Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac?

gabrielle03
 Share

Recommended Posts

gabrielle03 Newbie
gabrielle03
Posted

Starting a couple of months ago I started having some problems. I started getting bloated and nauseous every time I ate. Then I was constipated. Now I get bloated and nauseous every time I eat, I'm constipated, I'm always tired, I get stomach cramps and a stomach ache, I have occasional sharp pains in my stomach area, and I get gassy after I eat. Because of this I never am hungry. I have lost a significant amount of weight. Other symptoms I have are mild headaches and depressive behavior. A couple of years ago before I started feeling sick I had tooth enamel loss, anxiety, and minor lactose intolerance. The stomach aches and pains are usually moderate but lately, they have been getting worse.

I have told my parents about the way I have been feeling and they have been trying to help me figure out what is wrong with me but I can tell they are hesitant to believe it is due to a real medical condition. They have not been listening to the symptoms I tell them. Despite their denial, it is obvious they think it is all in my head and that I am suffering from an eating disorder. I don't think this is the case but is it possible? Could this all be in my head? I am reluctant to think this is an eating disorder because the first symptoms I had were bloating and nausea. I never had the intention of losing weight and I am trying very hard to gain weight despite the pain. I know it may not be very convincing coming from me but it is true. I ordered myself a genetic test and a blood test. I have relatives that have celiac(if that means anything) and my mom is non-celiac gluten sensitive(but has never been tested for celiac). I know the only way to tell if you have celiac or gluten-intolerance is by getting diagnosed by the doctor but I need peace of mind until then. I am not crazy, am I?

The symptoms I have been feeling are most similar to IBS, gluten sensitivity, and celiac. Does my pain have to be severe to be celiac? I am going to continue to eat gluten until celiac is ruled out and then I am going to start an elimination diet. Anything would be so helpful. I feel so alone and confused by everything. 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

Sounds like it could be celiac, especially when you have relatives that have it.  What blood test(s) did you order?

gabrielle03 Newbie
gabrielle03
Posted
  • Author
1 hour ago, RMJ said:

Sounds like it could be celiac, especially when you have relatives that have it.  What blood test(s) did you order?

I ordered tTG-IgA,tTG-lgG, DGP-IgG and DGP-IgA. 

RMJ Mentor
RMJ
Posted
29 minutes ago, gabrielle03 said:

I ordered tTG-IgA,tTG-lgG, DGP-IgG and DGP-IgA. 

Good! You should get an answer from those! Let us know how it turns out.

cyclinglady Grand Master
cyclinglady
Posted

You are not crazy.  

Years ago, I had a GI tell me and my husband that I was a “high strung” woman and that my GI symptoms were all in my head.   Looking back, I probably had celiac disease all my life (due to life-long iron-deficiency anemia) and a non-functioning gallbladder (0% per HIDA scan) that became infected.  

Do not let doctors or even your parents dismiss you.  Maybe your gluten-sensitive mother is in denial.  Symptoms vary so much among celiacs.  It is one of the reasons this disease is so hard to diagnose.  

My own kid (university student) has been tested twice.  So, she can either remain on gluten or eliminate it.  Having lived in our gluten-free house, she feels best without it.  She is not 100% gluten free, but is gluten light.  After testing, you can choose to trial the diet.  It is your decision.  

I swore that my niece had celiac disease.  She tested negative several times (blood tests and scopes).   Finally, her 4th GI gave her a pill camera.  It revealed damage beyond the reach of both scopes.  She was diagnosed with Crohn’s.  She is doing very well now.  I am sharing this because I do not want you to give up!  

Please make sure you are on a full gluten diet (daily) or all celiac testing will be invalid.  

Be persistent, nice, and get the help you need.  Keep all your medical records!  You are on the right track.   It is not in your head!  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,400
    • Most Online (within 30 mins)
      7,748
    Siar
    Newest Member
    Siar
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Celiac, Fructose and Lactose

      By Scott Adams · Posted

      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori  infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection? 
×
×
  • Create New...