Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Testing Methodology


Packard

Recommended Posts

Packard Newbie

So many people have eliminated so many foods from their diets that it is scary.

What is your food testing methodology?

I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

For example: Recently I got a bout of "unpleasantness" due to gluten ingestion. I was on pretty firm ground on everything that I ate that day. I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.

To confirm my suspicion I carefully monitored everything that I ate another day and only ate items that I was sure were gluten free, plus I had a bowl of chili. The results were convincing.

But if you eliminate something each time you get ill without re-testing you are going to end up with nothing left to eat.

I eliminated dairy in the beginning because I had no clue what was causing my problems. But there is a definitive test for dairy and that came back negative. Ice cream is now back on my menu (I need something to replace the brownies).

So what is your testing procedure? And how confident are you that your list of verboten foods is a relevant one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

This is tough one. Mostly I try to only add one "new" food a day, and then if I feel ill, I assume it was that food. I admit I don't very often go back and try that food again - it's just not worth it to me. Also, I don't eat out very often, so that makes it easier to know exactly what I'm eating. I find eating out to still be tricky.

As for brownies.... the Gluten-Free Pantry makes a good mix. I make them all the time and keep them in the freezer. I have even served them to my gluten eating friends, who loved them! They couldn't believe they were gluten-free.

lonewolf Collaborator
The chili is listed in Wendy's website as being gluten free,

My husband used to work at Wendy's (a long time ago, granted). He says that there's no way it's gluten free. Cross contamination issues.

Liz

tarnalberry Community Regular

You have to have completely knowledge of what you are ingesting if you're going to determine what foods to eliminate - that means bringing your own, self-packed lunch and not eating out until you've finished testing.

A more rigorous approach would be to make a menu - for a week or two, at least. eat that menu, record your symptoms along with the foods. then, when that time period is over, eat the exact same menu again, only adding in a food you want to test - only one food - recording your symptoms along with the foods. then, go back to the original menu. it's time consuming, but the life-span of the body's digestive processes isn't hours or a few days, so there's not much getting around it being time consuming.

CeliaCruz Rookie
I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

I found that cross-contamination issues throw a monkey wrench into my food testing methodology, so I stopped eating out altogether. For instance, McDonald's fries are supposed to be gluten-free but sometimes they bother me and sometimes they don't. So I had to eliminate them just to be safe. Now that everything I eat is something I've prepared myself, I can eliminate cross contamination as a consideration. If I get glutened, I can consult my food log and know that something I ate recently made me sick and it had nothing to do with random flour on a kitchen work surface or breadcrumbs in the peanut butter etc. I've learned a lot that way. It's a pain in the ass -- especially if you have a full time job -- but I'm trying to think of it as a learning experience that will pay off someday.

marciab Enthusiast

This diet sucks, BUT, I have to admit, it has helped tremendously. I no longer have the bouts of D. I don't have that constant pain in my abdomen. And I stopped being hyperactive the same day I stopped the gluten. And I didn't even know I was hyper until I stopped being hyper. Duh !! I just thought I was antsy.

I cook foods in a large quantity and freeze them, so I can just pull them from the freezer when I am hungry. Millet, buckwheat, quinoa and brown rice all freeze well. As do beans. And I keep some gluten free smoothie mixes and fruits to take with me while I am on the go. I will add plain frozen veggies to any meal. I'm still working on the gluten free bread. My motto is "If I cook it, no matter what it looks like, I will eat it". I draw the line when it comes to any burnt, though.

I keep messing up by adding little things for flavor. I saw where sometimes people who are sensitive to dairy can tolerate yogurt. SO, I added yogurt and calamata olives to some of my meals (saw this on the food channel) ... yummm... but I got cocky and added cashews too. So now, I have to go back and see which of these ingredients really nailed me. I suspect the cashews.

Oh, well ... it was fun while it lasted ...hang in there ... marcia

Carriefaith Enthusiast
I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.
A Canadian list that I saw indicated that Wendy's chili can be contaminated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    4. - Theresa2407 replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,708
    • Most Online (within 30 mins)
      7,748

    Ben Cohen
    Newest Member
    Ben Cohen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.