Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going List Crazy!


Mieux7

Recommended Posts

Mieux7 Newbie

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola
Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

I agree, there are so many lists it is hard to keep track. I've checked them out, erased the foods that I don't use, which shortens the lists and eliminated a list that is more than 6 months old. I stick fairly close to companies like Kraft that I can trust and of course foods that has gluten free right on the label. And Yes, by all means ... trust your own body. I'm fortunate that if I buy something to try and it doesn't agree with me, my hubby eats it. He says he's like Mikey .. he eats everything! :lol:

I sure hope you are feeling better soon!

hez Enthusiast

How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

I do hope you feel better soon.

Hez

Becky6 Enthusiast

I have seen a few errors on a list. One was it said something was NOT gluten free and I got an email from the company saying it was gluten-free. So best to check out some stuff on your own!

angel-jd1 Community Regular

I never trust something that someone else has made up. I may use a list as a reference to get me started in the right direction. However I always go ahead and call the company on my own or check their website to double check the gluten free status. People are well meaning with lists, and lists are great, but you are the only person who is responsible for your health. You have to be ontop of it.

-Jessica :rolleyes:

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,597
    • Most Online (within 30 mins)
      7,748

    Caroline Alexandria
    Newest Member
    Caroline Alexandria
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.