Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Testing Methodology


Packard

Recommended Posts

Packard Newbie

So many people have eliminated so many foods from their diets that it is scary.

What is your food testing methodology?

I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

For example: Recently I got a bout of "unpleasantness" due to gluten ingestion. I was on pretty firm ground on everything that I ate that day. I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.

To confirm my suspicion I carefully monitored everything that I ate another day and only ate items that I was sure were gluten free, plus I had a bowl of chili. The results were convincing.

But if you eliminate something each time you get ill without re-testing you are going to end up with nothing left to eat.

I eliminated dairy in the beginning because I had no clue what was causing my problems. But there is a definitive test for dairy and that came back negative. Ice cream is now back on my menu (I need something to replace the brownies).

So what is your testing procedure? And how confident are you that your list of verboten foods is a relevant one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

This is tough one. Mostly I try to only add one "new" food a day, and then if I feel ill, I assume it was that food. I admit I don't very often go back and try that food again - it's just not worth it to me. Also, I don't eat out very often, so that makes it easier to know exactly what I'm eating. I find eating out to still be tricky.

As for brownies.... the Gluten-Free Pantry makes a good mix. I make them all the time and keep them in the freezer. I have even served them to my gluten eating friends, who loved them! They couldn't believe they were gluten-free.

lonewolf Collaborator
The chili is listed in Wendy's website as being gluten free,

My husband used to work at Wendy's (a long time ago, granted). He says that there's no way it's gluten free. Cross contamination issues.

Liz

tarnalberry Community Regular

You have to have completely knowledge of what you are ingesting if you're going to determine what foods to eliminate - that means bringing your own, self-packed lunch and not eating out until you've finished testing.

A more rigorous approach would be to make a menu - for a week or two, at least. eat that menu, record your symptoms along with the foods. then, when that time period is over, eat the exact same menu again, only adding in a food you want to test - only one food - recording your symptoms along with the foods. then, go back to the original menu. it's time consuming, but the life-span of the body's digestive processes isn't hours or a few days, so there's not much getting around it being time consuming.

CeliaCruz Rookie
I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

I found that cross-contamination issues throw a monkey wrench into my food testing methodology, so I stopped eating out altogether. For instance, McDonald's fries are supposed to be gluten-free but sometimes they bother me and sometimes they don't. So I had to eliminate them just to be safe. Now that everything I eat is something I've prepared myself, I can eliminate cross contamination as a consideration. If I get glutened, I can consult my food log and know that something I ate recently made me sick and it had nothing to do with random flour on a kitchen work surface or breadcrumbs in the peanut butter etc. I've learned a lot that way. It's a pain in the ass -- especially if you have a full time job -- but I'm trying to think of it as a learning experience that will pay off someday.

marciab Enthusiast

This diet sucks, BUT, I have to admit, it has helped tremendously. I no longer have the bouts of D. I don't have that constant pain in my abdomen. And I stopped being hyperactive the same day I stopped the gluten. And I didn't even know I was hyper until I stopped being hyper. Duh !! I just thought I was antsy.

I cook foods in a large quantity and freeze them, so I can just pull them from the freezer when I am hungry. Millet, buckwheat, quinoa and brown rice all freeze well. As do beans. And I keep some gluten free smoothie mixes and fruits to take with me while I am on the go. I will add plain frozen veggies to any meal. I'm still working on the gluten free bread. My motto is "If I cook it, no matter what it looks like, I will eat it". I draw the line when it comes to any burnt, though.

I keep messing up by adding little things for flavor. I saw where sometimes people who are sensitive to dairy can tolerate yogurt. SO, I added yogurt and calamata olives to some of my meals (saw this on the food channel) ... yummm... but I got cocky and added cashews too. So now, I have to go back and see which of these ingredients really nailed me. I suspect the cashews.

Oh, well ... it was fun while it lasted ...hang in there ... marcia

Carriefaith Enthusiast
I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.
A Canadian list that I saw indicated that Wendy's chili can be contaminated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.