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Has anyone else’s DH looked like this?

Misitch10

By Misitch10
in Dermatitis Herpetiformis

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Misitch10 Newbie
Misitch10
Posted

I am awaiting test for a skin biopsy to come back and just wanting to know if it’s normal for the skin to tint purple. Kinda freaking me out. I have had this kind of rash for a few years now. But I have recently went gluten free. What I have noticed is that it didn’t blister like before it just came up with the red bumps and then itched and went away but left the purple tint. Also does DH cause muscle pain in the area. I have it on my elbows, fingers, and the top of both thighs. spacer.pngspacer.pngspacer.pngspacer.pngspacer.png

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squirmingitch Veteran
squirmingitch
Posted

It can leave purple marks. They fade & disappear with time. I'm not sure I would describe it as muscle pain exactly but it certainly causes inflammation in the area & that inflammation does travel along the nerves. I've had areas where I would describe it as a bruised feeling or a sore feeling. 

Did you go gluten free before getting the skin biopsy?

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Besides the rash I do get other symptoms as well. I can get patches of skin that even if the rash heals I have some discoloration. I can flush in areas too. I do get myalgia when cc, not necessarily in the same place the rash flares. I do get burning, itching, and discoloration at rash site. 

My myalgia occurs in particular areas I am prone to get myalgia at. My lower back and upper back between shoulder blades are my corresponded myalgia areas. This was used early on as a way to monitor and determine my additional food intolerances during food diary as well. My myalgia and joints pain were very helpful during food diary recording.

I also get ataxia ,neuropathy, gi symptoms too. The neuropathy can cause pain and aches in muscles associated with those particular nerves it is more immediate, sharp , burning and is more referred radiating to the tissues surrounding the nerve that is triggered. My myalgia muscle aches feels more like a dull constant ache.

good luck and Best wishes on healing.

  • 2 weeks later...
Misitch10 Newbie
Misitch10
Posted
  • Author

So just got my biopsy results in and the doctor said it was urticaria. and in the lab report it said that the tissue had rare neutrophils present but no evidence of vasculitis is seen. What does this mean exactly? 

cyclinglady Grand Master
cyclinglady
Posted

All celiac disease testing requires you to be on a full gluten diet, even skin biopsies.  How long had you been gluten free prior to the skin biopsy?  

The pathologist should have been looking for antibodies.   Did  the doctor tell the lab to look for antibodies?  Did his clinical notes on the lab order indicate that he was looking for celiac disease?  Did he biopsy correctly for DH which is adjacent to the rash and not on it.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

I think you need to talk to your doctor.  

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