Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Anyone From Maryland Here?

JessicaB

By JessicaB
in Coping with Celiac Disease

Recommended Posts

JessicaB Explorer
JessicaB
Posted

First of all i was wondering if anyone on the board lived in Maryland and if so where? I live in southern maryland myself. Im still waiting on my official diagnosis, if im "celiac" or just gluten sensitive. I feel that the group meeting would be beneficial to me. There is one at st joseph hospital at 2pm this sunday. The speaker will be Dr Alesso Fesano, who i highly reccomment. He works at the university of maryland center for celiac research. Here is the address, id be interested to know if anyone is going and who lived in maryland?? Im trying to make new friends that i can communicate with for support. Thanks! Feel free to email me if you want.

mckaylaslove@aol.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevsmom Contributor
kevsmom
Posted

Hi Jessica - I know you are going through a tough time now. We have all been through it. This group is great. They are full of so much helpful information.

I live in Westminser, MD, which unfortunately is nowhere near you. I may go to the meeting on Sunday. I haven't decided yet. I've heard Dr. Fasano speak before. He is very knowledgeable.

If you do go, you will only be a few minutes from the new Wegman's food store (wegmans.com) that just opened up. They have a wonderful website that lists pages of their brand gluten free food that they carry. They have a section in the store called "Natures Marketplace" where most of it is, but in wandering around, I found tons more. Right across the parking lot is an Outback restaurant. They have a gluten free menu.

You could go to the meeting, shop, and take yourself out to dinner. Make a whole day of it! :P

Cindy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,553
    • Most Online (within 30 mins)
      7,748
    Bariatric Psych Support
    Newest Member
    Bariatric Psych Support
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Just got Celiac blood test results back and they seem crazy high!

      By trents · Posted

      Welcome to the forum, @TexasCeliacNewbie! The test results you posted strongly point to celiac disease. It is likely that your physician will want to perform an endoscopy with biopsy of the small bowel lining to confirm the results of the celiac antibody bloodwork results you just posted. It is important that you not cut back on gluten consumption until the endoscopy/biopsy is complete, assuming, that is, one is forthcoming.  Can you post the actual reference ranges used by the lab for the tests to determine positive/negative/normal/high/low? Scales used by these labs are different from one place to the other so the raw numbers don't mean much without the scale used by the lab. There aren't industry standards for this. By the way, you probably won't be able to edit the original post so please post the extra info in new post. May we ask about the cancer you mentioned? There are some things that can elevate the antibody test scores, at least mildly, besides celiac disease.
    • TexasCeliacNewbie
      Just got Celiac blood test results back and they seem crazy high!

      By TexasCeliacNewbie · Posted

      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me that otherwise are worrying me that my previous cancer is recurring.  Thank you for all of your expertise in this area! Immunoglobulin A, Qn, Serum 140 (normal) Deamidated Gliadin Abs, IgA 256 (High) Deamidated Gliadin Abs, IgG 65 (High) t-Transglutaminase (tTG) IgA 31 (High) t-Transglutaminase (tTG) IgG 10 (High)
    • trents
      New Guy Here...

      By trents · Posted

      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      New Guy Here...

      By trents · Posted

      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
×
×
  • Create New...