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Lupus & Celiac - limited diet

Lia Jay

By Lia Jay
in Coping with Celiac Disease

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Lia Jay Newbie
Lia Jay
Posted

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

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kareng Grand Master
kareng
Posted
8 hours ago, Lia Jay said:

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

That’s tough.  I don’t know anything about the diet restrictions for gout.  Can you at least switch up what you can eat?  Like a baked potato instead of boiled?  Scrambled eggs ?  Baked chicken?  If you can eat chicken can you eat turkey?  Can you eat sweet potatoes?  Might make life a little more pleasant?  

 

cyclinglady Grand Master
cyclinglady
Posted

I am sorry that you are unwell.  

 There are recommendations for a gout diet, but they are not that restrictive.  Why are you so limited (even more restrictive than the Autoimmune Paleo diet)?  Is your celiac disease flaring too and these are your safe foods (easy to digest and make)?  

https://www.arthritis.org/about-arthritis/types/gout/articles/best-and-worst-gout-foods-12.php

GFinDC Veteran
GFinDC
Posted

I agree with adding sweet potatoes if possible.  Sweet potatoes are more nutritious than white potatoes.  Plus white potatoes are a bad choice because of the alkaloids in them that many people react to.  White potatoes are a nightshade vegetable and some people can't tolerate nightshades.  All people react to the alkaloids in white potatoes but they are usually not enough of a problem for most people to have symptoms.

Other roots vegetables you could try are turnips, radishes, carrots.  Those may or may not work for your diet though. 

Posterboy Mentor
Posterboy
Posted
18 hours ago, Lia Jay said:

Hello Everyone. Maybe someone can help me. I saw my rheumatologist and found out I have lupus and hyperurecemia which lead to chronic gout. My kidneys are in stage 3 damage and I have GERD and Celiac disease. I’m down to eating boiled eggs, boiled chicken, boiled potatoes, and green beans. 

All of this stemmed from poisoning with a stomach medication.  I cannot take allopurinol to relieve the chronic gout so I’m stuck  

Is there anyone else out there suffering from all of these or have any ideas about what I can do to feel better?

Thank you...

  

Lia Jay,

Eat you some Berries ....they can be good for Gout and take you some Magnesium Glycinate with or w/out food or Magnesium Citrate with meals.

Here is a couple links that will help you.

https://goutpatients.com/berries-and-gout/

https://www.ncbi.nlm.nih.gov/pubmed/24179880

I hope this is helpful but it is not medical advise.

Posterboy,

cyclinglady Grand Master
cyclinglady
Posted

I deal with three different autoimmune disorders.  If my celiac disease is flaring, the other two tend to flare up too. Often lasting longer than my celiac disease symptoms.   I hope that by managing your  celiac disease will help you best deal with your lupus diagnosis.  

Feel better fast!  

Daphne do Collaborator
Daphne do
Posted

I know one thing helps .d threw the pain and anxiety and depression because these diseases are so over whelming but I live in Michigan where marijuana is legal I make RSO it's a concentrated thc oil it's named after Rick Simpson from California it's the only thing that helps me sleep and makes me hungry because I don't want to eat because food makes me sick it's honestly the only thing that helps me feel better im sorry this is so hard I know I feel alone because no one around me really understands but I know all of you are out there good luck wish I could help you 

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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