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Going List Crazy!


Mieux7

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Mieux7 Newbie

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!


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Guest Viola
Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

I agree, there are so many lists it is hard to keep track. I've checked them out, erased the foods that I don't use, which shortens the lists and eliminated a list that is more than 6 months old. I stick fairly close to companies like Kraft that I can trust and of course foods that has gluten free right on the label. And Yes, by all means ... trust your own body. I'm fortunate that if I buy something to try and it doesn't agree with me, my hubby eats it. He says he's like Mikey .. he eats everything! :lol:

I sure hope you are feeling better soon!

hez Enthusiast

How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

I do hope you feel better soon.

Hez

Becky6 Enthusiast

I have seen a few errors on a list. One was it said something was NOT gluten free and I got an email from the company saying it was gluten-free. So best to check out some stuff on your own!

angel-jd1 Community Regular

I never trust something that someone else has made up. I may use a list as a reference to get me started in the right direction. However I always go ahead and call the company on my own or check their website to double check the gluten free status. People are well meaning with lists, and lists are great, but you are the only person who is responsible for your health. You have to be ontop of it.

-Jessica :rolleyes:

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

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      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
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