Constipation/rash 2 months gluten-free? Potatoes?

[blurryface]

I’ve given up all gluten now for nearly 2 months and at first I thought i felt better but now I’ve started to feel worse with bloating and constipation and there is a small hives like rash on my abdomen... do you think this is a sign that the diet isn’t agreeing with me? I thought maybe it was dairy intolerance at first which i’ve cut out for a few days and now I have a feeling it could be potatoes?... But i didn’t have a problem with these foods prior to going gluten- free. Sigh, any advice would be appreciated 

 

 

 

 

[cyclinglady]

What made you go gluten free?  

[blurryface]

7 minutes ago, cyclinglady said:

What made you go gluten free?  

Hi,

I had ridiculous amounts of tests done and they were all coming back normal and eventually the doc said there is nothing wrong. I then read the celiac test can be false negative and by this point I was so fed up I thought I’d cut it out on my own and see if it helped... my symptoms are weight loss, joint pain, erythromelalgia, fatigue, abdominal pain, blocked ears... ahh sorry to bore you with this. I’m living in a nightmare really! 

[cyclinglady]

I get it!  So many of us have suffered for years.  Some actually get a diagnosis and others do not.  

Going gluten free should help if you have celiac disease or a gluten sensitivity.  The most common issue for newbies is actually REALLY avoiding gluten.  Cross contamination is a huge issue.  

Consider consuming only foods that you prepare yourself.  Learn to eat safely in a shared kitchen.  Do not eat out.  Avoid processed foods.  Even processed gluten free foods are still junk foods full of chemicals and sugar.  Do not eat oats (even gluten free oats)  for six months.   Add processed foods or eat out once you are well and can handle the risks.  

Anyone who radically alters their diet can experience things like constipation, etc.  Try to focus on lots of veggies for constipation since you are probably not consuming a lot of grains now (gluten free grains used most often are not always high in fiber).   You can eliminate nightshades (tomatoes, eggplant, white potatoes) for a while to see of it helps.  Food intolerances are common.  

Keep a food diary.  It helps identify foods that could be bothering you.  

Keep researching how to really be gluten free.    It is your best defense.  

 

[Posterboy]

On 7/30/2019 at 7:12 AM, blurryface said:

Hi,

I had ridiculous amounts of tests done and they were all coming back normal and eventually the doc said there is nothing wrong. I then read the celiac test can be false negative and by this point I was so fed up I thought I’d cut it out on my own and see if it helped... my symptoms are weight loss, joint pain, erythromelalgia, fatigue, abdominal pain, blocked ears... ahh sorry to bore you with this. I’m living in a nightmare really! 

Blurry Face,

You might want to look in to Lupus.

People who have a butterfly rash often have Lupus.

Here is an article about it entitled "The butterfly rash and the malar flush. What diseases do these signs reflect?"

https://www.ncbi.nlm.nih.gov/pubmed/1824645/

I hope this is helpful but it is not medical advise.

Posterboy,

[cyclinglady]

3 hours ago, Posterboy said:

Blurry Face,

You might want to look in to Lupus.

People who have a butterfly rash often have Lupus.

Here is an article about it entitled "The butterfly rash and the malar flush. What diseases do these signs reflect?"

https://www.ncbi.nlm.nih.gov/pubmed/1824645/

I hope this is helpful but it is not medical advise.

Posterboy,

This sounds like you are trying to diagnose her.  When did she mention a butterfly rash?  We should just share our personal knowledge about our personal illnesses and how we deal with those illnesses (like avoiding gluten).    I do not recall you having lupus.  

[Scott Adams]

@blurryface did mention “a small hives like rash on my abdomen...” so perhaps that is why  @Posterboy  brought up the butterfly rash and Lupus? Obviously we can’t diagnose you but you may want search for more info on this just in case, but above all keep working with your doctors on this.

To me it is more likely that you might that you might be getting hidden sources of gluten, and/or have an additional food intolerance. An elimination diet might reveal the culprit.

 

[kareng]

3 hours ago, Scott Adams said:

@blurryface did mention “a small hives like rash on my abdomen...” so perhaps that is why  @Posterboy  brought up the butterfly rash and Lupus? Obviously we can’t diagnose you but you may want search for more info on this just in case, but above all keep working with your doctors on this.

To me it is more likely that you might that you might be getting hidden sources of gluten, and/or have an additional food intolerance. An elimination diet might reveal the culprit.

 

A butterfly rash on lupus is on the face.  

18 hours ago, Posterboy said:

Blurry Face,

You might want to look in to Lupus.

People who have a butterfly rash often have Lupus.

Here is an article about it entitled "The butterfly rash and the malar flush. What diseases do these signs reflect?"

https://www.ncbi.nlm.nih.gov/pubmed/1824645/

I hope this is helpful but it is not medical advise.

Posterboy,

Please stop throwing out wild theories!  She did not mention a butterfly rash on her face.  

[Scott Adams]

Yes, it might be good for @Posterboy to read his own links before posting scary things like this. In this case the original poster did not mention any rash on their face, which, according to info in the link you posted, is a key symptom of Lupus.

[blurryface]

Yes, I have no face rash but welcome any ideas with open arms– thanks all  

[GFinDC]

Hi Blurryface,

Recovery from celiac damage can take months to years.  Progress in healing depends on how good you are at keeping 100% gluten-free.  But additional food intolerances can impede healing also.  It's not impossible to notice additional food intolerances after going gluten-free and think they are new.  And sometimes they are new.  But other times it may be they were present for a while but the symptoms they caused were buried under gluten reactions.

Avoiding sugar and carbs is often helpful.  They both can cause gut symptoms when your gut is damaged.  The simpler your diet is the better for now.  Oats and dairy have already been mentioned and are a problem for some.  Though any of the top 11 food allergens are possible issues including soy.  People may develop reactions to foods they consume often.  Sometimes those reactions are temporary and sometimes they are permanent.  Sticking with the gluten-free diet for 6 months is a great idea.  Being gluten-free can't hurt you as nobody needs gluten to survive.  Gluten is not an essential vitamin or mineral.

[Posterboy]

On 7/30/2019 at 7:12 AM, blurryface said:

Hi,

I had ridiculous amounts of tests done and they were all coming back normal and eventually the doc said there is nothing wrong. I then read the celiac test can be false negative and by this point I was so fed up I thought I’d cut it out on my own and see if it helped... my symptoms are weight loss, joint pain, erythromelalgia, fatigue, abdominal pain, blocked ears... ahh sorry to bore you with this. I’m living in a nightmare really! 

To All,

I am sorry ....I didn't mean to get every one upset.

I was actually trying to be quick and short....they say short posts are more effective.

You mentioned (BF) that you had erythromelalgia

And I wanted you to be sure you also knew about Lupus ...but I could of also mentioned Raynaud's Syndrome which often occurs in someone who has been diagnosed with erythromelagia.

https://www.sciencedirect.com/science/article/abs/pii/S0190962203021212

it is not uncommon for more than one disease to overlap in a person....they are called comorbidities.

as to your current issue with rashes possibly due to potates...that is certainly a possibility.

This can happen when people are allergic to nightshades.

Solanine in potatoes can cause what you have been experiencing ...stay away especially from Green Potatoes and always cut out the eyes.

Here is a couple links about a possible Nightshade allergy.

https://www.medicalnewstoday.com/articles/321883.php

https://healthfully.com/322368-nightshade-vegetables-skin-rash.html

I hope this is helpful but it is not medical advise.

Posterboy,

[Posterboy]

BlurryFace,

I forget to add this link.

It shows how Raynaud's syndrome can also be common in someone with diagnosed with

erythromelalgia

https://www.ncbi.nlm.nih.gov/pubmed/20186674

Again I hope this is helpful but it is not medical advice.

Posterboy,

[Awol cast iron stomach]

Blurry face,

I hope you are feeling better. I'm late to your post , but thought I would chime in. I had 13 intolerances after my challenge and subsequent fall out/loss of foods with a food dairy etc. I never liked oats.  I lost corn, corn dervatives, and milk. I could not eat certain foods as well as potatos, tomatos, peppers, celery, cod, pineapple, citrus etc. If I reacted with my characteristic symptoms joint pain, myalgia etc. I had to remove food.

I went very whole foods like our members above told you. Even eating gluten free, avoiding c.c. As the 101 thread guidelines tell us,my body did not like additives etc to processed foods. I could not find a milk replacement at the time, due to the additives to keep it shelf stable and in suspension. Soy, coconut milk , Almond etc sold in stores as milk alternatives all failed. etc

I found on Pinterest ways to make my own almond milk , that worked and I used that. During those post initial  healing years I had to find work arounds. Paleo, AIP, vegan, recipes and Pinterest helped in addition to joining this forum. Patience, trial, and error becomes an unsettling necessary new norm.

Some you never get back, most in time you can add back in. For example my body still hates corn/cornstarch. So I still avoid corn and corn dervatives. I'll never be able to have gluten a cc event now brings on DH within 7-9 hours. I was able to reintroduce tomatos, white potatos, rice etc. I have 3 different pepper plants growing in my backyard this year now a little over 3 years later. I just this summer have started to try some of my husband's sheep cheese in small amounts.The immune system is allowing it. My husband squeezes me fresh oj, and I can drink it.  lemons, and limes are back on. We still make homemade almond milk it's the new norm.

So As others said sometimes we have to remove things from the diet to find comfort and progress in healing. 

welcome, I wish you well on this journey, and continued healing.