Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Color Purple


Guest cainepole

Recommended Posts

Guest cainepole

I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

one of my twins is really thin (actually they both are but one is 15-20 lbs heavier than the other) anyway, the thinnest one quite often gets blue lips and blue hands, but it is usually when she is cold---even if the rest of us aren't cold.

christine

Lisa Mentor

I would suggest a full blood work panel to see what difficencies that you may have. Perhaps a vitamine inbalance. Those of us with celiac, it is always good to do that several times a year to make sure that we are getting what we need to have our body function as well as it can.

Lisa B.

SurreyGirl Rookie
...purple skin tone...

There is an autoimmune condition called dermatomyositis, although this presents itself more in purple patches. Since many autoimmune conditions can be triggered by gluten, could there be a connection?

  • 2 months later...
Guest cainepole

I still haven't gone to the doc for a full blood work up. A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up. If I can get the cash together soon I'll let all of you know what the results are. Another suggestion that was made to me was low capilarairy response, does anyone know more about that?

GlutenFreeAl Contributor

It's possibly Reynaud's disease, which I have. Basically I it means that there's not much blood flowing in my extremities and they're almost always cold and purple.

There's nothing they can do for it with the possible exception (I think) of blood thinners.

I've learned to just live with it and invest in warm gloves and wool socks (don't know what your climate is like) and it's actually gotten better as I've gotten older.

My face is always super super pale as well, and I'm sure that's related.

Sorry couldn't be of any more help than that!!

nikki-uk Enthusiast

I think I have this-

Toes and fingers go purple (even in summer!)

Interestingly my face is always very pale too,it doesn't even tan.

This winter I got some chilblains on my toes (gosh they hurt!) and I am sure it's all related.

BTW I am not a coeliac (my husband is-but I am gluten-free with him)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I am new to the boards here so, let me introduce myself. I'm 26 & 120 and was diagnosed with celiac disease almost a year ago but have probably had it my whole life considering previous misdiagnoses. Along with my symptoms of celiac disease one thing my doctor and I haven't figured out is my purple skin tone. With my size and color I look like a corpse, which is fine for Halloween but, this is year round. Even if I tan my skin stays tinted dead purple. Anyone have any advice? :huh:

This may be something called livedo reticularis, I had it all my life and it got real pronounced when I was at my sickest. For some reason acupuncture would clear the color before I went gluten-free, it kind of amazed the Dr doing it. Now my skin tone is normal (it did take a long time to go away)- unless I get glutened. I theorize that it is a blood vessel response to the toxin because it goes away if I am totally gluten-free. But who knows. So anyway you may want to try acupuncture and make sure you are completely gluten-free.

paulasimone Rookie
A friend of mine with Lupis said that I might not be getting enough Beta Carotene and suggested Burt's Bee's carrot oil lotion, this does not seem to be helping so I guess it is time for that blood work up.

If you mean the Carrot Day (or Night) Creme, it has gluten in it. :o Below is the the list of Burt's Bee's products NOT to use.

:)

Paula

---------------------------------------------------------------------------------

Thank you for contacting Burt's Bees. The Quality Resources Department Manager has put together a list of products that SHOULD NOT be used by Celiac Patients. These products contain wheat, oat, rye, or barley derived ingredients.

Please AVOID these products:

Baby Bee:

Apricot Baby Oil (Wheat)

Buttermilk Soap (Oat)

Shampoo Bar (Oat)

Healthy Skin:

Avocado Hair Butter Treatment (Oat)

Carrot Day Crème (Wheat)

Carrot Night Crème (Wheat)

Citrus Facial Scrub (Oat)

Coconut Foot Crème (Oat)

Orange Essence Cleansing Crème (Oat)

Vitamin E Bath & Body Oil (Wheat)

Healthy Treatment:

Repair Serum (Wheat)

Natural Remedy:

Dr. Burt's Res-Q Ointment or Comfrey Salve (Wheat)

Poison Ivy Soap (Oat)

Rosemary Mint Shampoo Bar (Oat)

Peppermint Foot Lotion (Wheat)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,807
    • Most Online (within 30 mins)
      7,748

    Nikki W
    Newest Member
    Nikki W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
    • Manaan2
      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
×
×
  • Create New...