Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 weeks pregnant and accidentally consumed gluten


EmmaI

Recommended Posts

EmmaI Newbie

Hi,

im sorry if this has been asked before. I’ve been gluten-free for 2 years. I’ve also lost three pregnancies at 16 weeks, 8 weeks and 6 weeks. Im currently 10weeks and am in a lot of gassy pain. I’ve gone back through the food I’ve eaten and realised that I’ve stupidly had barley water over the last few days (1or 2 pints a day) and last week a little pickle. Where I’ve been so nauseous and exhausted I’ve just not thought it checked. 

Im so worried that I’ve caused another miscarriage or developmental issues. Has anyone else accidentally consumed gluten whilst pregnant and all has been ok?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Some of the items in this article you probably would want to check with your doctor before doing, but here are some recommendations for accidental gluten ingestion. I'm not a doctor, but I do not believe a single incident of gluten ingestion would cause any major issues with a pregnancy. The issues documented in research would be for those who have celiac disease, but continue to eat gluten while they are pregnant. 

 

 

EmmaI Newbie
19 minutes ago, Scott Adams said:

Some of the items in this article you probably would want to check with your doctor before doing, but here are some recommendations for accidental gluten ingestion. I'm not a doctor, but I do not believe a single incident of gluten ingestion would cause any major issues with a pregnancy. The issues documented in research would be for those who have celiac disease, but continue to eat gluten while they are pregnant. 

 

 

Thank you. I’ll have a read of the article. You are right it looks like untreated disease is the issue rather than treated. ?

 

thanks again

cyclinglady Grand Master
(edited)

I am so sorry.  I can not answer your pregnancy question.  Only time will tell.

I would suggest a non-processed gluten-free foods diet while you are pregnant.  Become strict, very strict.  No eating out.  No eating food prepared by someone else.  Consider no gluten in your home or put in strict safe food practices.  

I would make sure that your thyroid is functioning.  My OB was careful about that as it also can lead to miscarriages and Hashimoto’s Thyroiditis is commonly liked to celiac disease.  

Hugs.  Try not to worry.  You can only move forward.  ?

Edited by cyclinglady
EmmaI Newbie
10 hours ago, cyclinglady said:

I am so sorry.  I can not answer your pregnancy question.  Only time will tell.

I would suggest a non-processed gluten-free foods diet while you are pregnant.  Become strict, very strict.  No eating out.  No eating food prepared by someone else.  Consider no gluten in your home or put in strict safe food practices.  

I would make sure that your thyroid is functioning.  My OB was careful about that as it also can lead to miscarriages and Hashimoto’s Thyroiditis is commonly liked to celiac disease.  

Hugs.  Try not to worry.  You can only move forward.  ?

Thank you cyclinglady,

 

I will get them to check my thyroid too. I’m under several Drs going forwards so hopefully this will work? 

 

I’m usually strict. I think where I’m so exhausted and nauseous I just made a stupid mistake. My husband is now double checking and products we buy that are processed (not many anyway).

 

thanks again

  • 1 month later...
Jenna1028 Apprentice
On 10/5/2019 at 2:29 AM, EmmaI said:

I will get them to check my thyroid too. I’m under several Drs going forwards so hopefully this will work? 

I would have them keep an eye on your hormone levels - especially your progesterone levels. 

With celiac, the hormone levels get all screwy and out of whack. And low progesterone is one of the leading causes of miscarriage, and often goes undiagnosed. 

I have celiac, and I'm convinced my mother had it as well. She, like you, had several miscarriages. I had one miscarriage, and with my daughter I was on bed rest from 9 weeks to delivery. 

I don't know about you, but I suffer from terrible migraines, and had a migraine every day I was pregnant.  I was undiagnosed at the time of my pregnancy, and was completely addicted to McDonald's chicken nuggets, Keebler cookies, and bread, lol.

Anyway - given my diet, and what I ate while pregnant, believe me - there's hope!  Try not to stress ❤️ Hope this helps!   

NNowak Collaborator

I’m terribly sorry for your previous losses. I was in the same boat and ended up with four beautiful children. My OB sent me to a gastro that specialized in celiac to review my diet, antibodies, and scope me. Although everything came back normal, he did question my coffee creamer (Carnation Hazelnut). One of the ingredients had changed giving it trace amounts of gluten. I had two more children and one more miscarriage after that. Physically I felt better, however. Progesterone didn’t prevent the miscarriages either - a side note in case you’re wondering. 
 

I’m not a doctor, but my feeling is that accidental gluten ingestion is not connected to miscarriage for the person following a gluten-free diet. You’re more likely to go through periods of infertility and be physically affected by a growing fetus. Rest, rest, rest and feed your body Whole Foods. Some things in life have no answers and our best way of living with difficulty is to keep moving forward. I believe I know exactly how you feel. Hugs momma. ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EmmaI Newbie
(edited)
3 hours ago, Jenna1028 said:

I would have them keep an eye on your hormone levels - especially your progesterone levels. 

With celiac, the hormone levels get all screwy and out of whack. And low progesterone is one of the leading causes of miscarriage, and often goes undiagnosed. 

I have celiac, and I'm convinced my mother had it as well. She, like you, had several miscarriages. I had one miscarriage, and with my daughter I was on bed rest from 9 weeks to delivery. 

I don't know about you, but I suffer from terrible migraines, and had a migraine every day I was pregnant.  I was undiagnosed at the time of my pregnancy, and was completely addicted to McDonald's chicken nuggets, Keebler cookies, and bread, lol.

Anyway - given my diet, and what I ate while pregnant, believe me - there's hope!  Try not to stress ❤️ Hope this helps!   

Sorry if you posted this awhile ago. Thank you for your message. There is definitely hope. Thankfully I don’t get migraines. I do though get frequent headaches.

I self prescribed progesterone after an early loss this year. I gave maintained a dose of 800mg a day since we had our positive result. This can help keep the cervix stable also.

tomorrow is the same weekaage that we lost our longest pregnancy... ? this is going to work and carry on. 

Edited by EmmaI
EmmaI Newbie
1 hour ago, NNowak said:

I’m terribly sorry for your previous losses. I was in the same boat and ended up with four beautiful children. My OB sent me to a gastro that specialized in celiac to review my diet, antibodies, and scope me. Although everything came back normal, he did question my coffee creamer (Carnation Hazelnut). One of the ingredients had changed giving it trace amounts of gluten. I had two more children and one more miscarriage after that. Physically I felt better, however. Progesterone didn’t prevent the miscarriages either - a side note in case you’re wondering. 
 

I’m not a doctor, but my feeling is that accidental gluten ingestion is not connected to miscarriage for the person following a gluten-free diet. You’re more likely to go through periods of infertility and be physically affected by a growing fetus. Rest, rest, rest and feed your body Whole Foods. Some things in life have no answers and our best way of living with difficulty is to keep moving forward. I believe I know exactly how you feel. Hugs momma. ?

NNowak,

 

thank you for your reply. I’m so sorry for your losses. 

Mum aware that progesterone doesn’t stop a loss. It may prevent the ‘evacuation ‘ of the lids, which has had me even more anxious. 

 

Ive become do careful now with what I eat. I’d rather that than any concerns or panicked like I had at 10 weeks. We’ve got to the same time frame as our longest pregnancy so far.? it works out. Sadly I’m on the older spectrum, so I fear this is our last pregnancy.

Thanks for the test advice. All I seem to do is rest. My husband is concerned about how much time I’m spending on the settee ?

 

thank you for the hugs, sending them back to you

 

emma

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    4. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    5. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.