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CBD oil for DH?

TDZ

By TDZ
in Dermatitis Herpetiformis

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TDZ Apprentice
TDZ
Posted

Anyone tried CBD oil on the DH rash? Any success?

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cyclinglady Grand Master
cyclinglady
Posted

Good question.  Looking for itching/pain relief?  I do not think it will stop the antibodies from building up in your skin when exposed to gluten though.  ?

healthysquirrel Enthusiast
healthysquirrel
Posted

I've tried it on a sore on my finger and it went away quite fast, just test on one spot. I wish you well

  • 2 weeks later...
apprehensiveengineer Community Regular
apprehensiveengineer
Posted

Will it make you feel better? Maybe. But if I drink a six pack of [gluten-free] beer, I will also feel better. Is alcohol a cure too?

Neither will change the amount of damage you sustain from inadvertently consuming gluten. Don't fool yourself by trying to mask it.

TDZ Apprentice
TDZ
Posted
  • Author

Oh, no, sorry -- my husband is just interested in whether it would help with the itching. He's not trying to replace an everything-free diet. It's just that he had it so bad by the time we figured out what it was, it was essentially a whole-body problem, and it's going to take a long time for it all to clear up. He's made good progress by avoiding the myriad of allergens, but he still gets hit with cross-contamination and there may also be things he's reacting to that we don't know, because there are only so many things on the food allergy panel of tests. His head still itches horribly at night, and his legs on the lower half of his calves -- the rest is mostly cleared up. It doesn't help that we had an extremely wet winter and are having a horrendous pollen season this summer -- they say we've got things growing and blooming around here that haven't been seen in years.

He had heard somewhere that Indica pills might be helpful (though I think that was about eczema, not necessarily DH), so we thought we would see if anybody had tried that.

kareng Grand Master
kareng
Posted

So he has been diagnosed, by a biopsy, with DH?  Because other foods don’t cause DH- just gluten.  

He shouldn’t be getting cc.  And pollen doesn’t cause DH. 

But, if I had a horrible itchy rash- I would probably try topical CBD from a reliable company. 

TDZ Apprentice
TDZ
Posted
  • Author

He has not been diagnosed by biopsy, but we're quite certain that's what it is. The other food allergies are because he's gone years without knowing it was gluten causing his problems, and now reacts to many things. He had a food allergy panel which showed severe wheat and milk allergies and substantial allergy to eggs, soy, shellfish, peanuts and tree nuts, none of which he had any history of prior to the last four years or so. But he's on the mend, with a gluten-free (and everything else-free) diet, and the doctor wants to test him again in a few months to see if any of the other allergies are improving.

I'm not sure what you mean by "he shouldn't be getting cc" -- he is, because this is not a gluten-free household and he's not as careful as he should be. And he may still be reacting to things we don't even know he's sensitive to, in addition to things that should be gluten-free but aren't. It's a constant crapshoot.

I didn't mean to imply that pollen had anything to do with DH -- it's just another allergen causing him problems at the moment.

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kareng Grand Master
kareng
Posted
5 hours ago, TDZ said:

He has not been diagnosed by biopsy, but we're quite certain that's what it is. The other food allergies are because he's gone years without knowing it was gluten causing his problems, and now reacts to many things. He had a food allergy panel which showed severe wheat and milk allergies and substantial allergy to eggs, soy, shellfish, peanuts and tree nuts, none of which he had any history of prior to the last four years or so. But he's on the mend, with a gluten-free (and everything else-free) diet, and the doctor wants to test him again in a few months to see if any of the other allergies are improving.

I'm not sure what you mean by "he shouldn't be getting cc" -- he is, because this is not a gluten-free household and he's not as careful as he should be. And he may still be reacting to things we don't even know he's sensitive to, in addition to things that should be gluten-free but aren't. It's a constant crapshoot.

I didn't mean to imply that pollen had anything to do with DH -- it's just another allergen causing him problems at the moment.

If he truely has DH , which is Celiac, he has to be completely gluten-free.  He will never get well eating gluten.  You just have to be careful.  I have a mixed house but I don’t get glutened from them.  So it can be done.  

The fact that you haven’t been diagnosed with DH, means it might not be DH.  If you knew what it was, you might be able to treat it.  I would hate for him to be suffering for no reason. 

cyclinglady Grand Master
cyclinglady
Posted
(edited)

You can always try the oil, but I think that solving the root cause of the rash is critical.  If he has been gluten free for months and has seen some improvement, he may have DH.  If he does have DH, then a really strict gluten-free diet is needed.  He can try the Fasano diet which has has been suggested or stick with a few weeks of only meat, fish, poultry and fresh fruit and veggies.  No grains.  No eating out.  Nothing processed.  Then add in other foods slowly providing he does not have any intolerances or allergies (mild or severe).  Because he is not careful, consider making the entire house gluten free.  Finally, NEVER eat out.  Never eat any food that is not prepared by him or you unless, they have celiac disease and are compliant with the diet or you are at a 100% Dedicated gluten-free restaurant.   Never seems like a  strong word, but until he has experienced remission, this may be worth trying.  I did it.  I still live this way (the part about a dedicated restaurant, house, food prep, and avoiding processed as much as possible (except on vacation ?).    If this does not work, he may not have DH.  

Allergy testing is not very accurate.  Was it done by a board certified allergist?  Skin scratch testing or an IgG blood test (not very accurate at all).  

Where do you live?  By a bakery?  A silo filled with wheat?  A farm that either grows wheat, oats or rye or near another one that does?  What kind of work?  Things like drywall or animal feed  contain wheat.  More things to consider if he does have DH.  

Edited by cyclinglady
  • 2 weeks later...
Logan883 Newbie
Logan883
Posted

A friend of mine, who is a doctor, said that CBD oil or other CBD products can really help with DH.

  • 2 weeks later...
Marine One Newbie
Marine One
Posted

Great forum.  I’ve had DH for about a year,  comes and goes, follow strict gfd but still get flares.  

Very curious as to how cbd oil is used?  Invested or put in as a topical?   Also taking dapsone which at time does offer some relief.  

Any advice about the how tos for cbd oil for Dh

  • 3 months later...
Jenna1028 Apprentice
Jenna1028
Posted
On 7/23/2019 at 4:11 AM, Logan883 said:

A friend of mine, who is a doctor, said that CBD oil or other CBD products can really help with DH.

I'm in Florida and have access to medical grade CBD - not the stuff you buy in gas stations - but the 100% pure CBD. I was wondering if this is something that would work, but was too afraid to try, for fear of making it worse and/or aggravating the skin. 

Thanks for the info! 

  • 1 year later...
knitty kitty Grand Master
knitty kitty
Posted

Niacin (Vitamin B3) helps with DH, but you have to take the kind that flushes (250mg/day).

Avoiding foods high in iodine (shellfish, seaweed, iodized salt) reduces flavours.

Nanette S. Newbie
Nanette S.
Posted

I have celiac disease via DH and am on a gluten free diet,  however, once in a while my rash flares up.  My dermatologist prescribed chlobetasol gel and it works quite well to control the itching and burning of the DH rash.  

Rebmes Apprentice
Rebmes
Posted

CBD is great for joint pain - too bad a lot of people don't have access to it. Be very careful though, some forms of CBD can affect your abilities and won't be usable at work - but some might be OK like topical creams that don't go in your system the same way.

knitty kitty Grand Master
knitty kitty
Posted

Niacin, the kind that flushes, is good for helping DH flares go down. (250 mg twice a day).

Avoiding foods high in iodine (shellfish, seaweed, iodized salt and Dairy) reduces flares.

  • 3 months later...
plumbago Experienced
plumbago
Posted
On 11/8/2019 at 10:56 PM, Jenna1028 said:

I'm in Florida and have access to medical grade CBD - not the stuff you buy in gas stations - but the 100% pure CBD. I was wondering if this is something that would work, but was too afraid to try, for fear of making it worse and/or aggravating the skin. 

Thanks for the info! 

So the stuff you buy in gas stations is K2 and is extremely dangerous. It is not even remotely comparable to medical marijuana, I should think.

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