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News: Do Celiac families really need 2 toasters?

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted

... could be high enough to pose a gluten exposure risk for someone with celiac disease -- in general, greater than 20 parts per million (ppm) or .002%.

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kareng Grand Master
kareng
Posted

Too bad they didn’t  test my husband‘s toaster!  The results would be completely different.  ?

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cyclinglady Grand Master
cyclinglady
Posted

Here are my thoughts:

Quote: “So many celiac parents, including me....”

Spoken by a parent who does NOT have celiac disease.  Is the author’s child healed?  Does she understand that some celiacs can have no symptoms or their symptoms can change?  That follow-up blood tests are not very accurate in terms of dietary compliance?  No offense meant to those dedicated parents who work hard at keeping their celiac child safe.  

Celiac experts have said that a huge chunk of diagnosed celiacs who have been mis-diagnosed with refractory celiac disease actually are getting gluten exposures.  My own PCP has two other celiac patients who are chronically ill and she suspects they are getting gluten exposures.  And now they think sharing a crumby toaster or a shared knife might be safe — all the time?   Gee, is my toaster clean?  Does it get hot enough to burn off residual bread each time?  When they established the 20 ppm cut-off they based it off less than 49 people?  Here is the 2007 study that was the basis for the FDA 20 ppm rule.  

https://www.ncbi.nlm.nih.gov/pubmed/17209192

Do we really know that 20 ppm is safe?  I think the answer is it varies based on the individual.  Some celiacs are very sensitive.  Some are not.  

“and highlights the need for further study in this area so that recommendations can be evidence-based”

Another study that is not evidence-based (they admit) and probably prematurely released.   Now many celiacs will start cooking their pasta in gluten pasta water.  Ugh!  In the case of a toaster and traveling, use toaster bags.  Wash your cooking utensils!  Continue to follow current guidelines until more studies are done.  Better to be safe than sorry.  

“in taking this important first step in bettering the lives of celiac disease patients and their loved ones”

Again, just preliminary testing!  And that quote was from another parent from the Celiac Disease Foundation.  The one who supports mechanically sorted Cherrios because they accept advertising dollars/donations from General Mills?  How about getting statements from celiacs?  Better my life by finding a cure and not a short cut.   Having to use a $12 toaster for gluten-free bread is not a hardship for the vast majority of celiacs.  Not when almost everyone owns a cell phone, pays for cable/internet, etc. 

Sorry, I typed this on a tablet.  The font size is messed up.  

 

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cyclinglady Grand Master
cyclinglady
Posted

Ah, the Gluten Free Watchdog has commented!  You can ready her post here: 

https://www.glutenfreewatchdog.org/news/

Botton line is to continue to follow safe kitchen practices.  This study was flawed.  

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    • sh00148
      Nighttime Soiling (5 year old)

      By sh00148 · Posted

      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
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      Nighttime Soiling (5 year old)

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      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
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