Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Please


Pipes

Recommended Posts

Pipes Newbie

Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

I dont know if it is......I have had problems with my insurance company paying for doctor vists and some of the random testing. I see a nutritionists and I have to pay out of pocket because my Insurance company does not believe that what I have is really a problem.

I know for a fact that my insurance company does not reconize what I have to be a real mediacal issue.

I wish you the best of luck and if you find anything out let us know, but I would call the your insurance company to see if they reconize it.

Good Luck and I hope that you feel better soon :)

Amanda NY

Canadian Karen Community Regular

Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

Open Original Shared Link

Welcome aboard!

Karen

nettiebeads Apprentice
Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.

How big is your company? If it has more than 50 people, you should talk to the HR about FMLA and see if there is a way around your illness until you get a proper dx and get healthy again. Unfortunately, Celiac isn't considered and disability because it doesn't affect (supposedly) your ability to do your job. Good luck and keep us posted!! No matter what your biopsy results are, I would highly recommend the gluten-free diet the minute you're done with the procedure. Didn't the GI do a blood panel? Anyhow, I do sincerely hope you are better soon.

Annette

Guest katzmeow21
Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

Open Original Shared Link

Welcome aboard!

This is off the subject but I am curious as to whether you have ever tried the Diet from the Book " Breaking the Vicious cycle" by Elaine Gottschall . She was Canadian, had a daughter with severe digestive issues and studied up on this and all digestive issues and created something called the SBD diet. Maybe it could help you.

regards MJ

Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,118
    • Most Online (within 30 mins)
      7,748

    Momoosa
    Newest Member
    Momoosa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
×
×
  • Create New...