that most likely things will get better once she feels better, but will go in cycles, especially if this diagnosis is out of the blue for her. I grew up with a celiac mom and always knew I could end up with this and am still struggling with the whole thing after about 4 months gluten-free. it is a process.

also, although I always thought I pretty much knew how much it would stink to have this (sympathizing with my mom), once I was diagnosed, I realized what I thought was nothing compared to how much it actually does stink to have this. it has a huge impact on the way you think about a great many everyday things (as I'm sure you're starting to realize) and while totally do-able, can seem oevrwhelming at times (especially to someone who is still feeling icky or has just screwed up... intentionally or accidentally). that said, hopefully soon she'll start feeling so much better that she'll realize that the extra effort of a gluten-free diet / lifestyle really is worth it.

good luck, best wishes, and happy gluten-free baking :)

debmidge Rising Star

Dear Bignate:

I was in your shoes over 25 years ago. But we didn't know my husband (future husband had celiac - Drs. said it was IBS, etc.). My husband had to go on a diet for the IBS and he accepted it. In Oct 03 we figured his IBS took another notch down & went to new Dr. who diagnosed celiac disease. Well, 25 years or so later we have a new situation to come to grips with. He still can't have the food he shunned from the IBS disease (fruits, vegetables, fried foods, acidy foods, tomato) - now add the new "no-no's" of wheat, oats, barley, rye.

As the mate, I can say that the hardest part is watching the one you love go through a greiving process. The life they once knew died. If the celiac has a hard uphill climb due to villi damage, then that greiving will probably be lengthened. In my husband's case, his body has to undo a lot of damage.

Additionally, I am sure your girlfriend has the "gluten depression" - from what the gastro told me, this is a depression that celiacs have due to the chemistry from ingesting gluten and should go away once she is in full swing on the diet. But I can tell you from my experience with my husband that if there's been an underlying depression you could be dealing with 2 separate sources of depression. As you mentioned, she's allowing herself traces of gluten - this could be fueling the gluten depression.

In my opinion she's correct when she says she was screwed with this disease, but who in life by the time they are 25-30 have something wrong with them in another way? Sooner or later most of us gets screwed by some disease or another.

Some people have to watch their sugar/carb intake due to diabetes, another has cholesterol issues, some have orthopaedic problems like disk damage or bad knees or inability to have children or something. With celiac disease, in my opinion, the celiac has the ability to control the situation through diet. Many others are not given this option or for example the case of a diabetic, they still might be getting high sugar levels even when following their diet. I am sure that in all these cases, the person with the health problem grieves for some time & feels that life is passing them by. I supppose that it'll take some time for her to come to terms with her new life. Heck, I'm still getting used to it all and I am greiving for him as being diagnosed celiac disease at this period in his life was too much for him to take.

Your girlfriend is the one who must call the shots on when she is ready to go 100% gluten free. It's almost like a smoker - no one else can stop them from smoking.

Lastly, she's very lucky to have someone sticking by her in her time of need. There's no other way for me to say that.

Best wishes,

Deb

4/21/04

bignate Newbie

Wow - thanks everybody!

We are actually feeling a little better today. I made some gluten-free stuffing out of rice bread and baked gluten-free brownies. She had some veggies and such for lunch with the above and I have a really big dinner planned. She seems happier already.

I hope I didn't come off sounding like I was mad at her. I guess I just want her to be serious about this and she is not entirely ready. But again - what a difference a day makes she was actually laughing a little bit when I told her "no more something or other"...it was a tired laugh, but I'll take it!

However - thank you all for your posts, you have all been very nice.

jen-schall Rookie

I don't think you came off as sounding angry at all, just concerned.

I just want to say good for you for being so supportive about this! so many people just go straight into denial and stay there. how wonderful that you two have this relationship. yay.

it does sound like she is just the shock phase you mentioned. it

sweetie101282 Apprentice

Hey bignate

First off I think its awesome that you're stepping up for her like this. It helps so much when you get diagnosed with this disease to have people around you who want to help with the transition. My mom was that person for me - a lady at our health food store had her buy me the book "Against the Grain" by Jax Lowell. Its an older book, probably published around '94, but Jax has an awesome way of snapping someone out of their depression about celiac disease and making them proactive. I don't know if this will help your girlfriend, but I know I felt 10x more prepared to make the transition after reading it. Good luck to the both of you! And feel free to vent...I think most of us have had our rantings posted here a few times..its okay! B)

-amy


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bignate Newbie

Thanks sweetie and jen.

I am really getting into this I just baked a loaf of bread and I had never done that before (gluten-free or otherwise). It looks and smells soooo good. She is doing a little better. She had a really decent stomach today. She had her usual upset but not as bad. We were really excited that this is working already. We have been prepared for the worst since the dx and this is soooo great!!!! Of course we talked about the long road ahead but a little milestone is what we needed right now and we are very happy. In fact she is at her house hanging out with friends tonite. She has cancelled so many gatheriings because she has felt so awful I am really glad to see her doing so well.

Thanks to everyone who has been so kind to me during this very emotional and stressful time.

bignate

  • 2 months later...
Sara Lydia Newbie

You are a great guy for sticking to this and doing all this work for her... she is going to really need you... because sorry to inform you, its long from over. You stated that she hasnt done much about the "cause" but complains about her fate.

Thats natural... and it will never end. She may accept it, but you have shown her guiding support unconditionally so she feels comfortable going to you with her feelings.

in the same token, and coming from a younger, female Celiac as well... I should warn her [or relay it through you] that the more she makes herself a victim, the harder it will be to move forward, the longer it will take to heal, the less time she has to decrease chances of other chronic or fatal diseases and the MORE prone she will be to "cheating". A 'victim' usually doesnt have many freinds, my mother always said. But also... a victim thinks like a victim: negatively. And the more negative a Celiac is, the more prone they are the negatives of the disease.

the flu, fatigue, cheating [eating gluten], weight loss, weight gain, hypo thyroid disease, chron's disease, skin disorders, mental disorders, depression, miscarraige, malnutrition, sleeping disorders, allergies, ulcers, stomache cancer, siezures, headaches....all because of stress and not taking care of the disease. any common cold or sinus infection could end her in the hospital with pneumonia.

She has to take charge of her lifestyle... its good to have you, but she cannot depend on you for everything. When youre not around, its very unhealthy that she just eat fruit. Those arent her only options.

Hope this has helped. I used to be your girlfriend... i truly know.

Sara

celiac3270 Collaborator

Some foods...just a list I always post for newbies...maybe you can get something out of it....

- Store-bought Cookies: try Pamela's Products -- the BEST cookies. The lemon shortbread are decent, but some people find them too strong a lemony taste. However, try the Dark Chocolate Chocolate Chunk Cookies. They are AMAZING!!! Even including regular cookies, they are the best store-bought I've ever had.

- Homemade Cookies: if you have 15 minutes to spare, make peanut butter cookies. Very good...even my aunt who hates PB liked them. Preparation time is about five minutes and the recipe calls for 10 min. baking -- it might take 15. All you need is 2 cups of PB (Skippy or Jif), 2 cups of sugar, and 1 egg (this is also good because there aren't any weird gluten-free flours and stuff...where do you buy those things, anyway? I don't like to cook, and I surely don't like to cook something that requires six different types of flour...it's ridiculous and I like simplicity if I am even going to bother cooking something...I don't mind making basic things, but now 6-flour-cookies that take three hours to make and three minutes to eat... ).

- Fruits/Vegetables/Meat: I eat so much more fruit now...apples, bannanas, strawberries, blueberries, canned mandarine oranges, canned peaches, etc. There are, of course, meats: chicken, steak, pork, hamburgers, etc....no fresh meat is excluded...but I often forget about fish, which are, too, gluten-free.

- Bread: People will say Knikinick or however it's spelled is great, but I've found Ener-G to be a bread that tastes astoundingly similar to regular gluten-filled white bread...that's what I use...you make your pick...go with me or the majority!

- Pizza: probably thought you'd never have that again, right? Get Chebe (you can only get it online), but buy the bread mix, not the pizza crust (the bread mix turns out better). Follow the instructions, mush it out into a round "thing", bake as instructed, and then add sauce (Classico is good and the only kind that I know to be gluten-free....but expensive), and gluten-free cheese. It's terriffic. By the way, you can get the Chebe at Open Original Shared Link. Try it...the shipping is free and once you realize that you like it, you can buy it in bulk and get discounts. Please!!!! If you take ANY OF MY ADVICE FROM THIS POST....TRY THE CHEBE!!!

- Miscellaneous: Raisins, Quaker Rice Cakes, most soft drinks are gluten-free including all kinds (diet, caffeine free, etc.) of Coke, Sprite, Sunkist, Pepsi, etc. As long as you stick with the brand-name companies (not the Supermarket Colas and be careful with Root Beers). There are many gluten-free candies...I actually made a post under the "Teenagers Only Section" for gluten-free candies...check there for the complete list that Gf4Life provided...actually, I'll copy it below:

Hi celiac3270,

I have a list of mainstream gluten-free and milk free candies that I use when shopping for candy for my kids. I got it from the Gluten-free Casein-free Diet Support Group for Autistic kids and they are very strick when it comes to putting products in their booklet each year. I know that Dextrin is one of their ingredients that is avoided, so these should be safe. Still read all the labels, since manufacturers change their formulas far too often:

Nestle: Sweet Tarts, Spree Chewy Candy, Regular Spree Candy

Farley gummy bears

Willy Wonka: Gobstoppers, Bottle Caps, Pixy Stix, Nerds, Runts

Mike & Ike: Zours, Jelly Beans, Hot Tamales

Starburst Fruit Chews (NOT Starburst fruit twists!)

Necco: Necco Wafers, Sweethearts, Conversation hearts (Valentines), Necco Candy Eggs (Easter), Candy Stix, Talking Pumpkins (Halloween), Peach Blossoms (Christmas), Necco Ultramints, Canada Mint & Wintergreen Losenges

Rock Candy (made from pure sugar)

Ce De Candies: Kidz Rings, Candy Fruits, Candy Lipsticks, Smarties

Mars Inc: Skittles, Jelly Beans

Sunkist: Fruit Jems, Jelly Beans, Orange and Cream chews, Super Sour Stars

Sorbee International: Lollypops

Jolly Rancher: Hard Candies, Jelly Beans

Jelly Belly: All flavors of Jelly Beans EXCEPT: Cafe Latte, Buttered Toast, Caramel Corn, Buttered Popcorn, Chocolate Cherry Cake, Chocolate Pudding, Strawberry Cheesecake

This should give you a lot more options and they are all available pretty much everywhere. I can also put together a list of others that you might only find online or in healthfood stores if you would like. Just let me know.

As for chocolate, I found that the Scharfen Berger chocolate bars are very yummy. They are gluten and dairy free by ingredients. The small bars are wrapped in a different facility where they also wrap other chocolates that do contain milk, so as a precaution they put a milk warning on the label. I am very sensitive to dairy reactions and have never had a reaction to these bars. They are a bit pricey and not available everywhere (I got mine at Whole Foods) but they are very nice to have when you are craving chocolate. There are also a few kinds of baking chocolate chips that are gluten and dairy free.

God bless,

Mariann 

Chips: most things by Frito Lays (not Doritos), you can have: Lays Potato Chips, Wavy Lays Potato Chips, Cheetos, Fritos, etc. You can get a complete list at Open Original Shared Link

FritoLays Gluten-Free Products:

Last updated August 28, 2003

BAKED DORITOS

debmidge Rising Star

celiac3270

Where did you find the Food by George gluten-free Corn Muffins? At a store or do they let you order directly from them?

Thanks,

Debbie

celiac3270 Collaborator

The only place I've found them is a healthfood store near me. They might be hard to find, because they're only in one of four healthfood stres that I visit. I am not aware of an official site to order online, but some online gluten-free products store might carry them. Both are rather expensive, but just try one package and you'll see why I praise them.... :)

-celiac3270

  • 3 weeks later...
NegativeZero Newbie

Hey everyone. I'm new to the boards. I figured I'd start here because I am also a boyfriend of someone who has celiac disease. I never knew it even existed till about 4 months ago when my now girlfriend and I were just friends and we went out and ate a burger after a shift at work. Since then, I have been paying close attention to what she eats and drinks to better understand what is safe and what is not.

First off, celiac3270, thank you so much for the list of gluten-free snack foods...it helps to know which snack foods I can stock up on and have around my place all the time that we can snack on together. That list is such a huge help.

I still have some questions though. I was actually looking for gluten-free brownie mix with no success. Should I just look online? The local grocerie stores don't seem to be much good around here. Also, I have a breadmaker and I looked at all of the gluten-free bread mixes...I took mental notes of all the flours they use. Obviously, wheat flour is dangerous. I wanted to be double-safe, and although it sorta ruined some of the surprise, I asked her if oat flour, soy flour, and rice flour was safe. She warned me to avoid oat flour and soy flour. Aside from rice flour, are there any other flours that might be safe? More importantly, are there any other kinds of flour that I should be careful not to use? I also know any kind of "modified food starch" is also something to be careful with.

That Chebe bread sounds like a safe bet (and sounds really good :D ). I will most likely use that. I have a whole day of things planned, including a picnic (which I will have either brownies, sanwiches, or both....and other picnic foods and stuff), along with a whole bunch of other fun things. Of course, no matter what I use I think I will cut all of the ingredient labels off and bring them with me...since she can spot what is dangerous in a millisecond.

My girlfriend is the most incredibly awesome person I have ever met, I want nothing but the best for her...especially if it comes to one of my surprises :ph34r: .

Sorry for the lengthy post, any help would be appreciated. Thanks.

-Matt

chasefamily Rookie

Hello All still a newbie here I haven't been diagnosed yet, but schjeduled for endoscopy the end of this month. This is really going to be a big adjustment for our family because my daughter who is a diabetic has to have a certain amount of carbohydrates per meal and most gluten free foods have very few carbs. I know that when I get the results I will have to see dietician, we already see a dietician for my daughter , I know that we will all be eating healthier but she is not happy to know that we will be giving up more foods. Any ideas would be appreciated thanks.

celiac3270 Collaborator

Glad to have helped, NegativeZero. :D

You are correct; modified food starch can be bad if it's made from wheat. It's good to be wary. Second, thanks for trying the Chebe :) ! I've mentioned it a lot, but I think you'll be the first to try it! As for a gluten-free brownie mix, there's no way you'd find it in a grocery store, because there are no mainstream gluten-free brownie mixes as there are potato chips.....you'll have to go to a healthfood store or order online. When I got started on the gluten-free diet, I had a celiac friend that helped me with great foods (like Chebe...I never would have found it).....friend didn't join, board, though. Anyway, I was told that Pamela's Products Ultra Chocolate Brownie Mix are MUCH better than food by george brownies and are absolutely to die for. Like the pancake mix, all the brownie mix requires is oil, water, and an egg.....for those of you with additional allergies or intolerances, I'll list the ingredients below...I haven't tried these, yet, but plan to, soon:

Flour base (brown rice flour, tapioca starch, sweet rice flour, potato starch, xanathan gum), molasses and honey, natural process cocoa powder, *Organic chocolate chunks (chocolate liquor, butter, soy Lecithin-emulsifier, Natural vanilla flavor), Natural vanilla flavor, sea salt, baking soda.

I don't make a lot of things from scratch so I don't really know about flours....buckwheat is fine, despite its name, brown rice flour (or any other rice flour), tapioca flour, potato starch........somebody else might be able to help there.

-celiac3270

Boojca Apprentice

I can find most of my gluten-free mixes in our grocery stores, but I'm here in the East. The "BIG" stores now have a "organic/healthy" section, and I've found a TON of gluten-free stuff in those sections. Including Pamela's cookies, Gluten Free Pantry mixes, Arrowhead Mills flours, etc.... So, if you have a "big" grocery store that has one of these sections go through it and check, you may be pleasantly surprised.

I have tried the Gluten Free Pantry brownie mix and Bob's Red Mill brownie mix. Both are FABULOUS and taste and "feel" like "real" brownies. In fact, I don't have celiac disease my son does but I'll eat these probably before he's even had more than one! With a little vanilla ice cream....ugh. I have to stop....

Rice flour, tapioca flour, potato flour. Some say sorghum flour but I haven't come across that so have no idea. I did not care at all for the Amaranth flour, but others love it. I thought it tasted like, well, moldy flour....others say it tastes nutty but I dunno.... Personally, though, I've decided I like the mixes best. I love the Gluten Free Pantry Favorite Sandwich Bread. Others rave about Manna from Anna, but I haven't tried that yet. Have some ordered though. As for the bread machine, I have one but don't use it. Word is that only certain bread machines work for gluten-free bread so you have to be careful with them. After reading about it, it sounded like MORE work to use the bread machine so I don't. gluten-free bread is very different than "real" bread in that you don't knead it, and you only let it rise once. When you mix it, preferably in a stand mixer (like a Kitchen Aid) bc the batter is so thick you could never do it by hand, it comes out like a really think cake batter. Actually more like Brownie batter. Anyway, you mix it and then pour it into a bread pan and cover it with saran wrap and let it rise. Then you put it in the oven and bake it. I usually let mine rise for 45 minutes, then bake it for 30 minutes. Whalla, bread.

There are a zillion places to order online, I order from the Gluten Free Pantry bc I love their stuff (they also carry many of the things listed on here in addition to their own products)

You should try and get a mainstream product list(s). That would help you both immensely. I bought one from CSA Celiac for $20....I think there's a link in the Food & Shopping forum on here for a list created by a support group in Wheaton, IL. It is great to have both, which I do, bc there are some items on one that are not on the other and vice versa. There is also a list at the Delphi forums, I dont' have the URL maybe someone else here does?, that I have that also has a few other things not on these other two lists.

Hope this helps!

Bridget

NegativeZero Newbie

Awesome! Thanks celiac3270 and Bridget!

I've been extremely busy lately, so my whole plan is postponed (I'm getting ready to move into my own place). However, I did spend a lot of time with my girlfriend these past couple days. I spent a night over her place and we went to the grocerie store together. We walked through the "organic food" section, which is where she normally finds her bread...but unfortunately the whole Atkins craze has taken over and her bread was not to be found. I seemed more upset about it than she did. But I was uber-psyched to find out that she could eat fruity pebbles and cocoa pebbles (and corn pops)!!! Those happen to be some of my favs. When we ate them she was all smiles and claimed that it's been forever since she's eaten cereal. So I have decided I have to do the brownies....and I am going from scratch. In my research I found a big list for gluten free recipes so it is on! She's had celiac disease since she was a little kid, so she is fine with everything...she knows her stuff. She's really big on trying to cook for me, I can't wait to return the favor. All I have to do is locate and order all the stuff I need, I can't wait to see the look on her face when I surprise her.

For anyone interested here is a link to the recipe place that I found with the gluten-free recipes:

Open Original Shared Link

angel-jd1 Community Regular

Your girlfriend should not be eating corn pops. They began adding wheat to their ingredients begining january 1st of this year. There is however, the malt-o-meal brand of corn bursts (like corn pops) that are fine for her to eat. I would hate to have her getting sick because of a silly cereal.

-Jessica :rolleyes:

NegativeZero Newbie
Your girlfriend should not be eating corn pops. They began adding wheat to their ingredients begining january 1st of this year. There is however, the malt-o-meal brand of corn bursts (like corn pops) that are fine for her to eat. I would hate to have her getting sick because of a silly cereal.

-Jessica :rolleyes:

Whoa, that's dissapointing. Obviously she didn't know that...that's news. That sucks that they started adding wheat. Like I said, she said she hadn't eaten cereal in forever (I think years). I'm not a fan of corn pops anyways...hence why we got fruity pebbles. But thanks for the heads up, I'll be sure to let her know. At least we still got the pebbles variety!

  • 1 month later...
Littlewolf Newbie

Hey all!

I am in the same boat, my boyfriend is gluten-free and it's tough to learn to deal with his diet. I am able to eat anything (except chocolate) and it slips my mind when we go out.

I know my BF was depressed when the doc pronounced him a Celiac even though he sort of knew a few years ago.

Anyhow, if your sig other is a celiac, they need to start the diet right away. Dealing with the consquences is not nice or pretty. Plus, it can eat away at the stomach and intestine lining causing a lifetime of problems. It's a hard ajustment, but, there are lots of food ok to eat out there. Mexian food is good. You can still make stirfries and have any meat and veggy.

It's like a forced Aktins diet.

Anyhow, if anyone has a loved one who is gluten-free, feel free to message me. :D

  • 1 year later...
fisharefriendsnotfood Apprentice
Some foods...just a list I always post for newbies...maybe you can get something out of it....

- Store-bought Cookies: try Pamela's Products -- the BEST cookies. The lemon shortbread are decent, but some people find them too strong a lemony taste. However, try the Dark Chocolate Chocolate Chunk Cookies. They are AMAZING!!! Even including regular cookies, they are the best store-bought I've ever had.

<{POST_SNAPBACK}>

PAMELA'S COOKIES ARE NOT GLUTEN FREE!!!!

I read that in a Celiac Newsletter.

-Jackie

skbird Contributor
PAMELA'S COOKIES ARE NOT GLUTEN FREE!!!!

I read that in a Celiac Newsletter.

-Jackie

<{POST_SNAPBACK}>

Which newsletter? All the ones I've eaten are gluten free, have no gluten in the ingredients, and say gluten free on the label. I've also never reacted to any of those I've eaten, and I'm a pretty sensitive reactor.

Curious...

Stephanie

Rachel--24 Collaborator
PAMELA'S COOKIES ARE NOT GLUTEN FREE!!!!

<{POST_SNAPBACK}>

Huh??? I eat Pamela's cookies and as far as I know they are gluten-free. I've never gotten sick. :unsure:

Maybe they were referring to the other Pamela's cookies....I've seen some newer ones that aren't gluten-free...I almost bought some mistakenly cuz I just assumed they were all gluten-free.

gabrielle Contributor
- Miscellaneous: Raisins, Quaker Rice Cakes, most soft drinks are gluten-free including all kinds (diet, caffeine free, etc.) of Coke, Sprite, Sunkist, Pepsi, etc. As long as you stick with the brand-name companies (not the Supermarket Colas and be careful with Root Beers). There are many gluten-free candies...I actually made a post under the "Teenagers Only Section" for gluten-free candies...check there for the complete list that Gf4Life provided...actually, I'll copy it below:

-celiac3270

<{POST_SNAPBACK}>

DID I READ THIS RIGHT???? Quaker Rice Cakes are gluten-free??? Really?!? Please tell me this is true!

Gabby

KaitiUSA Enthusiast
DID I READ THIS RIGHT???? Quaker Rice Cakes are gluten-free???  Really?!? Please tell me this is true!

Gabby

<{POST_SNAPBACK}>

Well they won't guarantee because of cross contamination. I don't trust ANY of the Quaker products.

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      Coping with celiac


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    • KCGirly
      Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate.  I would have The episodes were every two weeks or so.  I stopped taking the semaglutide, but continued to have episodes.  GP ran bloodwork all normal, including celiac.  Ordered a stomach emptying test it was normal too.  The itchy palms stumped him.  So he ordered blood allergy test all came back normal no allergies. He had me go gluten free 11/29.  Finally got into a GI doc on 12/16.  She wanted me to reintroduce gluten back in my diet on 12/23 and then have scope on 1/8.  Well, 5 days in with gluten, I had an episode. I’m not sure I can keep eating gluten for 10 more days.  I have PTSD thinking about possibly having an episode(s) again.  Anyone going through this? Or have thoughts/suggestions?
    • emily 1
      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
    • trents
      I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well. 
    • knitty kitty
      Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?  
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