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New To Celiac And I Need Help


gointribal

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gointribal Enthusiast

I am new to Celica, well, I don't know if I have it or a really bad allergic reaction to milk. I have been milk free for over a year and it helped but I wasn't totally better. Then a friend of mine who has celica, said I should try going gluten-free. I have seen great improvements, its wonderful. However I am getting married and I really want to know if I have Celica or not. The Dr did draw blood and my combined % was 2.1 but they said that was ok (even though it was high). I didn't really understand all that and had to take their word for it. I did have a colonoscopy done and I was fine. I am going in for a EDG next month and I was wondering if I HAVE to go back on gluten? I told myself yes I did and so far its been four days of hell. I can't keep going like this, but will it change the test results? Any ideas because I can use all I can get :D


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tarnalberry Community Regular

I don't know what you're referring to when you say your "combined percent". The blood tests for celiac disease are anti-gliandin IgA and IgG, anti-tissue transglutimerage IgG, endomyosial antibodies, and total IgA. You *must* be eating gluten (in the amount of approximately 3 slices of bread a day for three months) for the tests to have a reasonable chance of not giving a false negative.

But listening to your symtpoms is important as well. If you feel that the dietary challenge you have done is enough for you, then perhaps that's all you need to know in order to stay completely gluten free.

sneako Rookie

Speaking of milk, ever since going gluten-free I can't stop drinking milk! I find myself going through an entire gallon twice a week. Before going gluten-free most of the container would spoil before I got around to using it. Why the intense craving?

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    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
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    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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