Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lupus & Celiac - limited diet

Lia Jay

By Lia Jay
in Coping with Celiac Disease

Recommended Posts

Lia Jay Newbie
Lia Jay
Posted

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
8 hours ago, Lia Jay said:

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

That’s tough.  I don’t know anything about the diet restrictions for gout.  Can you at least switch up what you can eat?  Like a baked potato instead of boiled?  Scrambled eggs ?  Baked chicken?  If you can eat chicken can you eat turkey?  Can you eat sweet potatoes?  Might make life a little more pleasant?  

 

cyclinglady Grand Master
cyclinglady
Posted

I am sorry that you are unwell.  

 There are recommendations for a gout diet, but they are not that restrictive.  Why are you so limited (even more restrictive than the Autoimmune Paleo diet)?  Is your celiac disease flaring too and these are your safe foods (easy to digest and make)?  

https://www.arthritis.org/about-arthritis/types/gout/articles/best-and-worst-gout-foods-12.php

GFinDC Veteran
GFinDC
Posted

I agree with adding sweet potatoes if possible.  Sweet potatoes are more nutritious than white potatoes.  Plus white potatoes are a bad choice because of the alkaloids in them that many people react to.  White potatoes are a nightshade vegetable and some people can't tolerate nightshades.  All people react to the alkaloids in white potatoes but they are usually not enough of a problem for most people to have symptoms.

Other roots vegetables you could try are turnips, radishes, carrots.  Those may or may not work for your diet though. 

Posterboy Mentor
Posterboy
Posted
18 hours ago, Lia Jay said:

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

Lia Jay,

Eat you some Berries ....they can be good for Gout and take you some Magnesium Glycinate with or w/out food or Magnesium Citrate with meals.

Here is a couple links that will help you.

https://goutpatients.com/berries-and-gout/

https://www.ncbi.nlm.nih.gov/pubmed/24179880

I hope this is helpful but it is not medical advise.

Posterboy,

cyclinglady Grand Master
cyclinglady
Posted

I deal with three different autoimmune disorders.  If my celiac disease is flaring, the other two tend to flare up too. Often lasting longer than my celiac disease symptoms.   I hope that by managing your  celiac disease will help you best deal with your lupus diagnosis.  

Feel better fast!  

Daphne do Collaborator
Daphne do
Posted

I know one thing helps .d threw the pain and anxiety and depression because these diseases are so over whelming but I live in Michigan where marijuana is legal I make RSO it's a concentrated thc oil it's named after Rick Simpson from California it's the only thing that helps me sleep and makes me hungry because I don't want to eat because food makes me sick it's honestly the only thing that helps me feel better im sorry this is so hard I know I feel alone because no one around me really understands but I know all of you are out there good luck wish I could help you 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Opinions on my test results/symptoms

      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees. The 600 mcg of Liquid Iodine helped. Also...
    2. Wheatwacked
      - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

      If you mean continueing on Gluten Free my answer is yes. She showed significant improvement in her behavior and that translates to a happy family. Do get her tested as sooon as you can. You might want to investigate genetic testing for Celiac Disease. Children recover more quickly than adults. It took my son about 6 months on Nutramigen before going...
    3. Wheatwacked
      - Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

      Hi @Nicbent35, When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration. With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing. In the meantime, though, continue on GFD. Her health is more important than convincing...
    4. knitty kitty
      - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      3

      Anyone else with very high HDL?

      @plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency...
    5. Nicbent35
      - Nicbent35 replied to Nicbent35's topic in Introduce Yourself / Share Stuff
      4

      3 year old gluten intolerance?

      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,890
    • Most Online (within 30 mins)
      7,748
    Missymid
    Newest Member
    Missymid
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Opinions on my test results/symptoms

      By Wheatwacked · Posted

      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
    • knitty kitty
      Anyone else with very high HDL?

      By knitty kitty · Posted

      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
    • Nicbent35
      3 year old gluten intolerance?

      By Nicbent35 · Posted

      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
×
×
  • Create New...