Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pe Tubes?!?

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

Welp our 2 1/2 yr old son(with celiac disease) has failed his FORTH successive hearing test, completely failed, total 0. I know he can hear cause he responds sounds, but this could be a part of why he is not talking.

Is there any gluten/celiac disease angles I need worry about here? They said they will put him out with gas and they have noted on his records about eggs and gluten.

Any info on this stuff would be a great help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Becky6 Enthusiast
Becky6
Posted

I know nothing about that stuff. But do know that yes that is probably why he is not talking. Very common in kids with ear problems. Have you tried any signs with him? That can help a ton and get him to communicate better. I used them with my daughter since I am fluent in ASL and thought it would help her communicate earlier. It did! And she talked early as well, it really helps some kids.

VydorScope Proficient
VydorScope
Posted
  • Author
I know nothing about that stuff. But do know that yes that is probably why he is not talking. Very common in kids with ear problems. Have you tried any signs with him? That can help a ton and get him to communicate better. I used them with my daughter since I am fluent in ASL and thought it would help her communicate earlier. It did! And she talked early as well, it really helps some kids.

Are you fluent in ASL? Or Signed English or Pigeon English?

I currently in a Signed Eglish class and started with an ASL tutor in addtion. Most deaf around here use a mixture of all three. Almost no pure ASL is used around these parts.

But yes, he can speak in sign, well his on version of ASL, more of TSL (Tymber Sign Language) :D. Drink is overn up by the check, and the volience of it is a clear indication of desire :D. "please" is two handed, and sideways LOL. "I love you" looke more like a 3... but hey it works! :D

Becky6 Enthusiast
Becky6
Posted

Yep fluent in ASL. I also took most of an interpreting program but have these stupid cysts in my wrist so I can't interpret professionally. Hurts too much! I have seen it all. Signed English and modified signs! I work with children and adults with special needs so I have seen many different types over the years. Glad that he is using sign! That is great! And great that you are learning it as well!

VydorScope Proficient
VydorScope
Posted
  • Author
Yep fluent in ASL. I also took most of an interpreting program but have these stupid cysts in my wrist so I can't interpret professionally. Hurts too much! I have seen it all. Signed English and modified signs! I work with children and adults with special needs so I have seen many different types over the years. Glad that he is using sign! That is great! And great that you are learning it as well!

I may one day get in to a professional interpreting program but for now I am getting free lessons via local churches. I started the lessons around 2 years ago, but learned about all I can in the one class, and just started the tutor last week.

nettiebeads Apprentice
nettiebeads
Posted

I had major surgery and a couple of minor out-patient procedures after developing celiac. The gas isn't a problem with being put under. Is it an out-patient procedure? I'd just be very careful if he's offered any food by someone at the facility. Even after clearly stating CELIAC - NO GLUTEN on my menu at the hospital, I was still given crackers (individually wrapped, thank goodness) and such.

I did a semester of ASL - I thought it was neat - I would like to relearn it and go farther with it some time.

VydorScope Proficient
VydorScope
Posted
  • Author
I had major surgery and a couple of minor out-patient procedures after developing celiac. The gas isn't a problem with being put under. Is it an out-patient procedure? I'd just be very careful if he's offered any food by someone at the facility. Even after clearly stating CELIAC - NO GLUTEN on my menu at the hospital, I was still given crackers (individually wrapped, thank goodness) and such.

I did a semester of ASL - I thought it was neat - I would like to relearn it and go farther with it some time.

Yea its outpatient. THey calim the procedure only takes 5 mins.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

Is he having tubes put into his ears? The procedure does only take 5 minutes, but they'll put him out and will want him to wake up a little before he goes home. My daughter had some cereal before she left, so just bring some crackers or a light snack (similar to toast or crackers) and some juice you know he'll like.

VydorScope Proficient
VydorScope
Posted
  • Author
Is he having tubes put into his ears? The procedure does only take 5 minutes, but they'll put him out and will want him to wake up a little before he goes home. My daughter had some cereal before she left, so just bring some crackers or a light snack (similar to toast or crackers) and some juice you know he'll like.

Yes PE Tubes in his ears.

We are used to travling with large quanties of food, so that wont be a problem.

How long was her recovery? When did she notice a postive change?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,231
    • Most Online (within 30 mins)
      7,748
    TerriChapman
    Newest Member
    TerriChapman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trsprecker
      OTC pain reliever that are gluten-free and corn free??

      By trsprecker · Posted

      Thank you!  I will have to look into that.  I have Anklosing Spondylitis, bulging and dehydrated discs so pain is a big part of my life. 
    • knitty kitty
      OTC pain reliever that are gluten-free and corn free??

      By knitty kitty · Posted

      Welcome to the forum, @trsprecker, I needed daily pain relief for three crushed vertebrae and found out that Thiamine, Pyridoxine, and Cobalamin (Vitamins B 1, B 6, and B12) have an analgesic effect.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/   This is the one I order through that big online store... It's made in Japan.  I've been taking it for a couple of years now without problems.   GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets I don't do corn, nuts nor artificial sweeteners, either!    Keep us posted on your progress!
    • trsprecker
      OTC pain reliever that are gluten-free and corn free??

      By trsprecker · Posted

      I am celiac with corn and tree nut allergies.  I am finding it difficult to find OTC pain reliever that are safe for me.  Any suggestions?  I also do not tolerate any artificial sweeteners including stevia and agave.   Thanks! 
    • trents
      New Guy Here...

      By trents · Posted

      There are other possible causes or damaged small bowel villi besides celiac disease. Google this: Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies There is also something known as seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
    • ShariW
      Not All Corn Grits are Safe

      By ShariW · Posted

      Quaker corn grits are not certified gluten-free! These may, in fact, be contaminated by cross-contact in the manufacturing process. I have been following a strict gluten-free diet for about 3 years, with varying results depending on cross-contact issues. My celiac testing was inconclusive - and I wasn't willing to go back on gluten long enough for a full celiac diagnosis. I get pretty severe symptoms just a few hours after ANY gluten ingestion, no matter how small, so gastrointestinal doc recommends continuing to follow a gluten-free diet. So whether I have celiac disease (I do have one celiac gene) or non-celiac gluten sensitivity, treatment is the same. I have enjoyed corn grits on occasion, but started seeing a pattern of gluten intake symptoms after large family breakfasts. This last time, I researched everything I might have ingested. My family is pretty good about cross-contact, too. When I got to the Quaker corn grits, I found they are not certified gluten-free, and the labeling does not say gluten free anywhere - although the only ingredients are corn grits, salt and some vitamins and minerals. The research I did confirms that while Quaker grits do not "contain" gluten ingredients, they may indeed be contaminated by cross-contact with glutens. I threw out all the grits (and corn meal) I had in the pantry, and bought some certified as gluten-free. Hopefully, next family breakfast will be better! 😋
×
×
  • Create New...