Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going List Crazy!


Mieux7

Recommended Posts

Mieux7 Newbie

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola
Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

I agree, there are so many lists it is hard to keep track. I've checked them out, erased the foods that I don't use, which shortens the lists and eliminated a list that is more than 6 months old. I stick fairly close to companies like Kraft that I can trust and of course foods that has gluten free right on the label. And Yes, by all means ... trust your own body. I'm fortunate that if I buy something to try and it doesn't agree with me, my hubby eats it. He says he's like Mikey .. he eats everything! :lol:

I sure hope you are feeling better soon!

hez Enthusiast

How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

I do hope you feel better soon.

Hez

Becky6 Enthusiast

I have seen a few errors on a list. One was it said something was NOT gluten free and I got an email from the company saying it was gluten-free. So best to check out some stuff on your own!

angel-jd1 Community Regular

I never trust something that someone else has made up. I may use a list as a reference to get me started in the right direction. However I always go ahead and call the company on my own or check their website to double check the gluten free status. People are well meaning with lists, and lists are great, but you are the only person who is responsible for your health. You have to be ontop of it.

-Jessica :rolleyes:

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,018
    • Most Online (within 30 mins)
      7,748

    allis
    Newest Member
    allis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Do the skin care products that give you a rash list wheat as an ingredient or are you assuming from your reaction that they contain gluten? It is possible that not only do you have celiac disease, which is not an allergy but an autoimmune disorder, but that you also have a wheat allergy.
    • allis
      Thank you, I’m very happy to be here!! Yes, lately I get rashes and itching when I accidentally use topical skin products with gluten in them. I got a bad rash around my hairline after unknowingly using glutenous hairspray, and a near-full-body rash with a sea salt spray that I guess I rinsed off insufficiently in the shower. Neither looked like typical dermatitis herpetiformis to me based on the posts I’ve read here—both were just large patches, red and slightly raised, with no blisters to speak of. At least yet. The sea salt spray was used yesterday and I noticed the itching this morning, with the rash forming obviously by this afternoon and evening. 
    • Sarah Marie
      Thanks so much for your thorough reply! I was able to schedule with the local pediatric gastroenterologist who specializes in celiac but we have to wait 3 months to see her. 
    • trents
      Sorry, meant to type "or dermatitis herpetiformis for short". What? Every time I try it, the abbreviation for this skin condition is converted to the full length term. I'm trying to type "D" followed by "H". 
    • trents
      Welcome to the forum, allis! By "skin response to gluten products" are you saying you develop a rash when you use lotions, creams, shampoos, etc. that contain gluten? One of the classical symptoms of celiac disease is a skin rash known as dermatitis herpetiformis or "dermatitis herpetiformis" for short. Celiac disease is the only known cause for dermatitis herpetiformis. It has a distinct appearance. It has little blisters or pustules in the bumps. Does this sound like what you experience? Is so, it might be possible to get a punch biopsy done when you are having an outbreak. This would be an alternative to eating gluten. If your skin biopsy was positive for dermatitis herpetiformis you could be diagnosed with celiac disease on that basis alone. Apart from that, I know of no other way to get a diagnosis apart from returning to eating gluten for a period of weeks.
×
×
  • Create New...