Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going List Crazy!


Mieux7

Recommended Posts

Mieux7 Newbie

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola
Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

I agree, there are so many lists it is hard to keep track. I've checked them out, erased the foods that I don't use, which shortens the lists and eliminated a list that is more than 6 months old. I stick fairly close to companies like Kraft that I can trust and of course foods that has gluten free right on the label. And Yes, by all means ... trust your own body. I'm fortunate that if I buy something to try and it doesn't agree with me, my hubby eats it. He says he's like Mikey .. he eats everything! :lol:

I sure hope you are feeling better soon!

hez Enthusiast

How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

I do hope you feel better soon.

Hez

Becky6 Enthusiast

I have seen a few errors on a list. One was it said something was NOT gluten free and I got an email from the company saying it was gluten-free. So best to check out some stuff on your own!

angel-jd1 Community Regular

I never trust something that someone else has made up. I may use a list as a reference to get me started in the right direction. However I always go ahead and call the company on my own or check their website to double check the gluten free status. People are well meaning with lists, and lists are great, but you are the only person who is responsible for your health. You have to be ontop of it.

-Jessica :rolleyes:

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    2. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,715
    • Most Online (within 30 mins)
      7,748

    Diane G
    Newest Member
    Diane G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.