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- Bernade posted a topic in Related Issues & Disorders0Our bodies functions differently
Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling hor... -
- Bernade replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs5
My 16yr daughter was recently diagnosed
My daughter was diagnosed with autoimmune disease and has been gluten free for over 8 years it has been very challenging but it has been a wonderful experience and we together have learned a lot now we cook meals together go to places that are gluten friendly and honestly it’s is a lot easier than you think… everyone has there own journeys for sure never fee... -
- Bernade replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs5
My 16yr daughter was recently diagnosed
Honestly My daughter has been gluten free for more then 8 years I never understood it,she has a thyroid issue and gluten knocks her down awful 😞 so being a parent I’ve understood what it means. Now I have celiac disease and I tell you it has been very challenging but I have felt so so much more comfortable eating gluten free and understanding all the effe... -
- knitty kitty replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs5My 16yr daughter was recently diagnosed
Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain. Gluten in the brain can be attacked by tTg 6 antibodies. This inflammation can cause ataxia. TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and... -
- JuggaloDad replied to JuggaloDad's topic in Parents, Friends and Loved Ones of Celiacs5My 16yr daughter was recently diagnosed
Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks
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Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues??? -
My daughter was diagnosed with autoimmune disease and has been gluten free for over 8 years it has been very challenging but it has been a wonderful experience and we together have learned a lot now we cook meals together go to places that are gluten friendly and honestly it’s is a lot easier than you think… everyone has there own journeys for sure never feel alone or down life has wonderful things that come along for more then we expect.💖
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Honestly My daughter has been gluten free for more then 8 years I never understood it,she has a thyroid issue and gluten knocks her down awful 😞 so being a parent I’ve understood what it means. Now I have celiac disease and I tell you it has been very challenging but I have felt so so much more comfortable eating gluten free and understanding all the effects it can have.
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By knitty kitty · Posted
Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain. Gluten in the brain can be attacked by tTg 6 antibodies. This inflammation can cause ataxia. TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and Parkinson's. Serum Antibody tests for Celiac Disease check for tTg 2 antibodies. TTg 3 antibodies are found in Dermatitis Herpetiformis. THC can dislodge gluten from the opioid receptors in the brain and body, taking gluten's place on the opioid receptor. THC is then easier to remove from the opioid receptors than gluten. THC is being used medically in opioid addiction cessation. THC has other benefits such as calming mast cells so they don't release histamine. Histamine lease from mast cells causes inflammation and is part of the autoimmune reaction in Celiac. Thiamine Vitamin B 1 is instrumental in brain and nerve health. Opioid and THC use can deplete thiamine stores. Malabsorption due to Celiac Disease can prevent those stores being replenished. Early Thiamine deficiency disorder symptoms includes eating disorders such anorexia and bulimia. Ataxia is improved with Thiamine. Anxiety and depression are also improved with Thiamine. Thiamine helps stop mast cells from degranulating and releasing histamine. Gastroparesis and Gastrointestinal BeriBeri are improved with Thiamine. Thiamine with Pyridoxine and Cobalamine have analgesic properties. Thiamine in the form Benfotiamine promotes gastrointestinal health. The form of Thiamine called TTFD (tetrahydrofurfuryl disulfide) helps immensely with the ataxia and neurological symptoms. Doctors undervalue the benefits of supplementation with essential nutrients in Celiac Disease. Correction of nutritional deficiencies quickly in Celiac is important to health and recovery. Most blood tests for vitamin deficiencies are not accurate. None the less, discuss supplementing with doctors and nutritionists. Do look into a low histamine Paleo Diet like the Autoimmune Protocol Diet developed by a Celiac, Dr. Sarah Ballentyne, shown to promote intestinal healing. This is the diet that really improved my health along with supplementing the essential vitamins and minerals. After struggling with Gastrointestinal BeriBeri, Ataxia and eating disorders myself, TTFD has made a world of difference. My blog has more information. I'm happy to share what I've learned on my journey. -
By JuggaloDad · Posted
Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks
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