Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can Celiac stomach pain start up again after years of being gluten-free?


Donna-1

Recommended Posts

Donna-1 Rookie

I've done great for 7 years; diagnosed with Celiac Disease 7 yrs ago. Once I dedicated myself to being totally gluten-free and oats-free (at least the last 3 yrs) I finally felt completely well!!!  Now some of the old familiar symptoms have returned.  Mainly high upper abdominal and mid right abdominal pain.  What have I done?  I am so careful and wouldn't knowingly consume wheat, barley, rye or oats for ANY reason.  I'm not having the diarrhea I used to, but having the bloating and gas and PAIN.  I had a series of the usual blood tests: CBC, thyroid, metabolic panel, and others and everything came back "normal."  My doctor is adamant it is just somatic complaints due to depression and anxiety.  I say it is the other way around: depression and anxiety because of the celiac disease.  I will do anything to stop this pain.  Will adopting a diet of a few simple non-gluten foods get me back on track?

Edited by Donna-1
forgot an important part
Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NNowak Collaborator

There are a number of things that can cause that pain. Keep seeking answers until you find a professional that will listen and give you confidence you are being cared for properly.  A gastroenterologist should address your health issues as primary care physicians are not trained in this area. 
 

Good luck. 

Link to comment
Share on other sites
cyclinglady Grand Master

This is my experience.  In a nutshell, five years after my diagnosis,  I had abdominal pain, GERD, etc.  My DGP IgA was very elevated.   I refused to do a repeat endoscopy as suggested by my GI.  Instead, I opted for the Fasano diet.  But after a few months, the diet was not helping.  I finally caved in (about one year from developing various GI symptoms) and had the repeat endoscopy which showed healthy villi (he went in very deep), but revealed Chronic autoimmune gastritis which is often affiliated with Hashimoto’s (which I have).  I learned that not all symptoms are due to active celiac disease and that the antibodies testing is good for diagnosing, but not so good for dietary compliance.  

Get to your GI.  

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,779
    • Most Online (within 30 mins)
      7,748

    Cathy Roth
    Newest Member
    Cathy Roth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      There is plenty of gluten food that is unplatable also. The trouble in restaurants is that wheat,  like the Frank's Hot Sauce commercial; "They throw that bleep on everything." In my opinion, the underlying problem is compromised immune system due to vitamin D deficiency and Green Revolution modern wheat.  50% of the industrialized world are vitamin D deficient and we are urged to avoid sun and limit oral vitamin D intake to the minimum.   Non Celiac Gluten Sensitivity became an official diagnosis only 10 years after modern wheat was marketed.
    • trents
      I understand from one of our forum moderators who is UK-based that the benefits of having an official celiac diagnosis varies depending on your postal code. So then, it must be a benefit tied to local government rather than national government.
    • Elliebee
      I think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet).  think if I gave up gluten and got a negative blood result and stick with it rather than do the gluten challenge (even though I’ve got no symptoms.. yet). 
    • Scott Adams
      For anyone interested in research summaries on this topic we have this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ 
    • trents
      Obviously, you have looked at all this from various angles and I respect that. But consider this, you could trial the gluten-free diet for six months to see if it results in lower ttg-iga scores. If so, it is another piece of evidence pointing to celiac disease. You could then go off the gluten fast and return to a gluten loaded diet for weeks or months and repeat the colonoscopy/endoscopy. My point is that trialing a gluten-free diet does not eliminate the possibility of getting valid celiac retesting at a late date if you are willing to engage with the gluten challenge.
×
×
  • Create New...