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can Celiac stomach pain start up again after years of being gluten-free?


Donna-1

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Donna-1 Rookie
(edited)

I've done great for 7 years; diagnosed with Celiac Disease 7 yrs ago. Once I dedicated myself to being totally gluten-free and oats-free (at least the last 3 yrs) I finally felt completely well!!!  Now some of the old familiar symptoms have returned.  Mainly high upper abdominal and mid right abdominal pain.  What have I done?  I am so careful and wouldn't knowingly consume wheat, barley, rye or oats for ANY reason.  I'm not having the diarrhea I used to, but having the bloating and gas and PAIN.  I had a series of the usual blood tests: CBC, thyroid, metabolic panel, and others and everything came back "normal."  My doctor is adamant it is just somatic complaints due to depression and anxiety.  I say it is the other way around: depression and anxiety because of the celiac disease.  I will do anything to stop this pain.  Will adopting a diet of a few simple non-gluten foods get me back on track?

Edited by Donna-1
forgot an important part

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NNowak Collaborator

There are a number of things that can cause that pain. Keep seeking answers until you find a professional that will listen and give you confidence you are being cared for properly.  A gastroenterologist should address your health issues as primary care physicians are not trained in this area. 
 

Good luck. 

cyclinglady Grand Master

This is my experience.  In a nutshell, five years after my diagnosis,  I had abdominal pain, GERD, etc.  My DGP IgA was very elevated.   I refused to do a repeat endoscopy as suggested by my GI.  Instead, I opted for the Fasano diet.  But after a few months, the diet was not helping.  I finally caved in (about one year from developing various GI symptoms) and had the repeat endoscopy which showed healthy villi (he went in very deep), but revealed Chronic autoimmune gastritis which is often affiliated with Hashimoto’s (which I have).  I learned that not all symptoms are due to active celiac disease and that the antibodies testing is good for diagnosing, but not so good for dietary compliance.  

Get to your GI.  

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